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X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;TZID=America/New_York:20260620T063000
DTEND;TZID=America/New_York:20260620T063000
DTSTAMP:20260408T204114Z
CREATED:20260408T204035Z
LAST-MODIFIED:20260408T204114Z
UID:66746-1781937000-1781937000@www.pwsausa.org
SUMMARY:Counting Blessings in Miles Fundraiser
DESCRIPTION:What: Counting Blessings in Miles – Amy Maust Runs the Charlevoix 1/2 Marathon\nWhen:  June 20\, 2026\nWhere: Charlevoix\, Michigan \nClick Here to Donate to “Counting Blessings in Miles” \nA message from Amy Maust: \n“I’m running for Prader-Willi Syndrome Association USA to ensure that all PWS families have the support\, advocacy\, research\, and resources needed to help individuals with PWS thrive. Working at PWSA | USA\, helps me appreciate my health\, as I see others who are affected (directly or indirectly by PWS). The work we do at PWSA is a blessing for families affected by PWS. I decided to run the Charlevoix Half marathon in order to ‘count my blessings in miles’ as a way to bring awareness and raise money for PWS. Each mile I train\, I will post my “grateful list” and donate. I hope others will join me in helping the lives of those with PWS.” \n 
URL:https://www.pwsausa.org/event/counting-blessings-in-miles-fundraiser/
CATEGORIES:Michigan
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260601
DTEND;VALUE=DATE:20260701
DTSTAMP:20260511T135715Z
CREATED:20260511T135715Z
LAST-MODIFIED:20260511T135715Z
UID:67174-1780272000-1782863999@www.pwsausa.org
SUMMARY:Move for PWS
DESCRIPTION:This June\, Cisco employees are lacing up their sneakers\, hopping on their bikes\, and diving into the water to raise vital funds and awareness for Prader-Willi Syndrome Association | USA (PWSA | USA). From challenging bike marathons and invigorating lake swims to community 5Ks\, scenic hikes\, and adventurous kayaking trips\, our teams are pushing their limits throughout the month to honor loved ones impacted by Prader Willi Syndrome.  \nPrader-Willi Syndrome is a complex genetic disorder that affects many aspects of a person’s life\, and PWSA | USA plays a crucial role in providing support\, resources\, and advocacy for individuals with PWS and their families. Your donation\, no matter the size\, will directly contribute to their essential work\, funding research\, educational programs\, and community initiatives. Please join us in this inspiring effort and help make a significant difference in the lives of those affected by PWS. Thank you for your generous support! We are especially proud that four Cisco families are directly impacted by PWS\, and they are incredibly grateful for the continuous support from our compassionate community. \nCLICK HERE TO LEARN MORE & SUPPORT MOVE FOR PWS
URL:https://www.pwsausa.org/event/move-for-pws/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T120000
DTEND;TZID=America/New_York:20260531T140000
DTSTAMP:20260423T194028Z
CREATED:20260423T194028Z
LAST-MODIFIED:20260423T194028Z
UID:67045-1780228800-1780236000@www.pwsausa.org
SUMMARY:United We Brunch: Hummus & Watermelon
DESCRIPTION:When: Sunday\, May 31\, 2026 | 12:00 – 2:00 PM CT\nWhere: Countryside Community Church (13130 Faith Plaza\, Omaha\, NE) \nCLICK HERE TO LEARN MORE & RESERVE YOUR SPOT \nJoin Sarah Kasaby and her lovely family for a Special Fundraiser & Awareness Event for Prader-Willi Syndrome (PWS). \nYou are invited to attend “Hummus & Watermelon” in support of PWS Awareness Month this May! The event is taking place on Saturday\, May 31st at the Countryside Community Church in Omaha\, NE. Hummus & Watermelon brings guests together to experience connection\, community\, and purpose. Guests enjoy different dips\, special “Janna Juice” \, creating a warm\, engaging atmosphere that encourages generosity while raising both awareness and critical funds for the Prader-Willi Syndrome Association. In its first year\, this warm\, family-friendly event raised $1\,200\, demonstrating the power of a thoughtfully curated\, community-centered event. With the support of sponsors and partners\, our goal is to continue growing this impact each year. This event isn’t just about fundraising—it’s about education\, connection\, and support. We’re coming together to raise awareness for Prader-Willi Syndrome and to celebrate the ways PWSA | USA lifts up and supports families.
URL:https://www.pwsausa.org/event/united-we-brunch-hummus-watermelon/
LOCATION:Countryside Community Church\, 13130 Faith Plaza\, Omaha\, NE\, 68144\, United States
CATEGORIES:Nebraska
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T130000
DTEND;TZID=America/New_York:20260530T160000
DTSTAMP:20260511T142636Z
CREATED:20260511T141931Z
LAST-MODIFIED:20260511T142636Z
UID:67177-1780146000-1780156800@www.pwsausa.org
SUMMARY:Soleno Therapeutics PWS Community Day in New Jersey
DESCRIPTION:PWS families in New Jersey and surrounding states! You’re invited to Soleno Therapeutics next PWS Community Day in Jersey City\, NJ. \nWhen: Saturday\, May 30\, 2026\nWhen: 1:00 – 4:00 PM ET\nWhere: Liberty Science Center (222 Jersey City Boulevard\, Jersey City\, NJ 07305)\nFree to attend! \nA day of connection\, care\, and fun for families in the community \nSoleno Therapeutics is committed to supporting the community and advocating for the treatment of hyperphagia associated with PWS. In collaboration with Prader-Willi Syndrome Association USA and Foundation for Prader-Willi Research\, we invite you to PWS Community Day—a welcoming space for families like yours to connect\, recharge\, learn\, play\, and create together. VYKAT XR is a prescription medicine used to treat extreme hunger\, constant thoughts about food\, and constant urge to eat that cannot be satisfied with food (hyperphagia) in adults and children 4 years of age and older with Prader-Willi syndrome (PWS). \nCLICK HERE TO RSVP \nCLICK HERE TO DOWNLOAD THE FLYER
URL:https://www.pwsausa.org/event/soleno-therapeutics-pws-community-day-in-new-jersey/
LOCATION:Liberty Science Center\, 222 Jersey City Boulevard\, Jersey City\, NJ\, 07305\, United States
CATEGORIES:New Jersey
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/05/Screenshot-2026-05-11-101347.webp
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T200000
DTEND;TZID=America/New_York:20260528T200000
DTSTAMP:20260512T133055Z
CREATED:20260511T143231Z
LAST-MODIFIED:20260512T133055Z
UID:67185-1779998400-1779998400@www.pwsausa.org
SUMMARY:Webinar Opportunity: Advocating as a Person of Color in the Rare Disease Space
DESCRIPTION:Hosted by the Colors of Hope PWS BIPOC Affinity Group \nWhen: Thursday\, May 28\, 2026\nTime: 8:00 PM ET / 5:00 PM PT\nWhere: Online \nFamilies of color face unique hurdles\, as well as some familiar obstacles\, while advocating for their PWS loved ones. Come hear from two veteran advocates about effective ways to advocate for your loved ones in medical and school settings. Our speakers are Lakeia Nard\, Founder and CEO of Melanin Children Matter and Tierra Emerson\, a Licensed Master Social Worker with over 12 years of experience in working in the mental health field and a parent coach. RSVP to bipocpws@gmail.com to attend this webinar on Thursday\, May 28. Learn more about the Colors of Hope group at www.pwscolorsofhope.org.
