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X-WR-CALNAME:Prader-Willi Syndrome Association | USA
X-ORIGINAL-URL:https://www.pwsausa.org
X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;VALUE=DATE:20260821
DTEND;VALUE=DATE:20260823
DTSTAMP:20260203T162216Z
CREATED:20251106T202301Z
LAST-MODIFIED:20260203T162216Z
UID:62952-1787270400-1787443199@www.pwsausa.org
SUMMARY:2026 Residential Providers Conference
DESCRIPTION:Registration is NOW OPEN! Residential Providers are invited to join PWSA | USA for the 2026 Residential Providers Conference – an unforgettable gathering dedicated to enhancing care\, sharing insights\, and strengthening community among residential providers in the PWS space.\n\n\n \n\n\n August 21–22\, 2026\n\n\n The Kimpton Brice Hotel | Savannah\, GA\n\n\n \n\n\nFor the second time\, we’re bringing together residential professionals from across the country to learn from colleagues and field experts\, exchange best practices\, and build collective expertise to improve outcomes for individuals living with Prader-Willi syndrome.\n\n\n \n\n\nThis conference is exclusively for residential providers and offers a unique opportunity to connect\, collaborate\, and grow alongside peers who understand the vital work you do every day.\n\n\n \n\n\nYou can register\, find the link to our room block\, and learn more at https://www.pwsausa.org/residentialprovidersconference/.
URL:https://www.pwsausa.org/event/2026-residential-providers-conference/
LOCATION:Kimpton Brice Hotel\, 601 E Bay St\, Savannah\, GA\, 31401\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/11/Residential-Providers-Conference-FBLinkedIn-2-png.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T193000
DTEND;TZID=America/New_York:20260820T210000
DTSTAMP:20260803T160942Z
CREATED:20260803T160800Z
LAST-MODIFIED:20260803T160942Z
UID:68357-1787254200-1787259600@www.pwsausa.org
SUMMARY:Starting the School Year Strong: A Back-To-School Webinar for Those Living With or Supporting Someone With Hyperphagia in Prader-Willi Syndrome
DESCRIPTION:Hosted by Soleno Therapeutics\, a Neurocrine Biosciences Company \nDate: Thursday\, August 20\, 2026\nTime: 7:30 – 9:00 PM ET\nWhere: Online (virtual) \nCLICK HERE TO RESERVE YOUR SPOT!\nFree to attend \n \nCLICK HERE TO DOWNLOAD THE FLYER \n 
URL:https://www.pwsausa.org/event/starting-the-school-year-strong-a-back-to-school-webinar-for-those-living-with-or-supporting-someone-with-hyperphagia-in-prader-willi-syndrome/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/08/Claus-for-a-Cause-2026-1.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260814
DTEND;VALUE=DATE:20260818
DTSTAMP:20260615T140447Z
CREATED:20260615T140447Z
LAST-MODIFIED:20260615T140447Z
UID:67490-1786665600-1787011199@www.pwsausa.org
SUMMARY:PWS Moms' Hiking Weekends
DESCRIPTION:Created and hosted by Amy McDougall\, mom to Noelle (23\, living with PWS)\, President of the Prader-Willi Alliance of New York \nCLICK HERE TO LEARN MORE \nFrom the PWS Moms’ Hiking Weekends Website: \nThe original PWS Moms’ Hiking Weekend started with two PWS moms who became hiking buddies\, then recognized what a respite their adventures in nature had become. The idea for a retreat was born\, with the initial event in June 2024 turning into an incredible weekend of laughter\, friendship\, blisters\, love\, organizational planning\, and reminders of the fact that the best way to truly live this special needs life is to walk side by side with others. \nRespite in nature and community building are the foundation of the PWS Moms’ Hiking Weekends.  \nWant to register for a weekend or get additional information? \nEmail Amy at pwshikingmom@gmail.com to join the mailing list or request to join the “PWS Moms’ Hiking Weekend” group on Facebook \nRemaining 2026 Hiking Locations and Dates: \nCoram / West Glacier\, Montana\nAugust 14-17\, 2026 (Friday to Monday) \nGatlinburg\, TN\nOctober 9-12\, 2026 (Friday to Monday)
URL:https://www.pwsausa.org/event/pws-moms-hiking-weekends/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/06/Blog-Headers-7.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260812
DTEND;VALUE=DATE:20260813
DTSTAMP:20260622T135800Z
CREATED:20260622T135800Z
LAST-MODIFIED:20260622T135800Z
UID:67663-1786492800-1786579199@www.pwsausa.org
SUMMARY:PWS Picnic - Hosted by PWSA of Oregon & Washington Chapter
DESCRIPTION:PWS Families in the Pacific Northwest! You’re invited to attend PWSA of Oregon & Washington Chapter’s PWS Picnic on August 12\, 2026. \nWhere: 18206 NE 399 street\, Amboy WA 98601 (the same location as previous years)  \n12-14 free rooms are provided for those coming from out of town at Red-Lion Inn & Suites-Salmon Creek: 13206 NE Hwy 99\, Vancouver\, WA 98686. \nFor questions\, please contact Vonnie Sheadel at pwsaorwa@gmail.com.
