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X-ORIGINAL-URL:https://www.pwsausa.org
X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;TZID=America/New_York:20251207T120000
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DTSTAMP:20260526T164243
CREATED:20250806T191825Z
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UID:60680-1765108800-1765123200@www.pwsausa.org
SUMMARY:Claus for a Cause
DESCRIPTION:VISIT EVENT PAGE \nJoin us for Claus for a Cause on Sunday\, December 7th from 12-4 PM at the Bridgeville VFD Station 117 in Bridgeville\, PA.This community event brings us together to support children living with Prader-Willi Syndrome. This family-friendly celebration includes pictures with Santa\, a healthy meal and kid-friendly seasonal activities. \nWe are a dedicated team of families from the greater Pittsburgh area working together to bring this magical event to life. Holidays can be especially challenging for families like ours\, as the season poses unique challenges for children with PWS due to their dietary restrictions. That’s why this event focuses on what truly matters—creating joyful memories\, fostering connection and celebrating the season through togetherness and inclusion. We’re grateful for the support of our community near and far and hope you’ll join us in making a meaningful impact. \nEvery dollar raised will go directly to the Prader-Willi Syndrome Association (PWSA | USA) to fund advocacy\, family support\, and vital research to find a treatment for PWS. \nPWS is a rare genetic condition that occurs in 1:15\,000-30\,000 live births and begins with low muscle tone\, feeding difficulties\, and delayed development. By childhood\, it evolves into a relentless hunger that dominates daily life in addition to behavioral and academic challenges. For those living with PWS\, their syndrome is just one part of who they are\,  but it significantly impacts the individual and their family’s world\, now and forever. With your support\, we can give those living with PWS a chance at independence and freedom from hunger. \nFor a list of Frequently Asked Questions Click Here \nFor questions\, please contact us at pghpws@gmail.com. \nConnect with us on Facebook to stay up-to-date about event details: HERE
URL:https://www.pwsausa.org/event/claus-for-a-cause/
LOCATION:Bridgeville VFD Station 117\, 370 Commercial St.\, Bridgeville\, Pennsylvania\, 15017
CATEGORIES:Pennsylvania
ATTACH;FMTTYPE=image/webp:https://www.pwsausa.org/wp-content/uploads/2025/08/Claus-for-a-Cause.webp
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DTSTART;TZID=America/New_York:20251121T190000
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DTSTAMP:20260526T164243
CREATED:20250915T171149Z
LAST-MODIFIED:20250915T171723Z
UID:61679-1763751600-1763758800@www.pwsausa.org
SUMMARY:A Bow for Áine Mirella: Performance for PWS
DESCRIPTION:VISIT EVENT PAGE\nThe name of this event is inspired by Áine’s frequent wearing of a myriad of adorable bows but is also about taking a bow\, as this is a concert fundraiser. \nIrene Moretto (“Mamma” of Áine) and Kaitlyn Waterson will perform musical selections for piano and voice centered around the wondrous and awe-filled experiences of infancy\, childhood\, and motherhood.  Selections will include Robert Schumann’s Scenes from Childhood as well as vocal selections by Francis Poulenc\, Eric Whitacre\, Amy Beach and more! All ages are welcome! \nThis program was inspired by Irene’s daughter\, Áine Mirella\, born on August 22\, 2024\, who has Prader-Willi Syndrome.  It is our hope to raise awareness for PWS and support funding towards research for PWS\, but to also let people know about Áine as a child of joy. \nA Prader -Willi Syndrome-friendly reception will follow the concert as a chance to reflect on the music heard\, meet each other\, and celebrate Áine Mirella and all of our PWS community.
URL:https://www.pwsausa.org/event/a-bow-for-aine-mirella-performance-for-pws/
LOCATION:Main Line Unitarian Church\, 816 South Valley Forge Road\, Devon\, PA\, 19333\, United States
CATEGORIES:Pennsylvania
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DTSTART;TZID=America/New_York:20250515T110000
DTEND;TZID=America/New_York:20250515T230000
DTSTAMP:20260526T164243
CREATED:20250505T153933Z
LAST-MODIFIED:20250513T185213Z
UID:58607-1747306800-1747350000@www.pwsausa.org
SUMMARY:Dine for a Cause This PWS Awareness Day – May 15 in Pennsylvania!
DESCRIPTION:Pennsylvania Families and Friends! \nThere’s an Easy and Delicious Way to Support PWSA | USA on May 15 – PWS Awareness Day \nOn Thursday\, May 15\, 2025\, several restaurants across Pennsylvania are generously donating a portion of their sales to PWSA | USA in honor of Prader-Willi Syndrome Awareness Day. Whether you dine in\, take out\, or order online\, your meal can make a meaningful impact. Scroll below to get specific details for each participating restaurant. \n\nApplebee’s Tarentum\, PA location will donate 15% of your check to PWSA | USA! \nLocation: 1050 Village Center Drive\, Tarentum\, PA 15084Time: 11 AM – Close\nPhone Number: (724) 274-5019 \n\nDine-in: Print and show the flyer to your server (download below).\n\nTo-Go orders: Place your order at applebees.com\, and use promo code DOINGOOD at checkout. \nAPPLEBEE’S FLYER \n\nBJ’s Restaurant & Brewhouse is generously hosting a PWS Awareness Day fundraiser at the following Pennsylvania locations from 11 AM – 11 PM: \nAllentown\, PA \n\nAddress: 665 N Krocks Rd\, Allentown\, PA 18106\nPhone Number: (484) 268-2340\n\nLancaster\, PA \n\nLocation: 925 Plaza Blvd\, Lancaster\, PA 17601\nPhone Number: (717) 320-8840\n\nUpper St. Clair\, PA \n\nLocation: 1819 Washington Rd\, Upper St. Clair\, PA 15241\nPhone Number: (412) 347-4790\n\nWhether you dine in\, order takeout\, or use curbside pickup\, BJ’s will donate 20% of food and soft beverage sales to PWSA | USA – as long as you show their special fundraiser flyer with the barcode at your chosen location \nFind the flyers below (download the one for the location closest to you). There\, you’ll also find details about online orders. \nBJ’S ALLENTOWN FLYER \nBJ’S LANCASTER FLYER \nBJ’S UPPER ST. CLAIR FLYER \n\nRed Robin Greensburg\, PA location is donating 20% of food sales to PWSA | USA! \nLocation: 1000 Greengate Centre Cir.\, Greensburg\, PA 15601\nTime: 11 AM – Close\nPhone Number: (724) 834-4444 \nDine-in: Mention the fundraiser or show the flyer (download below). \nOnline orders: \n\nGo to redrobin.com/order and select the Greensburg location\nAdd the item from the “Fundraisers (To-Go Only)” category to your cart\n\nAdd your meal items and check out as usual. \nRED ROBIN FLYER \n\nJoin Ruby Tuesday’s Somerset\, PA location’s community giveback program! They’ll donate 15% of your purchase to PWSA | USA when you present the flyer to your server. \nLocation: 1019 North Center Ave.\, Somerset\, PA 15501Time: 4 PM – 10 PM\nPhone Number: (814) 445-3934 \nDownload the flyer below. \nRUBY TUESDAY FLYER
URL:https://www.pwsausa.org/event/dine-for-a-cause-this-pws-awareness-day-may-15-in-pennsylvania/
CATEGORIES:Pennsylvania
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