URL:https://www.pwsausa.org/event/webinar-opportunity-advocating-as-a-person-of-color-in-the-rare-disease-space/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T113000
DTEND;TZID=America/New_York:20260516T113000
DTSTAMP:20260408T201727Z
CREATED:20260408T201727Z
LAST-MODIFIED:20260408T201727Z
UID:66742-1778931000-1778931000@www.pwsausa.org
SUMMARY:United We Brunch: Magnolias and Mimosas
DESCRIPTION:What: Magnolias and Mimosas\, A Spring Brunch Fundraiser Hosted by Kat Lucero\nWhen: Saturday\, May 16\, 2026 | 11:30 AM\nWhere: The Shoppe (119 Costilla St.\, Colorado Springs\, CO 80903) \nClick Here to Learn More\, Purchase Tickets\, and Donate! \nEach May\, in recognition of Prader-Willi Syndrome (PWS) Awareness Month\, Magnolias & Mimosas brings together an intimate group of 50 guests in Colorado Springs for an elevated brunch experience rooted in connection\, beauty\, and purpose. Guests enjoy mimosas\, meaningful mission moments\, and an elegant silent auction—creating a warm\, engaging atmosphere that encourages generosity while raising both awareness and critical funds for the Prader-Willi Syndrome Association. \nIn its first year\, Magnolias & Mimosas raised nearly $3\,000\, demonstrating the power of a thoughtfully curated\, community-centered event. With the support of sponsors and partners\, our goal is to continue growing this impact each year. Magnolias & Mimosas offers sponsors a unique opportunity to align with a meaningful cause during PWS Awareness Month while supporting an experience that is personal\, inspiring\, and designed to make a lasting difference year after year.
URL:https://www.pwsausa.org/event/united-we-brunch-magnolias-and-mimosas/
LOCATION:The Shoppe\, 119 Costilla St.\, Colorado Springs\, CO\, 80903\, United States
CATEGORIES:Colorado
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/04/DC-Fly-In-2026-social-media.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260504
DTEND;VALUE=DATE:20260507
DTSTAMP:20260303T142745Z
CREATED:20251106T202005Z
LAST-MODIFIED:20260303T142745Z
UID:62948-1777852800-1778111999@www.pwsausa.org
SUMMARY:2026 D.C. Fly-In
DESCRIPTION:Every two years\, the PWSA | USA D.C. Fly-In brings families and supporters in the Prader-Willi syndrome (PWS) community together to ensure their voices are heard where it matters most – on Capitol Hill. This three-day event was created out of a growing necessity to advocate for the needs of our loved ones living with PWS and raise awareness among our nation’s changemakers. \nBetween May 4-6\, 2026\, our 3rd Biennial D.C. Fly-In will unite advocates\, families\, and rare-disease leaders to meet directly with Members of Congress and federal agencies. Following the success of our 2024 event\, with 139 advocates from 31 states and 131 Congressional meetings\, the 2026 Fly-In will expand in both scale and impact. \nApplications are now available! Find the downloadable application and additional details at: https://www.pwsausa.org/events/dc-fly-in-2026/
URL:https://www.pwsausa.org/event/2026-d-c-fly-in/
LOCATION:Yours Truly DC Hotel\, 1143 New Hampshire Ave NW\, Washington\, DC\, DC\, 20037\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/11/DC-Fly-In-2026-Blog.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260601
DTSTAMP:20260408T200758Z
CREATED:20260408T200758Z
LAST-MODIFIED:20260408T200758Z
UID:66740-1777593600-1780271999@www.pwsausa.org
SUMMARY:United In Action - PWS Awareness Month Initiative
DESCRIPTION:Take Action – make an impact from wherever you are. The comfort of home or the steps of the Capitol.  Your action makes a difference.\nAt PWSA | USA\, we believe that raising awareness for Prader-Willi syndrome begins right where we are — with the friends\, family\, neighbors\, and colleagues who make up our everyday lives. \nAs families living with PWS\, we understand the power of community. Building a village of support can feel effortless for some and overwhelming for others — but one thing is certain: none of us should have to navigate this journey alone. \nThis May\, for PWS Awareness Month\, we’re proud to launch United in Action — a nationwide initiative bringing people together to connect\, share\, and strengthen the support our community deserves. One state. One family. One moment at a time. \nUnited in Action is about more than awareness. It’s about fostering hope\, building real connections\, and creating a ripple effect of support that spreads across the country. Together\, we can make sure no family feels invisible and no story goes unheard. \nOur vision is bold: every May\, in every corner of the U.S.\, new groups gathering\, new voices rising\, and a wave of momentum growing stronger with each passing year. \nIt starts here. It starts now. It starts with you.  \nCLICK HERE TO LEARN MORE
URL:https://www.pwsausa.org/event/united-in-action-pws-awareness-month-initiative/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/04/UNITED-WE-BRUNCH-1.webp
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T090000
DTEND;TZID=America/New_York:20260429T090000
DTSTAMP:20260423T193556Z
CREATED:20260423T193556Z
LAST-MODIFIED:20260423T193556Z
UID:67042-1777453200-1777453200@www.pwsausa.org
SUMMARY:PWSA | USA Community Conversation: Taking Action for PWS Awareness Month
DESCRIPTION:When: Wednesday\, April 29 @ 9am PT | 12pm ET\nWhere: Zoom \nREGISTER TO ATTEND HERE \nJoin us for a brief\, action‑focused webinar to kick off PWS Awareness Month this May! In 30 minutes or less\, we’ll walk through simple\, meaningful ways you can help raise awareness within our PWS community\, whether you have five minutes or five hours\, and whether you’re taking action from the waiting room of your next therapy appointment\, your kitchen table\, or the halls of the Capitol. We’ll highlight PWSA | USA’s Awareness Month resources and show how everyone can take part in raising awareness this May. Appropriate for PWS parents\, grandparents\, siblings\, and any PWS ally looking to make a difference this May. \nHave questions about ways to take action for PWS awareness month? Share them in advance by emailing africke@pwsausa​.org. \nVisit PWSA | USA’s PWS Awareness Hub by clicking here.