URL:https://www.pwsausa.org/event/pws-picnic-hosted-by-pwsa-of-oregon-washington-chapter/
LOCATION:LA
CATEGORIES:Oregon,Washington
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/06/Blog-Headers-8.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260808T100000
DTEND;TZID=America/New_York:20260808T160000
DTSTAMP:20260715T154345Z
CREATED:20260715T154345Z
LAST-MODIFIED:20260715T154345Z
UID:68007-1786183200-1786204800@www.pwsausa.org
SUMMARY:PWS Community Day in San Francisco Bay Area
DESCRIPTION:When: Saturday\, August 8\, 2026\nWhere: San Jose\, California (Children’s Discovery Museum of San Jose)\nFree to attend!\n\nCLICK HERE TO REGISTER\nDownload the Flyer Here (find the agenda on page 2)\n\nSoleno Therapeutics\, a Neurocrine Biosciences Company\, is pleased to invite the PWS community to a PWS Community Day in the San Francisco Bay Area\, specifically in San Jose\, CA\, for a day filled with connection\, fun\, and education. The planned sessions will take place on Saturday\, August 8\, 2026\, from 1-4 PM PST and families are invited to visit the museum from 10 AM-12:45 PM PST to get acclimated and enjoy the exhibits.\n\nThere will be an opportunity to connect with other PWS caregivers and to participate in a session on self-care focusing on breath work\, emphasizing how you find even a few minutes each day to care for yourself. Diane Stafford\, MD\, will provide an educational session on VYKAT™ XR\, the first and only FDA approved treatment for individuals 4 years of age and older\, living with hyperphagia in PWS. Attendees will also get to hear directly from a caregiver about their journey.\n\nDuring the event\, individuals with PWS as well as their siblings will take part in activities supervised by Corporate Kid Events (CKE). CKE is a nationwide child care service that specializes in working with children with specialized needs\, including PWS.\n\nWe hope to see you there!
URL:https://www.pwsausa.org/event/pws-community-day-in-san-francisco-bay-area/
LOCATION:Children’s Discovery Museum of San Jose\, 180 Woz Way\, San Jose\, CA\, 95110\, United States
CATEGORIES:California
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/07/2027-Convention-Graphic-21.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260725T100000
DTEND;TZID=America/New_York:20260725T160000
DTSTAMP:20260715T154549Z
CREATED:20260715T153611Z
LAST-MODIFIED:20260715T154549Z
UID:68003-1784973600-1784995200@www.pwsausa.org
SUMMARY:PWS Community Day in Los Angeles\, CA
DESCRIPTION:When: Saturday\, July 25\, 2026\nWhere: Los Angeles\, CA (California Science Center)\nFree to attend!\n\nCLICK HERE TO REGISTER\nDownload the Flyer Here (find the agenda on page 2)\n\nSoleno Therapeutics\, a Neurocrine Biosciences Company\, is pleased to invite the PWS community to a PWS Community Day in Los Angeles\, California\, for a day filled with connection\, fun\, and education. The planned sessions will take place on Saturday\, July 25\, 2026\, from 1-4 PM PST and families are invited to visit the museum from 10 AM-12:45 PM PST to get acclimated and enjoy the exhibits.\n\nThere will be an opportunity to connect with other PWS caregivers and to participate in a session on self-care focusing on breath work\, emphasizing how you find even a few minutes each day to care for yourself. Dr. Scott Clements will provide an educational session on VYKAT™ XR\, the first and only FDA approved treatment for individuals 4 years of age and older\, living with hyperphagia in PWS. Attendees will also get to hear directly from a caregiver about their journey.\n\nDuring the event\, individuals with PWS as well as their siblings will take part in activities supervised by Corporate Kid Events (CKE). CKE is a nationwide child care service that specializes in working with children with specialized needs\, including PWS.\n\nWe hope to see you there!
URL:https://www.pwsausa.org/event/pws-community-day-in-los-angeles-ca/
LOCATION:California Science Center\, 700 Exposition Park Dr.\, Los Angeles\, CA\, 90037\, United States
CATEGORIES:California
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/07/2027-Convention-Graphic-20.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260724
DTEND;VALUE=DATE:20260727
DTSTAMP:20260622T142356Z
CREATED:20260511T211443Z
LAST-MODIFIED:20260622T142356Z
UID:67204-1784851200-1785110399@www.pwsausa.org
SUMMARY:2026 DADventure
DESCRIPTION:A Retreat for Dads of Children Living with Prader-Willi Syndrome \nWhen: Friday\, July 24 – Sunday\, July 26\, 2026\nWhere: Sandia Resort and Casino | Albuquerque\, New Mexico \nCLICK HERE TO LEARN MORE & REGISTER TO ATTEND \nDADventure is a father-led\, independently organized retreat created by Jonathan Andrews and Matt Rivard. This event is a grassroots initiative built specifically to create space for dads of children with Prader-Willi Syndrome to connect. \n“The idea for DADventure began when Matt Rivard and I found ourselves sitting at a bar\, drinking a beer and talking about the unique experience of being dads of children with Prader-Willi Syndrome. We recognized the need for a dedicated space where fathers could come together\, build meaningful connections\, and find strength in shared experience. This retreat was created to foster that community — one grounded in authenticity\, camaraderie\, and mutual support.”  – Jonathan Andrews\, dad to Christopher (living with PWS)
URL:https://www.pwsausa.org/event/2026-dadventure/
LOCATION:Sandia Resort and Casino\, 30 Rainbow Rd\, Albuquerque\, NM\, 87113\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/05/2026-DC-Fly-In-Graphic-2.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260715T180000
DTEND;TZID=America/New_York:20260715T180000
DTSTAMP:20260708T210623Z
CREATED:20260514T152147Z
LAST-MODIFIED:20260708T210623Z
UID:67237-1784138400-1784138400@www.pwsausa.org
SUMMARY:Dancing Through the Decades
