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X-WR-CALNAME:Prader-Willi Syndrome Association | USA
X-ORIGINAL-URL:https://www.pwsausa.org
X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;TZID=America/New_York:20251018T183000
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DTSTAMP:20260415T023749
CREATED:20250505T133407Z
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UID:58594-1760812200-1760812200@www.pwsausa.org
SUMMARY:Cocktails for a Cause
DESCRIPTION:CLICK HERE TO PURCHASE TICKETS AND LEARN MORE \nJoin us for an unforgettable evening of support\, hope\, and community.  Hosted at the scenic and historic Brown’s Brewing Company Malt Room\, this event will bring together families\, friends\, and supporters for an inspiring evening of cocktails\, conversation\, and compassion\, all aimed at raising awareness and funds for Prader-Willi syndrome (PWS). \nGuests will enjoy signature cocktails\, delicious hors d’oeuvres\, and the unique ambiance of the Malt Room\, known for its charm and exceptional service. The night will feature engaging speakers\, including families impacted by PWS\, as well as opportunities to learn more about the syndrome and how funds raised will directly benefit those affected by it. The event will also offer a raffle\, silent auction\, and other interactive ways to contribute to this important cause. \nPWS is a rare\, complex genetic disorder that affects multiple systems in the body\, often leading to challenges with hunger regulation\, cognitive development\, and behavior. Funds raised at this event will support research\, family resources\, and advocacy initiatives aimed at improving the lives of those with PWS.
URL:https://www.pwsausa.org/event/cocktails-for-a-cause/
LOCATION:The Malt Room at Brown’s Brewery\, 417 River Street\, Troy\, NY\, United States
CATEGORIES:New York
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DTSTART;TZID=America/New_York:20250405T180000
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CREATED:20250102T163934Z
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UID:55667-1743876000-1743876000@www.pwsausa.org
SUMMARY:Zahra's Night of Light
DESCRIPTION:When: Saturday\, April 5\, 2025 | 6:00 PM\nWhere: Historical Hall (608 Old Post Road\, Bedford NY)\nCLICK HERE TO REGISTER AND BECOME AN EVENT SPONSOR \nJoin us for the inaugural Zahra’s Night of Light at the Historic Hall in Bedford\, NY! This community event brings us together to support children like Zahra\, living with Prader-Willi Syndrome. Enjoy an evening filled with entertainment\, food and drinks\, a silent auction\, and more. \nEvery dollar raised will go directly to the Prader-Willi Syndrome Association (PWSA | USA) to fund advocacy\, family support\, and vital research to find a treatment for PWS. \nPWS is a rare genetic condition that occurs in 1:15\,000-30\,000 live births and begins with low muscle tone\, feeding difficulties\, and delayed development. By childhood\, it evolves into a relentless hunger that dominates daily life in addition to behavioral and academic challenges. For Zahra\, this syndrome is just one part of who she is\, but it significantly impacts her and our family’s world\, now and forever. \nThere’s no cure or treatments\, but with your support\, we can give her—and others—a chance at independence and freedom from hunger. \nJoin us on April 5th for an unforgettable evening of hope and impact!
URL:https://www.pwsausa.org/event/zahras-night-of-light/
LOCATION:Historical Hall\, 608 Old Post Rd\, Bedford\, NY\, 10506\, United States
CATEGORIES:New York
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