URL:https://www.pwsausa.org/event/pwsa-usa-community-conversation-taking-action-for-pws-awareness-month/
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/04/Image20260423090154.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260425T180000
DTEND;TZID=America/New_York:20260425T210000
DTSTAMP:20260312T140221Z
CREATED:20260305T140019Z
LAST-MODIFIED:20260312T140221Z
UID:65897-1777140000-1777150800@www.pwsausa.org
SUMMARY:Solidarity & Spice: A Rare Wine Pairing Dinner
DESCRIPTION:Join us for a six-course wine pairing dinner hosted by Anish Bhatnagar & Dini Rao\, to launch the “No More Lasts” PWSA | USA Equity Project. \nWhen: Saturday\, April 25\, 2026 | 6 – 9 PM\nWhere: Rasika West End | Washington\, DC\nLEARN MORE AND PURCHASE TICKETS HERE \nWe’ll take you on an exquisite journey through India’s rich culinary styles from chaat style street bites to tawa tender fish\, tandoor kebabs and a range of dal\, bhartas\, masalas\, homemade breads and festive accompaniments at the renowned DC locale\, Rasika\, where presidents celebrate birthdays and ambassadors dine. Washington Post food critic Tom Sietsema wrote\, “Nobody glorifies the cooking of India like Rasika\,” and “While the restaurant scene has gained from more Indian competitors of late\, no chef has surpassed Vikram Sunderam’s finesse or flavors\,” as he put Rasika on his hall of fame list.  It is no wonder Chef Sunderam was awarded the 2013 James Beard award for best chef in the Mid-Atlantic region. \nThe meal will be enhanced as Wine Curator Dini Rao guides you through this six-course tasting menu with wines chosen from Anish Bhatnagar’s collection to create the pairings of a lifetime. In Dini’s nearly 30 years of hosting wine events including a dinner at Julia Child’s house and a wine tasting for British royalty\, never before has a dinner spoken more to her epicurean heart. \nA vegetarian or dairy free option is available or contact dinivrao@gmail.com to discuss other food restrictions. \nMore About the “No More Lasts” PWSA | USA Equity Project \nPrader-Willi syndrome (PWS)\, it is a rare genetic condition that has no cure. It is also one where early diagnosis\, coordinated care\, and lifelong supports dramatically shape health and quality-of-life outcomes. Yet these benefits are not always realized. Children and adults from marginalized communities experience delayed diagnosis\, reduced access to specialized PWS care\, underrepresentation in research and registries\, and poorer downstream outcomes. \nAt PWSA USA we are creating an Equity Initiative to make sure that research developments are useful to our whole population and that more people can access the tools currently available. We want to make sure there are no more lasts – no more last diagnosed\, no more last treated. This “No More Lasts” initiative aims to close the gap in racial\, ethnic\, religious and other disparities for those affected by Prader-Willi Syndrome by accelerating diagnoses\, access to evidence-based care\, and inclusion in research—so no community is left last. \nCome join us by becoming a founding supporter of this important initiative.
URL:https://www.pwsausa.org/event/solidarity-and-spice/
LOCATION:Rasika West End\, 1190 New Hampshire Avenue Northwest\, Washington\, DC\, DC\, 20037\, United States
CATEGORIES:District of Colombia
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/02/Copy-of-Rasika-Wine-Dinner-Invitation-1280-x-720-px.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260425T130000
DTEND;TZID=America/New_York:20260425T160000
DTSTAMP:20260330T185224Z
CREATED:20260330T185135Z
LAST-MODIFIED:20260330T185224Z
UID:66402-1777122000-1777132800@www.pwsausa.org
SUMMARY:PWS Community Day in Miami\, FL
DESCRIPTION:PWS Community Day in Miami\, FL\nWhen: April 25\, 2026 | 1:00 – 4:00 PM\nWhere: Miami Children’s Museum (980 MacArthur Cswy\, Miami\, FL 33132) \nCLICK HERE TO REGISTER (Free to attend) \nJoin for a day of connection\, care\, and fun for families in the community. Soleno Therapeutics is committed to supporting the community and advocating for the treatment of hyperphagia associated with PWS. In collaboration with Prader-Willi Syndrome Association | USA and The Foundation for Prader-Willi Research\, we invite you to PWS Community Day—a welcoming space for families like yours to connect\, recharge\, learn\, play\, and create together. \nWhile event activities won’t begin until 1:00 PM\, attendees are welcome to enjoy the museum from 10:00 am–12:45 pm. You will need to check in with event organizers first to receive your wristbands. Food will NOT be provided during the event\, but please feel free to pack a snack or lunch from home. A separate\, secure space will be provided should your child need to eat. \nCheck out the image below for the full event schedule.