DESCRIPTION:Join host Katie Martinez\, mom to Samuel (9\, living with PWS) for a fun\, high-energy night of music\, dancing\, and great memories as we move through different decades of music — spending time with friends\, family\, and community\, letting loose\, and being part of something meaningful. \nWhen: Wednesday\, July 15\, 2026 | Doors open at 6:00 PM\nWhere: Red Stick Social (1503 Government St\, Baton Rouge\, LA 70802) \nAll proceeds support the PWSA | USA\, which provides vital resources\, support\, advocacy\, and research for individuals and families affected by Prader-Willi Syndrome (PWS) — a rare genetic disorder that affects appetite\, growth\, metabolism\, and development. Individuals with PWS experience a constant feeling of hunger due to the body’s inability to regulate appetite\, along with a range of medical and behavioral challenges that require lifelong care and support. \nThis event is held in celebration of my son Samuel\, who lives with PWS and — like so many others in the PWS community — brings incredible joy\, strength\, and light into the world. He is made of sunshine! Every step we take together helps move us closer to better understanding\, stronger support\, and a brighter future for Samuel and the entire PWS community. \nWhile Dancing Through the Decades is an adults-only event\, we warmly welcome PWS families with younger children. We know how rare it can be for these families to enjoy a night out together\, and this event is for them — every family deserves a chance to celebrate and feel supported. \nCome dance through the decades with us — not only to celebrate the past\, but to help create that brighter future. \nCLICK HERE TO REGISTER AND TO LEARN MORE \nCLICK HERE TO BID ON SILENT AUCTION ITEMS
URL:https://www.pwsausa.org/event/dancing-through-the-decades/
LOCATION:Red Stick Social\, 1503 Government St\, Baton Rouge\, LA\, 70802\, United States
CATEGORIES:Louisiana
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/05/dance-silly-sponsors-1.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260620T063000
DTEND;TZID=America/New_York:20260620T063000
DTSTAMP:20260408T204114Z
CREATED:20260408T204035Z
LAST-MODIFIED:20260408T204114Z
UID:66746-1781937000-1781937000@www.pwsausa.org
SUMMARY:Counting Blessings in Miles Fundraiser
DESCRIPTION:What: Counting Blessings in Miles – Amy Maust Runs the Charlevoix 1/2 Marathon\nWhen:  June 20\, 2026\nWhere: Charlevoix\, Michigan \nClick Here to Donate to “Counting Blessings in Miles” \nA message from Amy Maust: \n“I’m running for Prader-Willi Syndrome Association USA to ensure that all PWS families have the support\, advocacy\, research\, and resources needed to help individuals with PWS thrive. Working at PWSA | USA\, helps me appreciate my health\, as I see others who are affected (directly or indirectly by PWS). The work we do at PWSA is a blessing for families affected by PWS. I decided to run the Charlevoix Half marathon in order to ‘count my blessings in miles’ as a way to bring awareness and raise money for PWS. Each mile I train\, I will post my “grateful list” and donate. I hope others will join me in helping the lives of those with PWS.” \n 
URL:https://www.pwsausa.org/event/counting-blessings-in-miles-fundraiser/
LOCATION:LA
CATEGORIES:Michigan
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/04/DC-Fly-In-2026-social-media-1.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260601
DTEND;VALUE=DATE:20260701
DTSTAMP:20260511T135715Z
CREATED:20260511T135715Z
LAST-MODIFIED:20260511T135715Z
UID:67174-1780272000-1782863999@www.pwsausa.org
SUMMARY:Move for PWS
DESCRIPTION:This June\, Cisco employees are lacing up their sneakers\, hopping on their bikes\, and diving into the water to raise vital funds and awareness for Prader-Willi Syndrome Association | USA (PWSA | USA). From challenging bike marathons and invigorating lake swims to community 5Ks\, scenic hikes\, and adventurous kayaking trips\, our teams are pushing their limits throughout the month to honor loved ones impacted by Prader Willi Syndrome.  \nPrader-Willi Syndrome is a complex genetic disorder that affects many aspects of a person’s life\, and PWSA | USA plays a crucial role in providing support\, resources\, and advocacy for individuals with PWS and their families. Your donation\, no matter the size\, will directly contribute to their essential work\, funding research\, educational programs\, and community initiatives. Please join us in this inspiring effort and help make a significant difference in the lives of those affected by PWS. Thank you for your generous support! We are especially proud that four Cisco families are directly impacted by PWS\, and they are incredibly grateful for the continuous support from our compassionate community. \nCLICK HERE TO LEARN MORE & SUPPORT MOVE FOR PWS
URL:https://www.pwsausa.org/event/move-for-pws/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/05/UNITED-WE-BRUNCH-5.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260531T120000
DTEND;TZID=America/New_York:20260531T140000
DTSTAMP:20260423T194028Z
CREATED:20260423T194028Z
LAST-MODIFIED:20260423T194028Z
UID:67045-1780228800-1780236000@www.pwsausa.org
SUMMARY:United We Brunch: Hummus & Watermelon
DESCRIPTION:When: Sunday\, May 31\, 2026 | 12:00 – 2:00 PM CT\nWhere: Countryside Community Church (13130 Faith Plaza\, Omaha\, NE) \nCLICK HERE TO LEARN MORE & RESERVE YOUR SPOT \nJoin Sarah Kasaby and her lovely family for a Special Fundraiser & Awareness Event for Prader-Willi Syndrome (PWS). \nYou are invited to attend “Hummus & Watermelon” in support of PWS Awareness Month this May! The event is taking place on Saturday\, May 31st at the Countryside Community Church in Omaha\, NE. Hummus & Watermelon brings guests together to experience connection\, community\, and purpose. Guests enjoy different dips\, special “Janna Juice” \, creating a warm\, engaging atmosphere that encourages generosity while raising both awareness and critical funds for the Prader-Willi Syndrome Association. In its first year\, this warm\, family-friendly event raised $1\,200\, demonstrating the power of a thoughtfully curated\, community-centered event. With the support of sponsors and partners\, our goal is to continue growing this impact each year. This event isn’t just about fundraising—it’s about education\, connection\, and support. We’re coming together to raise awareness for Prader-Willi Syndrome and to celebrate the ways PWSA | USA lifts up and supports families.
