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7th Annual Hunter Lens Golf Tournament Hunter’s Story Hunter is 17 years old and has Prader-Willi syndrome. He leads a happy, active life despite his daily challenges. He has friends, a loving family and his weight in under control. Supporting PWSA (USA), a non-profit, will open more doors for Hunter and others who live with PWS, which ultimately means a better life. Hunter deserves a better life. Please join us on this special day in honor of Hunter. Cost: $125/golfer: Golf, prizes, awards celebration dinner $55/person: Awards, prizes…
Please join us on August 20th for a fun family picnic.
The Prader-Willi Syndrome Arizona Association (PWSAA) is still “hungry for a cure”, so come out in support of a wonderful cause and help find a cure. Join the PWSAA and the Arizona Diamonbacks for the 4th Annual Prader-Willi Syndrome Awareness Day here at Chase Field. A portion of each ticket purchased specifically for this event will be donated back to the Prader-Willi Syndrome Arizona Association. When: Saturday, September 17th @ 5:10PM LA Dodgers vs. Arizona Diamondbacks Questions? Please contact Garret…
Please join us on October 1st for our 2016 Conference.
DATE: November 11 thru 13, 2016 LOCATION: DoubleTree Hotel by Hilton, Pittsburgh Monroeville Convention Center, 101 Mall Blvd., Monroeville, PA 15146 Phone: 412-373-7300 Rate per night is $119 plus 14% tax (Limited number rooms available for our rate.) TO RESERVE HOTEL ROOM Call 412-373-3700 to reserve a room. Please advise hotel that you are with the Prader-Willi Association. A credit card number must be given to hold the room. If you decide to check out prior to your reserved checkout date, hotel…
Please join us for our 2016 fall camp that will be taken place from October 14th through the 16th.
Big George Back in the Day Clobberfest October 15, 2016 Frenchy’s Rockaway Grill 7 Rockaway St. Clearwater, Florida 33267 Event Hosted by: Prader-Willi Florida Association benefiting PWFA and those living with PWS in the state of Florida. Anyone can put together a team of 4 and enter with a $100 registration fee. This can be done ahead of time by contacting Terrann Mayo (727)420-8090 Terrannmayo@gmail.com, or on the day of the event and everyone who enters gets a free shirt.…
We will be having our annual board meeting on October 22nd.
We encourage all families to join us for this years annual family meeting that will be held on November 12th.
This 22nd annual conference is an opportunity for our PWS community to come together for fellowship, education and fun. Topics include IEPs, Guardianship/Trusts/Wills, Department of Human Services resources and a panel of PW moms. Volunteers with the Bricktown Rotary will escort our PWS individuals through the Orr Family Farm during the conference. Please Click Here for the conference registration forms.