URL:https://www.pwsausa.org/event/pws-community-day-in-miami-fl/
LOCATION:Miami Children’s Museum\, 980 MacArthur Cswy\, Miami\, FL\, 33132\, United States
CATEGORIES:Florida
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/03/Soleno-PWS-Community-Day-Miami-2026.webp
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260423T193000
DTEND;TZID=America/New_York:20260423T210000
DTSTAMP:20260403T192255Z
CREATED:20260403T192255Z
LAST-MODIFIED:20260403T192255Z
UID:66600-1776972600-1776978000@www.pwsausa.org
SUMMARY:Webinar Opportunity: Celebrating One Year With VYKAT XR\, Hosted by Soleno Therapeutics
DESCRIPTION:In honor of VYKAT XR’s one-year anniversary\, PWS community members are invited to register for Soleno’s upcoming webinar. Join to learn about the signs and symptoms of hyperphagia in Prader-Willi syndrome and find out if VYKAT XR may be right for you or your loved one. VYKAT XR is approved for people ages 4 and older with hyperphagia in PWS. The webinar will take place Thursday\, April 23\, 2026\, from 7:30–9:00 pm ET (4:30–6:00 pm PT). \nCLICK HERE TO RESERVE YOUR SPOT \nCLICK HERE TO DOWNLOAD THE FLYER
URL:https://www.pwsausa.org/event/webinar-opportunity-celebrating-one-year-with-vykat-xr-hosted-by-soleno-therapeutics/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/04/Screenshot-2026-04-03-151914.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260417
DTEND;VALUE=DATE:20260419
DTSTAMP:20260220T153935Z
CREATED:20260220T153935Z
LAST-MODIFIED:20260220T153935Z
UID:65726-1776384000-1776556799@www.pwsausa.org
SUMMARY:2026 PWANY Conference
DESCRIPTION:The Prader-Willi Alliance of New York is excited to host its 2026 Conference in Syracuse\, NY on April 17 & 18\, 2026. Attendees will hear from nationally recognized presenters in sessions targeting a variety of relevant topics\, including advocacy\, education\, behavior\, housing\, and medical concerns. There will also be numerous opportunities for the entire family to make connections throughout the weekend\, such as a social time Friday evening and activity rooms for both individuals with PWS and their school-age siblings. Visit the event website at  https://sites.google.com/view/pwany2026conference to learn more and register!
URL:https://www.pwsausa.org/event/2026-pwany-conference/
LOCATION:DoubleTree by Hilton Hotel Syracuse\, 6301 NY-298\, East Syracuse\, NY\, 13057\, United States
CATEGORIES:New York
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/02/PWANY-Conference-2026.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260321T170000
DTEND;TZID=America/New_York:20260321T213000
DTSTAMP:20260115T145951Z
CREATED:20260105T155643Z
LAST-MODIFIED:20260115T145951Z
UID:64326-1774112400-1774128600@www.pwsausa.org
SUMMARY:2026 Clint Hurdle Hot Stove Dinner
DESCRIPTION:Registration is NOW OPEN for the 12th Annual Clint Hurdle Hot Stove Dinner! Join hosts Clint and Karla Hurdle on Saturday\, March 21\, 2026\, on the beautiful grounds of Bradenton Country Club in Bradenton\, Florida – or participate virtually from anywhere – and help make a meaningful difference for those affected by Prader-Willi syndrome. \nThis special evening brings together the PWS community\, friends\, and supporters to raise critical funds for PWSA | USA through inspiring stories\, a silent auction featuring exclusive items and experiences\, a gourmet dinner\, live entertainment\, a raffle\, and the ever-popular Coconut Drop (Golf Ball Drop). \nYour attendance and support fuels PWSA | USA’s vital Family Support services and programs. Together\, we can create a brighter future for individuals and families affected by PWS. \nREGISTER HERE \nDONATE HERE
URL:https://www.pwsausa.org/event/2026-clint-hurdle-hot-stove-dinner/
LOCATION:Bradenton Country Club\, 4646 9th Ave W\, Bradenton\, Florida\, 34209
CATEGORIES:Florida
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/01/Hot-Stove-Dinner-2026-Thank-You-png.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260303T200000
DTEND;TZID=America/New_York:20260303T210000
DTSTAMP:20260303T142409Z
CREATED:20260211T205700Z
LAST-MODIFIED:20260303T142409Z
UID:65463-1772568000-1772571600@www.pwsausa.org
SUMMARY:HERO Clinical Trial Community Conversation
DESCRIPTION:When: Tuesday\, March 3\, 2026 @ 5 PM PT | 8 PM ETWhere: Online via ZOOM \nClick Here to Register \n\nThe PWS community is invited to join a virtual community conversation regarding the HERO clinical trial and recent announcement from Aardvark Therapeutics about the voluntary pause. PWSA | USA and The Foundation for Prader-Willi Research are co-hosting this webinar on Tuesday\, March 3 (tomorrow) at 8:00 PM ET / 5:00 PM PT. We will be joined by Aardvark Therapeutics CEO Tien Lee and Chief Medical Officer Manasi Jaiman\, who will speak about the announcement and answer questions from the community.\n\n\nPlease note: This webinar will not be recorded.