URL:https://www.pwsausa.org/event/united-we-brunch-hummus-watermelon/
LOCATION:Countryside Community Church\, 13130 Faith Plaza\, Omaha\, NE\, 68144\, United States
CATEGORIES:Nebraska
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/04/Hummus-and-Watermelon.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260530T130000
DTEND;TZID=America/New_York:20260530T160000
DTSTAMP:20260511T142636Z
CREATED:20260511T141931Z
LAST-MODIFIED:20260511T142636Z
UID:67177-1780146000-1780156800@www.pwsausa.org
SUMMARY:Soleno Therapeutics PWS Community Day in New Jersey
DESCRIPTION:PWS families in New Jersey and surrounding states! You’re invited to Soleno Therapeutics next PWS Community Day in Jersey City\, NJ. \nWhen: Saturday\, May 30\, 2026\nWhen: 1:00 – 4:00 PM ET\nWhere: Liberty Science Center (222 Jersey City Boulevard\, Jersey City\, NJ 07305)\nFree to attend! \nA day of connection\, care\, and fun for families in the community \nSoleno Therapeutics is committed to supporting the community and advocating for the treatment of hyperphagia associated with PWS. In collaboration with Prader-Willi Syndrome Association USA and Foundation for Prader-Willi Research\, we invite you to PWS Community Day—a welcoming space for families like yours to connect\, recharge\, learn\, play\, and create together. VYKAT XR is a prescription medicine used to treat extreme hunger\, constant thoughts about food\, and constant urge to eat that cannot be satisfied with food (hyperphagia) in adults and children 4 years of age and older with Prader-Willi syndrome (PWS). \nCLICK HERE TO RSVP \nCLICK HERE TO DOWNLOAD THE FLYER
URL:https://www.pwsausa.org/event/soleno-therapeutics-pws-community-day-in-new-jersey/
LOCATION:Liberty Science Center\, 222 Jersey City Boulevard\, Jersey City\, NJ\, 07305\, United States
CATEGORIES:New Jersey
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/05/Screenshot-2026-05-11-101347.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T200000
DTEND;TZID=America/New_York:20260528T200000
DTSTAMP:20260512T133055Z
CREATED:20260511T143231Z
LAST-MODIFIED:20260512T133055Z
UID:67185-1779998400-1779998400@www.pwsausa.org
SUMMARY:Webinar Opportunity: Advocating as a Person of Color in the Rare Disease Space
DESCRIPTION:Hosted by the Colors of Hope PWS BIPOC Affinity Group \nWhen: Thursday\, May 28\, 2026\nTime: 8:00 PM ET / 5:00 PM PT\nWhere: Online \nFamilies of color face unique hurdles\, as well as some familiar obstacles\, while advocating for their PWS loved ones. Come hear from two veteran advocates about effective ways to advocate for your loved ones in medical and school settings. Our speakers are Lakeia Nard\, Founder and CEO of Melanin Children Matter and Tierra Emerson\, a Licensed Master Social Worker with over 12 years of experience in working in the mental health field and a parent coach. RSVP to bipocpws@gmail.com to attend this webinar on Thursday\, May 28. Learn more about the Colors of Hope group at www.pwscolorsofhope.org.
URL:https://www.pwsausa.org/event/webinar-opportunity-advocating-as-a-person-of-color-in-the-rare-disease-space/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/05/Advocating-as-a-POC_ColorsofHope_Thurs.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T113000
DTEND;TZID=America/New_York:20260516T113000
DTSTAMP:20260408T201727Z
CREATED:20260408T201727Z
LAST-MODIFIED:20260408T201727Z
UID:66742-1778931000-1778931000@www.pwsausa.org
SUMMARY:United We Brunch: Magnolias and Mimosas
DESCRIPTION:What: Magnolias and Mimosas\, A Spring Brunch Fundraiser Hosted by Kat Lucero\nWhen: Saturday\, May 16\, 2026 | 11:30 AM\nWhere: The Shoppe (119 Costilla St.\, Colorado Springs\, CO 80903) \nClick Here to Learn More\, Purchase Tickets\, and Donate! \nEach May\, in recognition of Prader-Willi Syndrome (PWS) Awareness Month\, Magnolias & Mimosas brings together an intimate group of 50 guests in Colorado Springs for an elevated brunch experience rooted in connection\, beauty\, and purpose. Guests enjoy mimosas\, meaningful mission moments\, and an elegant silent auction—creating a warm\, engaging atmosphere that encourages generosity while raising both awareness and critical funds for the Prader-Willi Syndrome Association. \nIn its first year\, Magnolias & Mimosas raised nearly $3\,000\, demonstrating the power of a thoughtfully curated\, community-centered event. With the support of sponsors and partners\, our goal is to continue growing this impact each year. Magnolias & Mimosas offers sponsors a unique opportunity to align with a meaningful cause during PWS Awareness Month while supporting an experience that is personal\, inspiring\, and designed to make a lasting difference year after year.
