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X-ORIGINAL-URL:https://www.pwsausa.org
X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;TZID=America/New_York:20260425T130000
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UID:66402-1777122000-1777132800@www.pwsausa.org
SUMMARY:PWS Community Day in Miami\, FL
DESCRIPTION:PWS Community Day in Miami\, FL\nWhen: April 25\, 2026 | 1:00 – 4:00 PM\nWhere: Miami Children’s Museum (980 MacArthur Cswy\, Miami\, FL 33132) \nCLICK HERE TO REGISTER (Free to attend) \nJoin for a day of connection\, care\, and fun for families in the community. Soleno Therapeutics is committed to supporting the community and advocating for the treatment of hyperphagia associated with PWS. In collaboration with Prader-Willi Syndrome Association | USA and The Foundation for Prader-Willi Research\, we invite you to PWS Community Day—a welcoming space for families like yours to connect\, recharge\, learn\, play\, and create together. \nWhile event activities won’t begin until 1:00 PM\, attendees are welcome to enjoy the museum from 10:00 am–12:45 pm. You will need to check in with event organizers first to receive your wristbands. Food will NOT be provided during the event\, but please feel free to pack a snack or lunch from home. A separate\, secure space will be provided should your child need to eat. \nCheck out the image below for the full event schedule.
URL:https://www.pwsausa.org/event/pws-community-day-in-miami-fl/
LOCATION:Miami Children’s Museum\, 980 MacArthur Cswy\, Miami\, FL\, 33132\, United States
CATEGORIES:Florida
ATTACH;FMTTYPE=image/jpeg:https://www.pwsausa.org/wp-content/uploads/2026/03/Soleno-PWS-Community-Day-Miami-2026.webp
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DTSTART;TZID=America/New_York:20260321T170000
DTEND;TZID=America/New_York:20260321T213000
DTSTAMP:20260521T095053
CREATED:20260105T155643Z
LAST-MODIFIED:20260115T145951Z
UID:64326-1774112400-1774128600@www.pwsausa.org
SUMMARY:2026 Clint Hurdle Hot Stove Dinner
DESCRIPTION:Registration is NOW OPEN for the 12th Annual Clint Hurdle Hot Stove Dinner! Join hosts Clint and Karla Hurdle on Saturday\, March 21\, 2026\, on the beautiful grounds of Bradenton Country Club in Bradenton\, Florida – or participate virtually from anywhere – and help make a meaningful difference for those affected by Prader-Willi syndrome. \nThis special evening brings together the PWS community\, friends\, and supporters to raise critical funds for PWSA | USA through inspiring stories\, a silent auction featuring exclusive items and experiences\, a gourmet dinner\, live entertainment\, a raffle\, and the ever-popular Coconut Drop (Golf Ball Drop). \nYour attendance and support fuels PWSA | USA’s vital Family Support services and programs. Together\, we can create a brighter future for individuals and families affected by PWS. \nREGISTER HERE \nDONATE HERE
URL:https://www.pwsausa.org/event/2026-clint-hurdle-hot-stove-dinner/
LOCATION:Bradenton Country Club\, 4646 9th Ave W\, Bradenton\, Florida\, 34209
CATEGORIES:Florida
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/01/Hot-Stove-Dinner-2026-Thank-You-png.webp
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DTSTART;TZID=America/New_York:20250322T170000
DTEND;TZID=America/New_York:20250322T213000
DTSTAMP:20260521T095053
CREATED:20241226T152017Z
LAST-MODIFIED:20241226T152017Z
UID:55588-1742662800-1742679000@www.pwsausa.org
SUMMARY:2025 Clint Hurdle Hot Stove Dinner
DESCRIPTION:Sip\, Savor\, Support!\nJoin Clint and Karla Hurdle on Saturday\, March 22\, 2025\, to support PWSA | USA. \nEnjoy the 11th Annual Hot Stove Dinner at this outdoor event on the beautiful grounds of Bradenton Country Club\, Bradenton\, FL\, or virtually from anywhere. \nREGISTER HERE! \nEvent Schedule: \n5:00 PM EST – 6:00 PM EST | Island Treasure Reception (Guests registered for this limited attendance event may arrive at 4:45 PM EST) \nVirtual Event – 5:00 PM EST – 8:30 PM EST | All virtual guests will be sent a virtual event link on Wednesday\, March 19\, 2025. Please email Penny@ElevareFoundation.org in the event you do not receive your email by Thursday\, March 20\, 2025. Please check your spam folder as well. \nMain Event (General Admission) – 6:00 PM EST – 9:30 PM EST \nHighlights of the evening: \n\nInspirational stories of what Prader-Willi Syndrome Association | USA does every day!\nSilent Auction: Bid on exclusive items and experiences\, with all proceeds going towards PWS research and support programs\nGourmet Dinner: Enjoy a delectable meal while mingling with fellow supporters and advocates\nLive Entertainment\nRaffle\nCoconut Drop | Golf Ball Drop!
URL:https://www.pwsausa.org/event/2025-clint-hurdle-hot-stove-dinner/
LOCATION:Bradenton Country Club\, 4646 9th Ave W\, Bradenton\, Florida\, 34209
CATEGORIES:Florida
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/12/Hot-Stove-Dinner-2025-Save-the-Date.png
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DTSTART;TZID=America/New_York:20240930T083000
DTEND;TZID=America/New_York:20240930T200000
DTSTAMP:20260521T095053
CREATED:20240712T151824Z
LAST-MODIFIED:20240712T151824Z
UID:52361-1727685000-1727726400@www.pwsausa.org
SUMMARY:The Inaugural RMC Foundation Golf Outing
DESCRIPTION:Tee off for a great cause at RMC’s annual golf tournament\, benefiting innovative research and community support initiatives. Enjoy a round of golf while making a positive impact on those living with Prader-Willi Syndrome. \nWhen: Monday\, September 30\, 2024\n8:30 a.m. shotgun start\nWhere: Ritz-Carlton Members Golf Club\nBradenton\, FL \nRegister TODAY at https://www.thermcfoundation.org/golf2024. \nThe RMC Foundation works to provide funding to PWSA | USA’s Advocacy Programs. These Programs help enrich the lives of people living with Prader-Willi Syndrome.
URL:https://www.pwsausa.org/event/the-inaugural-rmc-foundation-golf-outing/
LOCATION:Ritz-Carlton Members Golf Club\, 15150 70th Terrace E\,\, Bradenton\, FL\, 34202\, United States
CATEGORIES:Florida
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2024/07/Screenshot-2024-07-12-110836.png
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