URL:https://www.pwsausa.org/event/hero-clinical-trial-community-conversation/
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/02/Aardvark-Webinar-Web-graphic-5.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260228T130000
DTEND;TZID=America/New_York:20260228T160000
DTSTAMP:20260218T202637Z
CREATED:20260218T202637Z
LAST-MODIFIED:20260218T202637Z
UID:65659-1772283600-1772294400@www.pwsausa.org
SUMMARY:PWS Community Day in North Carolina
DESCRIPTION:Families in the PWS community are invited to attend a PWS Community Day on Rare Disease Day (Saturday\, February 28th) in Durham\, NC! This event\, hosted by Soleno Therapeutics in collaboration with PWSA | USA and FPWR\, will take place at The Museum of Life and Science (433 W. Murray Avenue\, Durham\, NC 27704) from 1:00 – 4:00 PM EST. Attendees will enjoy a day of connection\, care\, and fun. Food will NOT be provided during this event\, but please feel free to pack a snack or lunch from home. A separate\, secure space to dine will be available. \nREGISTER TO ATTEND THE PWS COMMUNITY DAY \nWhat to Expect\n1:00–1:15 pm Welcome & Open Remarks (Mercury Room) \n1:15–1:30 pm Caregiver Networking: A supportive space to connect with other caregivers\, talk\, learn from each other\, and engage with the PWS community in your area.\nFun Zone*: Solar System Adventures! Engaging supervised activities for individuals with PWS and their siblings. \n1:30–2:15 pm Caregiver Session: Self-care activity and discussion. A session focused on the importance of self-care\, which will provide conversation and tools to help you pause\, recharge\, and apply simple self-care tips in your daily life.\nFun Zone*: Solar System Adventures continues! Engaging supervised activities for individuals with PWS and their siblings. \n2:15–2:45 pm Break: Opportunity for families to check in. \n2:45–3:30 pm Caregiver Session: Hear from a doctor and caregiver and learn more about a treatment option.\nFun Zone*: Solar System Adventures continues! Engaging supervised activities for individuals with PWS and their siblings. \n3:30–4:00 pm Closing: Gather for final remarks and goodbyes (Mercury Room) \n* The Fun Zone will be a dedicated space with arts\, crafts\, and activities for those living with PWS and their siblings. It will include movement\, games\, and laughter with peers. 2:1 supervision will be provided by Corporate Kids Events’ qualified and trained staff.
URL:https://www.pwsausa.org/event/pws-community-day-in-north-carolina/
LOCATION:The Museum of Life and Science\, 433 W. Murray Avenue\, Durham\, NC\, 27704\, United States
CATEGORIES:North Carolina
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260203T165301Z
CREATED:20260203T164946Z
LAST-MODIFIED:20260203T165301Z
UID:65216-1772236800-1772323199@www.pwsausa.org
SUMMARY:Rare Disease Day 2026
DESCRIPTION:Rare Disease Day is a global movement to raise awareness and advocate for the more than 300 million people worldwide living with a rare disease. Held annually on the last day of February\, this day unites individuals\, families\, organizations\, and communities to shine a light on the challenges of rare diseases and the urgent need for research\, support\, and policy change. \nCheck out PWSA | USA’s Rare Disease Day webpage (below) to find ways you can raise awareness in your community\, graphics to share on social media and caption ideas\, Rare Disease Day FAQs\, and so much more!
URL:https://www.pwsausa.org/event/rare-disease-day-2026/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260129T193000
DTEND;TZID=America/New_York:20260129T210000
DTSTAMP:20260115T150607Z
CREATED:20260115T150607Z
LAST-MODIFIED:20260115T150607Z
UID:64731-1769715000-1769720400@www.pwsausa.org
SUMMARY:VYKAT XR Webinar from Soleno Therapeutics
DESCRIPTION:When: Thursday\, January 29\n@ 7:30 – 9pm ET | 4:30 – 6pm PT \nREGISTER HERE \nIn 2026\, Soleno Therapeutics\, the makers of VYKAT XR will be hosting a series of caregiver webinars. Each webinar will have a mini-theme related to important moments in the PWS community. On January 29\, the webinar will review the signs and symptoms of hyperphagia in Prader-Willi syndrome\, what VYKAT XR may offer as a treatment option for patients 4 years and older\, and how to get started. Speakers include Jorge Mejia-Corletto\, MD (Pediatric Endocrinologist\, NYU Langone Health)\, Paola Mora\, MS\, RD\, CDCES (PACE\, Soleno Therapeutics)\, Brennen Fields (Sr. Director\, Patient Access Solutions\, Soleno Therapeutics)\, Brian (Father and caregiver to Paxton)\, and Elisa Herrera (National Director\, Patient and Community Educators (PACE) Director\, Residential Stakeholders\, Soleno Therapeutics)\, as moderator.
URL:https://www.pwsausa.org/event/vykat-xr-webinar-from-soleno-therapeutics/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260129T120000
DTEND;TZID=America/New_York:20260129T130000
DTSTAMP:20260115T151020Z
CREATED:20260115T151020Z
LAST-MODIFIED:20260115T151020Z
UID:64734-1769688000-1769691600@www.pwsausa.org
SUMMARY:Shedding Light on Sleep Disorders: TREND Webinar
DESCRIPTION:When: Thursday\, January 29\, 2026\n@ 12 – 1pm ET\nREGISTER HERE\n\n\nSleep challenges are a real — and often misunderstood — part of life with Prader-Willi syndrome.\n\n\nJoin TREND Community for “Shedding Light on Sleep Disorders in Prader-Willi Syndrome\,” a webinar centered on caregiver experiences and clinical insight\, with a focus on listening\, learning\, and understanding the real-world impact of sleep issues in PWS.\n\n\n\n\n\nThis is not a traditional lecture. It’s an honest conversation about what families see\, feel\, and wish they had known sooner — paired with guidance from clinicians who help translate lived experience into care.
URL:https://www.pwsausa.org/event/shedding-light-on-sleep-disorders-trend-webinar/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260127T200000
DTEND;TZID=America/New_York:20260127T210000
DTSTAMP:20260115T150317Z
CREATED:20260115T150256Z
LAST-MODIFIED:20260115T150317Z
UID:64728-1769544000-1769547600@www.pwsausa.org
SUMMARY:Colors of Hope Listening Session
DESCRIPTION:When: Tuesday\, January 27 \n@ 8pm ET | 5pm PT\nWhere: ZOOM\nREGISTER HERE\n\nWant to know how we can improve outcomes for more people in our PWS Community? Come join the Colors of Hope group as they present findings from a series of Listening Sessions and surveys with the families of color affected by Prader-Willi syndrome. The goal of this presentation is to create a shared understanding of the challenges and opportunities ahead. 