URL:https://www.pwsausa.org/event/united-we-brunch-magnolias-and-mimosas/
LOCATION:The Shoppe\, 119 Costilla St.\, Colorado Springs\, CO\, 80903\, United States
CATEGORIES:Colorado
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/04/DC-Fly-In-2026-social-media.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260504
DTEND;VALUE=DATE:20260507
DTSTAMP:20260303T142745Z
CREATED:20251106T202005Z
LAST-MODIFIED:20260303T142745Z
UID:62948-1777852800-1778111999@www.pwsausa.org
SUMMARY:2026 D.C. Fly-In
DESCRIPTION:Every two years\, the PWSA | USA D.C. Fly-In brings families and supporters in the Prader-Willi syndrome (PWS) community together to ensure their voices are heard where it matters most – on Capitol Hill. This three-day event was created out of a growing necessity to advocate for the needs of our loved ones living with PWS and raise awareness among our nation’s changemakers. \nBetween May 4-6\, 2026\, our 3rd Biennial D.C. Fly-In will unite advocates\, families\, and rare-disease leaders to meet directly with Members of Congress and federal agencies. Following the success of our 2024 event\, with 139 advocates from 31 states and 131 Congressional meetings\, the 2026 Fly-In will expand in both scale and impact. \nApplications are now available! Find the downloadable application and additional details at: https://www.pwsausa.org/events/dc-fly-in-2026/
URL:https://www.pwsausa.org/event/2026-d-c-fly-in/
LOCATION:Yours Truly DC Hotel\, 1143 New Hampshire Ave NW\, Washington\, DC\, DC\, 20037\, United States
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/11/DC-Fly-In-2026-Blog.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260601
DTSTAMP:20260408T200758Z
CREATED:20260408T200758Z
LAST-MODIFIED:20260408T200758Z
UID:66740-1777593600-1780271999@www.pwsausa.org
SUMMARY:United In Action - PWS Awareness Month Initiative
DESCRIPTION:Take Action – make an impact from wherever you are. The comfort of home or the steps of the Capitol.  Your action makes a difference.\nAt PWSA | USA\, we believe that raising awareness for Prader-Willi syndrome begins right where we are — with the friends\, family\, neighbors\, and colleagues who make up our everyday lives. \nAs families living with PWS\, we understand the power of community. Building a village of support can feel effortless for some and overwhelming for others — but one thing is certain: none of us should have to navigate this journey alone. \nThis May\, for PWS Awareness Month\, we’re proud to launch United in Action — a nationwide initiative bringing people together to connect\, share\, and strengthen the support our community deserves. One state. One family. One moment at a time. \nUnited in Action is about more than awareness. It’s about fostering hope\, building real connections\, and creating a ripple effect of support that spreads across the country. Together\, we can make sure no family feels invisible and no story goes unheard. \nOur vision is bold: every May\, in every corner of the U.S.\, new groups gathering\, new voices rising\, and a wave of momentum growing stronger with each passing year. \nIt starts here. It starts now. It starts with you.  \nCLICK HERE TO LEARN MORE
URL:https://www.pwsausa.org/event/united-in-action-pws-awareness-month-initiative/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/04/UNITED-WE-BRUNCH-1.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T090000
DTEND;TZID=America/New_York:20260429T090000
DTSTAMP:20260423T193556Z
CREATED:20260423T193556Z
LAST-MODIFIED:20260423T193556Z
UID:67042-1777453200-1777453200@www.pwsausa.org
SUMMARY:PWSA | USA Community Conversation: Taking Action for PWS Awareness Month
DESCRIPTION:When: Wednesday\, April 29 @ 9am PT | 12pm ET\nWhere: Zoom \nREGISTER TO ATTEND HERE \nJoin us for a brief\, action‑focused webinar to kick off PWS Awareness Month this May! In 30 minutes or less\, we’ll walk through simple\, meaningful ways you can help raise awareness within our PWS community\, whether you have five minutes or five hours\, and whether you’re taking action from the waiting room of your next therapy appointment\, your kitchen table\, or the halls of the Capitol. We’ll highlight PWSA | USA’s Awareness Month resources and show how everyone can take part in raising awareness this May. Appropriate for PWS parents\, grandparents\, siblings\, and any PWS ally looking to make a difference this May. \nHave questions about ways to take action for PWS awareness month? Share them in advance by emailing africke@pwsausa​.org. \nVisit PWSA | USA’s PWS Awareness Hub by clicking here.
URL:https://www.pwsausa.org/event/pwsa-usa-community-conversation-taking-action-for-pws-awareness-month/
LOCATION:LA
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/04/Image20260423090154.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260425T180000
DTEND;TZID=America/New_York:20260425T210000
DTSTAMP:20260312T140221Z
CREATED:20260305T140019Z
LAST-MODIFIED:20260312T140221Z
UID:65897-1777140000-1777150800@www.pwsausa.org
SUMMARY:Solidarity & Spice: A Rare Wine Pairing Dinner
DESCRIPTION:Join us for a six-course wine pairing dinner hosted by Anish Bhatnagar & Dini Rao\, to launch the “No More Lasts” PWSA | USA Equity Project. \nWhen: Saturday\, April 25\, 2026 | 6 – 9 PM\nWhere: Rasika West End | Washington\, DC\nLEARN MORE AND PURCHASE TICKETS HERE \nWe’ll take you on an exquisite journey through India’s rich culinary styles from chaat style street bites to tawa tender fish\, tandoor kebabs and a range of dal\, bhartas\, masalas\, homemade breads and festive accompaniments at the renowned DC locale\, Rasika\, where presidents celebrate birthdays and ambassadors dine. Washington Post food critic Tom Sietsema wrote\, “Nobody glorifies the cooking of India like Rasika\,” and “While the restaurant scene has gained from more Indian competitors of late\, no chef has surpassed Vikram Sunderam’s finesse or flavors\,” as he put Rasika on his hall of fame list.  It is no wonder Chef Sunderam was awarded the 2013 James Beard award for best chef in the Mid-Atlantic region. \nThe meal will be enhanced as Wine Curator Dini Rao guides you through this six-course tasting menu with wines chosen from Anish Bhatnagar’s collection to create the pairings of a lifetime. In Dini’s nearly 30 years of hosting wine events including a dinner at Julia Child’s house and a wine tasting for British royalty\, never before has a dinner spoken more to her epicurean heart. \nA vegetarian or dairy free option is available or contact dinivrao@gmail.com to discuss other food restrictions. \nMore About the “No More Lasts” PWSA | USA Equity Project \nPrader-Willi syndrome (PWS)\, it is a rare genetic condition that has no cure. It is also one where early diagnosis\, coordinated care\, and lifelong supports dramatically shape health and quality-of-life outcomes. Yet these benefits are not always realized. Children and adults from marginalized communities experience delayed diagnosis\, reduced access to specialized PWS care\, underrepresentation in research and registries\, and poorer downstream outcomes. \nAt PWSA USA we are creating an Equity Initiative to make sure that research developments are useful to our whole population and that more people can access the tools currently available. We want to make sure there are no more lasts – no more last diagnosed\, no more last treated. This “No More Lasts” initiative aims to close the gap in racial\, ethnic\, religious and other disparities for those affected by Prader-Willi Syndrome by accelerating diagnoses\, access to evidence-based care\, and inclusion in research—so no community is left last. \nCome join us by becoming a founding supporter of this important initiative.
