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X-ORIGINAL-URL:https://www.pwsausa.org
X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;TZID=America/New_York:20260228T130000
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UID:65659-1772283600-1772294400@www.pwsausa.org
SUMMARY:PWS Community Day in North Carolina
DESCRIPTION:Families in the PWS community are invited to attend a PWS Community Day on Rare Disease Day (Saturday\, February 28th) in Durham\, NC! This event\, hosted by Soleno Therapeutics in collaboration with PWSA | USA and FPWR\, will take place at The Museum of Life and Science (433 W. Murray Avenue\, Durham\, NC 27704) from 1:00 – 4:00 PM EST. Attendees will enjoy a day of connection\, care\, and fun. Food will NOT be provided during this event\, but please feel free to pack a snack or lunch from home. A separate\, secure space to dine will be available. \nREGISTER TO ATTEND THE PWS COMMUNITY DAY \nWhat to Expect\n1:00–1:15 pm Welcome & Open Remarks (Mercury Room) \n1:15–1:30 pm Caregiver Networking: A supportive space to connect with other caregivers\, talk\, learn from each other\, and engage with the PWS community in your area.\nFun Zone*: Solar System Adventures! Engaging supervised activities for individuals with PWS and their siblings. \n1:30–2:15 pm Caregiver Session: Self-care activity and discussion. A session focused on the importance of self-care\, which will provide conversation and tools to help you pause\, recharge\, and apply simple self-care tips in your daily life.\nFun Zone*: Solar System Adventures continues! Engaging supervised activities for individuals with PWS and their siblings. \n2:15–2:45 pm Break: Opportunity for families to check in. \n2:45–3:30 pm Caregiver Session: Hear from a doctor and caregiver and learn more about a treatment option.\nFun Zone*: Solar System Adventures continues! Engaging supervised activities for individuals with PWS and their siblings. \n3:30–4:00 pm Closing: Gather for final remarks and goodbyes (Mercury Room) \n* The Fun Zone will be a dedicated space with arts\, crafts\, and activities for those living with PWS and their siblings. It will include movement\, games\, and laughter with peers. 2:1 supervision will be provided by Corporate Kids Events’ qualified and trained staff.
URL:https://www.pwsausa.org/event/pws-community-day-in-north-carolina/
LOCATION:The Museum of Life and Science\, 433 W. Murray Avenue\, Durham\, NC\, 27704\, United States
CATEGORIES:North Carolina
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DTSTART;TZID=America/New_York:20250503T090000
DTEND;TZID=America/New_York:20250503T090000
DTSTAMP:20260524T154752
CREATED:20250127T145246Z
LAST-MODIFIED:20250127T145246Z
UID:56203-1746262800-1746262800@www.pwsausa.org
SUMMARY:NC Hope United 5K & Family Fun Run
DESCRIPTION:When: Saturday\, May 3\, 2025 | 9:00 AM\nWhere: Greater Wilson Rotary Park (1901 Branch St NW\, Wilson\, NC 27893) \nCLICK HERE TO REGISTER!\n \nEarly bird ticket pricing ends March 20th! \nRegister to ATTEND or SPONSOR the NC Hope United 5K & Family Fun Run in support of individuals living with Prader-Willi Syndrome! Proceeds from this event will benefit PWSA | USA’s Advocacy\, Family Support\, and Research programs to find a treatment for PWS.
URL:https://www.pwsausa.org/event/nc-hope-united-5k-family-fun-run/
LOCATION:Greater Wilson Rotary Park\, 1901 Branch St NW\, Wilson\, NC\, 27893\, United States
CATEGORIES:North Carolina
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2025/01/NC-5K-Hope-United-1280-x-720-px.png
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