URL:https://www.pwsausa.org/event/colors-of-hope-listening-session/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251207T120000
DTEND;TZID=America/New_York:20251207T160000
DTSTAMP:20250806T194409Z
CREATED:20250806T191825Z
LAST-MODIFIED:20250806T194409Z
UID:60680-1765108800-1765123200@www.pwsausa.org
SUMMARY:Claus for a Cause
DESCRIPTION:VISIT EVENT PAGE \nJoin us for Claus for a Cause on Sunday\, December 7th from 12-4 PM at the Bridgeville VFD Station 117 in Bridgeville\, PA.This community event brings us together to support children living with Prader-Willi Syndrome. This family-friendly celebration includes pictures with Santa\, a healthy meal and kid-friendly seasonal activities. \nWe are a dedicated team of families from the greater Pittsburgh area working together to bring this magical event to life. Holidays can be especially challenging for families like ours\, as the season poses unique challenges for children with PWS due to their dietary restrictions. That’s why this event focuses on what truly matters—creating joyful memories\, fostering connection and celebrating the season through togetherness and inclusion. We’re grateful for the support of our community near and far and hope you’ll join us in making a meaningful impact. \nEvery dollar raised will go directly to the Prader-Willi Syndrome Association (PWSA | USA) to fund advocacy\, family support\, and vital research to find a treatment for PWS. \nPWS is a rare genetic condition that occurs in 1:15\,000-30\,000 live births and begins with low muscle tone\, feeding difficulties\, and delayed development. By childhood\, it evolves into a relentless hunger that dominates daily life in addition to behavioral and academic challenges. For those living with PWS\, their syndrome is just one part of who they are\,  but it significantly impacts the individual and their family’s world\, now and forever. With your support\, we can give those living with PWS a chance at independence and freedom from hunger. \nFor a list of Frequently Asked Questions Click Here \nFor questions\, please contact us at pghpws@gmail.com. \nConnect with us on Facebook to stay up-to-date about event details: HERE
URL:https://www.pwsausa.org/event/claus-for-a-cause/
LOCATION:Bridgeville VFD Station 117\, 370 Commercial St.\, Bridgeville\, Pennsylvania\, 15017
CATEGORIES:Pennsylvania
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251121T190000
DTEND;TZID=America/New_York:20251121T210000
DTSTAMP:20250915T171723Z
CREATED:20250915T171149Z
LAST-MODIFIED:20250915T171723Z
UID:61679-1763751600-1763758800@www.pwsausa.org
SUMMARY:A Bow for Áine Mirella: Performance for PWS
DESCRIPTION:VISIT EVENT PAGE\nThe name of this event is inspired by Áine’s frequent wearing of a myriad of adorable bows but is also about taking a bow\, as this is a concert fundraiser. \nIrene Moretto (“Mamma” of Áine) and Kaitlyn Waterson will perform musical selections for piano and voice centered around the wondrous and awe-filled experiences of infancy\, childhood\, and motherhood.  Selections will include Robert Schumann’s Scenes from Childhood as well as vocal selections by Francis Poulenc\, Eric Whitacre\, Amy Beach and more! All ages are welcome! \nThis program was inspired by Irene’s daughter\, Áine Mirella\, born on August 22\, 2024\, who has Prader-Willi Syndrome.  It is our hope to raise awareness for PWS and support funding towards research for PWS\, but to also let people know about Áine as a child of joy. \nA Prader -Willi Syndrome-friendly reception will follow the concert as a chance to reflect on the music heard\, meet each other\, and celebrate Áine Mirella and all of our PWS community.
URL:https://www.pwsausa.org/event/a-bow-for-aine-mirella-performance-for-pws/
LOCATION:Main Line Unitarian Church\, 816 South Valley Forge Road\, Devon\, PA\, 19333\, United States
CATEGORIES:Pennsylvania
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251101
DTEND;VALUE=DATE:20260101
DTSTAMP:20251202T144109Z
CREATED:20251030T193355Z
LAST-MODIFIED:20251202T144109Z
UID:62748-1761955200-1767225599@www.pwsausa.org
SUMMARY:PWSA | USA's 2025 Angel Drive Campaign
DESCRIPTION:Give the Gift of Hope this Holiday Season!\nCLICK HERE TO MAKE AN IMPACT \nVisit the Angel Drive Hub \n\n\n\n\nThe 2025 Angel Drive is PWSA | USA’s largest annual fundraising campaign\, dedicated to bringing hope and essential support to families and individuals impacted by Prader-Willi syndrome (PWS). This year\, your gift is especially meaningful as we celebrate PWSA | USA’s 50th Anniversary. \nNow more than ever\, your support fuels our forward motion. We’re moving from hoping for a treatment to preparing for many therapies – targeting the full spectrum of challenges in PWS: behavior\, metabolism\, cognition\, independence\, and more. We’re expanding early diagnosis so that every child\, regardless of race\, location\, or resources gets support from day one. And we’re closing the gap between what exists and what’s possible. Your gift makes this real. \nThe next 50 years begin now\, with us. 
URL:https://www.pwsausa.org/event/pwsa-usas-2025-angel-drive-campaign/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251022T170000
DTEND;TZID=America/New_York:20251022T170000
DTSTAMP:20250829T170715Z
CREATED:20250515T201140Z
LAST-MODIFIED:20250829T170715Z
UID:58948-1761152400-1761152400@www.pwsausa.org
SUMMARY:Prader-Silly: A Night of Rare Laughs
DESCRIPTION:CLICK HERE TO LEARN MORE AND PURCHASE TICKETS! \nWhen: Wednesday\, October 22\, 2025\nDoors open at 5:00 PM | Show starts at 7:30 PM\nWhere: Zanies Comedy Club Nashville (2025 8th Ave S\, Nashville\, TN 37204) \nHey Nashville! it’s time to laugh in rare form. On Wednesday\, October 22\, 2025\, the iconic Zanies Comedy Club will host Prader Silly: A Night of Rare Laughs—a one-night-only comedy fundraiser benefiting the Prader-Willi Syndrome Association | USA\, hosted by PWS parents Aaron Weber and Lucy Sinsheimer of Nashville.  \nJoin comedian Aaron Weber and a (**TOP SECRET**) celebrity lineup of nationally acclaimed comics for an evening of laughs for a cause! This is more than a comedy show. It’s a night of gathering\, giving\, and gut-busting laughter — featuring a powerhouse lineup of top-tier comedians\, a silent auction packed with unforgettable prizes\, and several surprise guest performers we’re keeping tucked in our back pocket (Shhh…). Whether you come for the laughs\, the love\, or the chance to stand up for a rare cause\, this is your invitation to show up—for PWS families and others on a rare disease journey. \nClick HERE to watch a TV interview featuring Aaron and Lucy on WSMV Channel 4 show “Nashville Today\,” which aired on PWS Awareness Day (May 15th\, 2025). \nProgram includes: \n5:00 PM – Doors Open \n5:00 – 7:15 PM \n– View and Bid on Silent Auction items \n– Cocktail Hour / Food Available \n7:15 PM – Be Seated \n7:30-9 PM – Comedy \n9:00 PM – Silent Auction Items Pick-Up \nWe hope to see you there!