URL:https://www.pwsausa.org/event/solidarity-and-spice/
LOCATION:Rasika West End\, 1190 New Hampshire Avenue Northwest\, Washington\, DC\, DC\, 20037\, United States
CATEGORIES:District of Colombia
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/02/Copy-of-Rasika-Wine-Dinner-Invitation-1280-x-720-px.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260425T130000
DTEND;TZID=America/New_York:20260425T160000
DTSTAMP:20260330T185224Z
CREATED:20260330T185135Z
LAST-MODIFIED:20260330T185224Z
UID:66402-1777122000-1777132800@www.pwsausa.org
SUMMARY:PWS Community Day in Miami\, FL
DESCRIPTION:PWS Community Day in Miami\, FL\nWhen: April 25\, 2026 | 1:00 – 4:00 PM\nWhere: Miami Children’s Museum (980 MacArthur Cswy\, Miami\, FL 33132) \nCLICK HERE TO REGISTER (Free to attend) \nJoin for a day of connection\, care\, and fun for families in the community. Soleno Therapeutics is committed to supporting the community and advocating for the treatment of hyperphagia associated with PWS. In collaboration with Prader-Willi Syndrome Association | USA and The Foundation for Prader-Willi Research\, we invite you to PWS Community Day—a welcoming space for families like yours to connect\, recharge\, learn\, play\, and create together. \nWhile event activities won’t begin until 1:00 PM\, attendees are welcome to enjoy the museum from 10:00 am–12:45 pm. You will need to check in with event organizers first to receive your wristbands. Food will NOT be provided during the event\, but please feel free to pack a snack or lunch from home. A separate\, secure space will be provided should your child need to eat. \nCheck out the image below for the full event schedule.
URL:https://www.pwsausa.org/event/pws-community-day-in-miami-fl/
LOCATION:Miami Children’s Museum\, 980 MacArthur Cswy\, Miami\, FL\, 33132\, United States
CATEGORIES:Florida
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/03/Soleno-PWS-Community-Day-Miami-2026.webp
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260423T193000
DTEND;TZID=America/New_York:20260423T210000
DTSTAMP:20260403T192255Z
CREATED:20260403T192255Z
LAST-MODIFIED:20260403T192255Z
UID:66600-1776972600-1776978000@www.pwsausa.org
SUMMARY:Webinar Opportunity: Celebrating One Year With VYKAT XR\, Hosted by Soleno Therapeutics
DESCRIPTION:In honor of VYKAT XR’s one-year anniversary\, PWS community members are invited to register for Soleno’s upcoming webinar. Join to learn about the signs and symptoms of hyperphagia in Prader-Willi syndrome and find out if VYKAT XR may be right for you or your loved one. VYKAT XR is approved for people ages 4 and older with hyperphagia in PWS. The webinar will take place Thursday\, April 23\, 2026\, from 7:30–9:00 pm ET (4:30–6:00 pm PT). \nCLICK HERE TO RESERVE YOUR SPOT \nCLICK HERE TO DOWNLOAD THE FLYER
URL:https://www.pwsausa.org/event/webinar-opportunity-celebrating-one-year-with-vykat-xr-hosted-by-soleno-therapeutics/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/04/Screenshot-2026-04-03-151914.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260417
DTEND;VALUE=DATE:20260419
DTSTAMP:20260220T153935Z
CREATED:20260220T153935Z
LAST-MODIFIED:20260220T153935Z
UID:65726-1776384000-1776556799@www.pwsausa.org
SUMMARY:2026 PWANY Conference
DESCRIPTION:The Prader-Willi Alliance of New York is excited to host its 2026 Conference in Syracuse\, NY on April 17 & 18\, 2026. Attendees will hear from nationally recognized presenters in sessions targeting a variety of relevant topics\, including advocacy\, education\, behavior\, housing\, and medical concerns. There will also be numerous opportunities for the entire family to make connections throughout the weekend\, such as a social time Friday evening and activity rooms for both individuals with PWS and their school-age siblings. Visit the event website at  https://sites.google.com/view/pwany2026conference to learn more and register!
URL:https://www.pwsausa.org/event/2026-pwany-conference/
LOCATION:DoubleTree by Hilton Hotel Syracuse\, 6301 NY-298\, East Syracuse\, NY\, 13057\, United States
CATEGORIES:New York
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/02/PWANY-Conference-2026.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260321T170000
DTEND;TZID=America/New_York:20260321T213000
DTSTAMP:20260115T145951Z
CREATED:20260105T155643Z
LAST-MODIFIED:20260115T145951Z
UID:64326-1774112400-1774128600@www.pwsausa.org
SUMMARY:2026 Clint Hurdle Hot Stove Dinner
DESCRIPTION:Registration is NOW OPEN for the 12th Annual Clint Hurdle Hot Stove Dinner! Join hosts Clint and Karla Hurdle on Saturday\, March 21\, 2026\, on the beautiful grounds of Bradenton Country Club in Bradenton\, Florida – or participate virtually from anywhere – and help make a meaningful difference for those affected by Prader-Willi syndrome. \nThis special evening brings together the PWS community\, friends\, and supporters to raise critical funds for PWSA | USA through inspiring stories\, a silent auction featuring exclusive items and experiences\, a gourmet dinner\, live entertainment\, a raffle\, and the ever-popular Coconut Drop (Golf Ball Drop). \nYour attendance and support fuels PWSA | USA’s vital Family Support services and programs. Together\, we can create a brighter future for individuals and families affected by PWS. \nREGISTER HERE \nDONATE HERE
URL:https://www.pwsausa.org/event/2026-clint-hurdle-hot-stove-dinner/
LOCATION:Bradenton Country Club\, 4646 9th Ave W\, Bradenton\, Florida\, 34209
CATEGORIES:Florida
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/01/Hot-Stove-Dinner-2026-Thank-You-png.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260303T200000
DTEND;TZID=America/New_York:20260303T210000
DTSTAMP:20260303T142409Z
CREATED:20260211T205700Z
LAST-MODIFIED:20260303T142409Z
UID:65463-1772568000-1772571600@www.pwsausa.org
SUMMARY:HERO Clinical Trial Community Conversation
DESCRIPTION:When: Tuesday\, March 3\, 2026 @ 5 PM PT | 8 PM ETWhere: Online via ZOOM \nClick Here to Register \n\nThe PWS community is invited to join a virtual community conversation regarding the HERO clinical trial and recent announcement from Aardvark Therapeutics about the voluntary pause. PWSA | USA and The Foundation for Prader-Willi Research are co-hosting this webinar on Tuesday\, March 3 (tomorrow) at 8:00 PM ET / 5:00 PM PT. We will be joined by Aardvark Therapeutics CEO Tien Lee and Chief Medical Officer Manasi Jaiman\, who will speak about the announcement and answer questions from the community.\n\n\nPlease note: This webinar will not be recorded.