URL:https://www.pwsausa.org/event/prader-silly-a-night-of-rare-laughs/
LOCATION:Zanies Comedy Night Club Nashville\, 2025 8th Ave S\, Nashville\, TN\, 37204\, United States
CATEGORIES:Tennessee
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251018T183000
DTEND;TZID=America/New_York:20251018T233000
DTSTAMP:20250619T171057Z
CREATED:20250619T170619Z
LAST-MODIFIED:20250619T171057Z
UID:59594-1760812200-1760830200@www.pwsausa.org
SUMMARY:Answers for Audrey 2025
DESCRIPTION:We’re thrilled to invite you to an evening of fun\, community\, and purpose at the 5th Annual Answers for Audrey Trivia Night. \nCan you believe it’s already Year 5? \n \nOur daughter\, Audrey Rose\, was diagnosed with Prader-Willi Syndrome (PWS) on December 19\, 2020. \nPWS is a rare genetic disorder caused by a missing segment on chromosome 15\, affecting approximately 1 in 25\,000 births. It brings with it a wide range of challenges\, including poor growth\, low muscle tone\, intellectual disabilities\, and an insatiable hunger that can lead to life-threatening obesity. \nTogether with this incredible community\, we remain committed to advancing research and supporting treatment efforts. \nFor those who have followed Audrey’s journey\, you may have seen the exciting news — a new drug has recently been approved by the FDA! This is a major breakthrough and a reason to celebrate. Let’s make this year’s trivia night a joyful tribute to how events like ours have contributed to meaningful progress. \nWe are truly grateful for your continued support of Audrey and our cause. \nCLICK HERE TO PURCHASE TICKETS\n \nFor questions or to get involved\, please contact Michelle or Michael:  AnswersForAudrey@gmail.com or 636-634-5601
URL:https://www.pwsausa.org/event/answers-for-audrey-2025/
LOCATION:Incarnate Word Academy\, 2788 Normandy Ave.\, St. Louis\, MO\, 63121\, United States
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251018T183000
DTEND;TZID=America/New_York:20251018T183000
DTSTAMP:20250505T133407Z
CREATED:20250505T133407Z
LAST-MODIFIED:20250505T133407Z
UID:58594-1760812200-1760812200@www.pwsausa.org
SUMMARY:Cocktails for a Cause
DESCRIPTION:CLICK HERE TO PURCHASE TICKETS AND LEARN MORE \nJoin us for an unforgettable evening of support\, hope\, and community.  Hosted at the scenic and historic Brown’s Brewing Company Malt Room\, this event will bring together families\, friends\, and supporters for an inspiring evening of cocktails\, conversation\, and compassion\, all aimed at raising awareness and funds for Prader-Willi syndrome (PWS). \nGuests will enjoy signature cocktails\, delicious hors d’oeuvres\, and the unique ambiance of the Malt Room\, known for its charm and exceptional service. The night will feature engaging speakers\, including families impacted by PWS\, as well as opportunities to learn more about the syndrome and how funds raised will directly benefit those affected by it. The event will also offer a raffle\, silent auction\, and other interactive ways to contribute to this important cause. \nPWS is a rare\, complex genetic disorder that affects multiple systems in the body\, often leading to challenges with hunger regulation\, cognitive development\, and behavior. Funds raised at this event will support research\, family resources\, and advocacy initiatives aimed at improving the lives of those with PWS.
URL:https://www.pwsausa.org/event/cocktails-for-a-cause/
LOCATION:The Malt Room at Brown’s Brewery\, 417 River Street\, Troy\, NY\, United States
CATEGORIES:New York
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251011T153000
DTEND;TZID=America/New_York:20251011T153000
DTSTAMP:20250505T133907Z
CREATED:20250505T133907Z
LAST-MODIFIED:20250505T133907Z
UID:58598-1760196600-1760196600@www.pwsausa.org
SUMMARY:2nd Annual Dance Silly for Prader-Willi
DESCRIPTION:CLICK HERE TO PURCHASE TICKETS AND LEARN MORE \nJoin us for the 2nd annual Dance Silly for Prader-Willi event—a lively celebration to support the Prader-Willi Syndrome Association USA! This special occasion honors our daughter Jayda’s journey with PWS and the invaluable support we’ve received from this incredible organization. \nGet ready for a FUN\, FAMILY\, DANCE PARTY like no other! Set against the backdrop of Halloween—a season that poses unique challenges for children with PWS due to their dietary restrictions—this event aims to spotlight inclusivity and emphasize that holidays are about more than just treats. It’s all about creating joyous\, memorable experiences and cherishing time together. \nEvent Highlights: \n\nDance to the beats with our energetic DJ\nRock your favorite costume for a festive twist\nEnjoy exciting games and a creative craft station\nSport fun and colorful face painting\nParticipate in kids and adult raffles for fabulous prizes\nSavor delicious family dinner\n\nWhether you’re looking to sponsor\, donate a raffle basket\, or volunteer\, we would love your support. Reach out to us at mhampton0933@gmail.com to get involved. \nLet’s make this a night to remember as we Dance Silly for Prader-Willi!
URL:https://www.pwsausa.org/event/2nd-annual-dance-silly-for-prader-willi/
LOCATION:Trumbull Career & Technical Center\, 528 Educational Hwy NW\, Warren\, OH\, 44483\, United States
CATEGORIES:Ohio
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250926T180000
DTEND;TZID=America/New_York:20250926T220000
DTSTAMP:20250818T194516Z
CREATED:20250102T162435Z
LAST-MODIFIED:20250818T194516Z
UID:55659-1758909600-1758924000@www.pwsausa.org
SUMMARY:PWSA | USA's 50th Anniversary Celebration: Journey of Hope Gala
DESCRIPTION:50th Anniversary Celebration: Journey of Hope Gala \nCLICK HERE TO PURCHASE TICKETS\nJoin PWSA | USA as we celebrate 50 years of support\, research\, and community at our Journey of Hope Gala. \nDate: Friday\, September 26\, 2025\, from 6 PM – 10 PM\nLocation: Ritz Carlton\, St. Louis\, MO \nTogether\, we will reflect on the milestones we’ve achieved and the lives we’ve touched\, all while raising crucial funds to continue our journey of hope for the next 50 years. This event will feature inspiring stories\, special tributes\, live entertainment\, and a silent auction\, all in support of PWSA | USA’s mission: Enhancing the quality of life and empowering those affected by Prader-Willi syndrome.
URL:https://www.pwsausa.org/event/pwsa-usas-50th-anniversary-celebration-journey-of-hope-gala/
LOCATION:The Ritz-Carlton\, St. Louis\, 100 Carondelet Plaza\, St. Louis\, MO\, 63105\, United States
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250913T130000
DTEND;TZID=America/New_York:20250913T130000
DTSTAMP:20250417T204416Z
CREATED:20250417T204416Z
LAST-MODIFIED:20250417T204416Z
UID:58183-1757768400-1757768400@www.pwsausa.org
SUMMARY:16th Annual Hunter Lens Golf Tournament
DESCRIPTION:LEARN MORE AND REGISTER TO ATTEND HERE \nWhen: Saturday\, September 13\, 2025 | 1:00 PM ET\nWhere: Heritage Hills Golf Club\, 17 Heritage Hill Drive\, Lakeville\, MA \nJoin the Lens family for a day of golf\, good spirits\, and great friends as you golf and dine at Heritage Hills Golf Club in Lakeville\, MA. This event is celebrating its 16th year raising critical funding for PWSA | USA\, an organization that serves individuals living with PWS\, their families\, caregivers\, and more through family support\, advocacy\, and research. \nHunter Lens is 27 years old and has Prader-Willi syndrome. He leads a happy\, active life despite his daily challenges. He has friends\, a loving family and his weight is under control. Supporting PWSA | USA\, a non-profit\, will open more doors for Hunter and others who live with PWS\, which ultimately means a better life. Hunter deserves a better life. Please join us on this special day in honor of Hunter to benefit PWSA | USA’s mission.
URL:https://www.pwsausa.org/event/16th-annual-hunter-lens-golf-tournament/
LOCATION:Heritage Hills Golf Club\, 17 Heritage Hill Drive\, Lakeville\, MA\, 02347\, United States
CATEGORIES:Massachusetts
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T123000
DTEND;TZID=America/New_York:20250906T170000
DTSTAMP:20250602T163708Z
CREATED:20250602T163708Z
LAST-MODIFIED:20250602T163708Z
UID:59296-1757161800-1757178000@www.pwsausa.org
SUMMARY:4th Annual No Gimmes For Jimmy Charity Golf Outing
DESCRIPTION:To Register as a GOLFER or a TEAM click here \nJoin us for a day on the links on Saturday\, September 6\, 2025 at Heron Glen Golf Course in Ringoes\, NJ in remembrance of Jim Worthington. A portion of the proceeds will be donated to PWSA\, in Jim’s name. This event is inclusive for golfers and non-golfers alike – all skill levels are welcome. \nWhile he survived being directly under Tower 1 on 9/11\, Jim Worthington eventually lost his battle with leukemia on October 16\, 2021. He loved to play golf when he could get out — which was not often. He loved his family even more\, including his son with Prader-Willi Syndrome. \nPrader-Willi Syndrome (PWS) is rare and most people\, including many physicians\, caregivers\, as well as new parents and family members\, are not familiar with this syndrome. The symptoms are many and include a continuous urge to eat\, a need for fewer calories to maintain weight\, and cognitive development issues. Those impacted by PWS know there is far more to the syndrome than eating and weight gain and are often under incredible stress. For more information regarding PWS\, please visit: https://pwsausa.org/what-is-prader-willi-syndrome/. \nA “gimme” in golf is usually a short putt that is excused by one’s opponent for playing because it is considered too easy to miss. Jim was as generous on the golf course as he was in life\, and his wish was that any “gimmes” go to helping those individuals and families with PWS. \nWe started the No Gimmes for Jimmy Annual Charity Golf Outing to raise money and awareness for PWS\, while having some fun and remembering a great family man. \nJim didn’t get a “gimme” on October 16th\, but what he’d want just as much is for you to give to this remarkable charity. So\, we’re asking you to contribute a “gimme” in Jim’s honor to PWSA and join us for a day of fun on the course in his honor. \nEvent Schedule\n– 12:30 PM Sign-in & Warm Up! Sign-in at the event table and hit the putting green/driving range before the opening ceremony\n– 1:30 PM Shotgun Start. All teams will tee-off at their respective starting holes at 1:30 PM\n– 6/6:30 PM Awards dinner & Raffle Join us for a celebratory dinner as we announce various prizes and host our raffle!
URL:https://www.pwsausa.org/event/4th-annual-no-gimmes-for-jimmy-charity-golf-outing/
LOCATION:Heron Glen Golf Course\, 110 State Highway 202 & 31\, Ringoes\, NJ\, 08551\, United States
CATEGORIES:New Jersey
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END:VEVENT
END:VCALENDAR