URL:https://www.pwsausa.org/event/hero-clinical-trial-community-conversation/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/02/Aardvark-Webinar-Web-graphic-5.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260228T130000
DTEND;TZID=America/New_York:20260228T160000
DTSTAMP:20260218T202637Z
CREATED:20260218T202637Z
LAST-MODIFIED:20260218T202637Z
UID:65659-1772283600-1772294400@www.pwsausa.org
SUMMARY:PWS Community Day in North Carolina
DESCRIPTION:Families in the PWS community are invited to attend a PWS Community Day on Rare Disease Day (Saturday\, February 28th) in Durham\, NC! This event\, hosted by Soleno Therapeutics in collaboration with PWSA | USA and FPWR\, will take place at The Museum of Life and Science (433 W. Murray Avenue\, Durham\, NC 27704) from 1:00 – 4:00 PM EST. Attendees will enjoy a day of connection\, care\, and fun. Food will NOT be provided during this event\, but please feel free to pack a snack or lunch from home. A separate\, secure space to dine will be available. \nREGISTER TO ATTEND THE PWS COMMUNITY DAY \nWhat to Expect\n1:00–1:15 pm Welcome & Open Remarks (Mercury Room) \n1:15–1:30 pm Caregiver Networking: A supportive space to connect with other caregivers\, talk\, learn from each other\, and engage with the PWS community in your area.\nFun Zone*: Solar System Adventures! Engaging supervised activities for individuals with PWS and their siblings. \n1:30–2:15 pm Caregiver Session: Self-care activity and discussion. A session focused on the importance of self-care\, which will provide conversation and tools to help you pause\, recharge\, and apply simple self-care tips in your daily life.\nFun Zone*: Solar System Adventures continues! Engaging supervised activities for individuals with PWS and their siblings. \n2:15–2:45 pm Break: Opportunity for families to check in. \n2:45–3:30 pm Caregiver Session: Hear from a doctor and caregiver and learn more about a treatment option.\nFun Zone*: Solar System Adventures continues! Engaging supervised activities for individuals with PWS and their siblings. \n3:30–4:00 pm Closing: Gather for final remarks and goodbyes (Mercury Room) \n* The Fun Zone will be a dedicated space with arts\, crafts\, and activities for those living with PWS and their siblings. It will include movement\, games\, and laughter with peers. 2:1 supervision will be provided by Corporate Kids Events’ qualified and trained staff.
URL:https://www.pwsausa.org/event/pws-community-day-in-north-carolina/
LOCATION:The Museum of Life and Science\, 433 W. Murray Avenue\, Durham\, NC\, 27704\, United States
CATEGORIES:North Carolina
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/02/February-Posts-FB-4.webp
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260203T165301Z
CREATED:20260203T164946Z
LAST-MODIFIED:20260203T165301Z
UID:65216-1772236800-1772323199@www.pwsausa.org
SUMMARY:Rare Disease Day 2026
DESCRIPTION:Rare Disease Day is a global movement to raise awareness and advocate for the more than 300 million people worldwide living with a rare disease. Held annually on the last day of February\, this day unites individuals\, families\, organizations\, and communities to shine a light on the challenges of rare diseases and the urgent need for research\, support\, and policy change. \nCheck out PWSA | USA’s Rare Disease Day webpage (below) to find ways you can raise awareness in your community\, graphics to share on social media and caption ideas\, Rare Disease Day FAQs\, and so much more!
URL:https://www.pwsausa.org/event/rare-disease-day-2026/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/02/PWSA-Rare-Disease-Day-Graphics-1-png.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260129T193000
DTEND;TZID=America/New_York:20260129T210000
DTSTAMP:20260115T150607Z
CREATED:20260115T150607Z
LAST-MODIFIED:20260115T150607Z
UID:64731-1769715000-1769720400@www.pwsausa.org
SUMMARY:VYKAT XR Webinar from Soleno Therapeutics
DESCRIPTION:When: Thursday\, January 29\n@ 7:30 – 9pm ET | 4:30 – 6pm PT \nREGISTER HERE \nIn 2026\, Soleno Therapeutics\, the makers of VYKAT XR will be hosting a series of caregiver webinars. Each webinar will have a mini-theme related to important moments in the PWS community. On January 29\, the webinar will review the signs and symptoms of hyperphagia in Prader-Willi syndrome\, what VYKAT XR may offer as a treatment option for patients 4 years and older\, and how to get started. Speakers include Jorge Mejia-Corletto\, MD (Pediatric Endocrinologist\, NYU Langone Health)\, Paola Mora\, MS\, RD\, CDCES (PACE\, Soleno Therapeutics)\, Brennen Fields (Sr. Director\, Patient Access Solutions\, Soleno Therapeutics)\, Brian (Father and caregiver to Paxton)\, and Elisa Herrera (National Director\, Patient and Community Educators (PACE) Director\, Residential Stakeholders\, Soleno Therapeutics)\, as moderator.
URL:https://www.pwsausa.org/event/vykat-xr-webinar-from-soleno-therapeutics/
LOCATION:LA
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/01/January-FB-Posts-png.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260129T120000
DTEND;TZID=America/New_York:20260129T130000
DTSTAMP:20260115T151020Z
CREATED:20260115T151020Z
LAST-MODIFIED:20260115T151020Z
UID:64734-1769688000-1769691600@www.pwsausa.org
SUMMARY:Shedding Light on Sleep Disorders: TREND Webinar
DESCRIPTION:When: Thursday\, January 29\, 2026\n@ 12 – 1pm ET\nREGISTER HERE\n\n\nSleep challenges are a real — and often misunderstood — part of life with Prader-Willi syndrome.\n\n\nJoin TREND Community for “Shedding Light on Sleep Disorders in Prader-Willi Syndrome\,” a webinar centered on caregiver experiences and clinical insight\, with a focus on listening\, learning\, and understanding the real-world impact of sleep issues in PWS.\n\n\n\n\n\nThis is not a traditional lecture. It’s an honest conversation about what families see\, feel\, and wish they had known sooner — paired with guidance from clinicians who help translate lived experience into care.
URL:https://www.pwsausa.org/event/shedding-light-on-sleep-disorders-trend-webinar/
LOCATION:LA
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/01/615711667_1288229969998625_8093198902112356622_n-jpg.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260127T200000
DTEND;TZID=America/New_York:20260127T210000
DTSTAMP:20260115T150317Z
CREATED:20260115T150256Z
LAST-MODIFIED:20260115T150317Z
UID:64728-1769544000-1769547600@www.pwsausa.org
SUMMARY:Colors of Hope Listening Session
DESCRIPTION:When: Tuesday\, January 27 \n@ 8pm ET | 5pm PT\nWhere: ZOOM\nREGISTER HERE\n\nWant to know how we can improve outcomes for more people in our PWS Community? Come join the Colors of Hope group as they present findings from a series of Listening Sessions and surveys with the families of color affected by Prader-Willi syndrome. The goal of this presentation is to create a shared understanding of the challenges and opportunities ahead. 
URL:https://www.pwsausa.org/event/colors-of-hope-listening-session/
LOCATION:LA
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/01/Jan-27-presentation-flyer-jpg.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251207T120000
DTEND;TZID=America/New_York:20251207T160000
DTSTAMP:20250806T194409Z
CREATED:20250806T191825Z
LAST-MODIFIED:20250806T194409Z
UID:60680-1765108800-1765123200@www.pwsausa.org
SUMMARY:Claus for a Cause
DESCRIPTION:VISIT EVENT PAGE \nJoin us for Claus for a Cause on Sunday\, December 7th from 12-4 PM at the Bridgeville VFD Station 117 in Bridgeville\, PA.This community event brings us together to support children living with Prader-Willi Syndrome. This family-friendly celebration includes pictures with Santa\, a healthy meal and kid-friendly seasonal activities. \nWe are a dedicated team of families from the greater Pittsburgh area working together to bring this magical event to life. Holidays can be especially challenging for families like ours\, as the season poses unique challenges for children with PWS due to their dietary restrictions. That’s why this event focuses on what truly matters—creating joyful memories\, fostering connection and celebrating the season through togetherness and inclusion. We’re grateful for the support of our community near and far and hope you’ll join us in making a meaningful impact. \nEvery dollar raised will go directly to the Prader-Willi Syndrome Association (PWSA | USA) to fund advocacy\, family support\, and vital research to find a treatment for PWS. \nPWS is a rare genetic condition that occurs in 1:15\,000-30\,000 live births and begins with low muscle tone\, feeding difficulties\, and delayed development. By childhood\, it evolves into a relentless hunger that dominates daily life in addition to behavioral and academic challenges. For those living with PWS\, their syndrome is just one part of who they are\,  but it significantly impacts the individual and their family’s world\, now and forever. With your support\, we can give those living with PWS a chance at independence and freedom from hunger. \nFor a list of Frequently Asked Questions Click Here \nFor questions\, please contact us at pghpws@gmail.com. \nConnect with us on Facebook to stay up-to-date about event details: HERE
URL:https://www.pwsausa.org/event/claus-for-a-cause/
LOCATION:Bridgeville VFD Station 117\, 370 Commercial St\, Bridgeville\, PA\, 15017\, United States
CATEGORIES:Pennsylvania
ATTACH;FMTTYPE=image/webp:https://www.pwsausa.org/wp-content/uploads/2025/08/Claus-for-a-Cause.webp
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251121T190000
DTEND;TZID=America/New_York:20251121T210000
DTSTAMP:20250915T171723Z
CREATED:20250915T171149Z
LAST-MODIFIED:20250915T171723Z
UID:61679-1763751600-1763758800@www.pwsausa.org
SUMMARY:A Bow for Áine Mirella: Performance for PWS
DESCRIPTION:VISIT EVENT PAGE\nThe name of this event is inspired by Áine’s frequent wearing of a myriad of adorable bows but is also about taking a bow\, as this is a concert fundraiser. \nIrene Moretto (“Mamma” of Áine) and Kaitlyn Waterson will perform musical selections for piano and voice centered around the wondrous and awe-filled experiences of infancy\, childhood\, and motherhood.  Selections will include Robert Schumann’s Scenes from Childhood as well as vocal selections by Francis Poulenc\, Eric Whitacre\, Amy Beach and more! All ages are welcome! \nThis program was inspired by Irene’s daughter\, Áine Mirella\, born on August 22\, 2024\, who has Prader-Willi Syndrome.  It is our hope to raise awareness for PWS and support funding towards research for PWS\, but to also let people know about Áine as a child of joy. \nA Prader -Willi Syndrome-friendly reception will follow the concert as a chance to reflect on the music heard\, meet each other\, and celebrate Áine Mirella and all of our PWS community.
URL:https://www.pwsausa.org/event/a-bow-for-aine-mirella-performance-for-pws/
LOCATION:Main Line Unitarian Church\, 816 South Valley Forge Road\, Devon\, PA\, 19333\, United States
CATEGORIES:Pennsylvania
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/09/A-Bow-For-Aine-Mirella-Event-png.webp
END:VEVENT
END:VCALENDAR