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X-WR-CALNAME:Prader-Willi Syndrome Association | USA
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X-WR-CALDESC:Events for Prader-Willi Syndrome Association | USA
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DTSTART;TZID=America/New_York:20260808T100000
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UID:68007-1786183200-1786204800@www.pwsausa.org
SUMMARY:PWS Community Day in San Francisco Bay Area
DESCRIPTION:When: Saturday\, August 8\, 2026\nWhere: San Jose\, California (Children’s Discovery Museum of San Jose)\nFree to attend!\n\nCLICK HERE TO REGISTER\nDownload the Flyer Here (find the agenda on page 2)\n\nSoleno Therapeutics\, a Neurocrine Biosciences Company\, is pleased to invite the PWS community to a PWS Community Day in the San Francisco Bay Area\, specifically in San Jose\, CA\, for a day filled with connection\, fun\, and education. The planned sessions will take place on Saturday\, August 8\, 2026\, from 1-4 PM PST and families are invited to visit the museum from 10 AM-12:45 PM PST to get acclimated and enjoy the exhibits.\n\nThere will be an opportunity to connect with other PWS caregivers and to participate in a session on self-care focusing on breath work\, emphasizing how you find even a few minutes each day to care for yourself. Diane Stafford\, MD\, will provide an educational session on VYKAT™ XR\, the first and only FDA approved treatment for individuals 4 years of age and older\, living with hyperphagia in PWS. Attendees will also get to hear directly from a caregiver about their journey.\n\nDuring the event\, individuals with PWS as well as their siblings will take part in activities supervised by Corporate Kid Events (CKE). CKE is a nationwide child care service that specializes in working with children with specialized needs\, including PWS.\n\nWe hope to see you there!
URL:https://www.pwsausa.org/event/pws-community-day-in-san-francisco-bay-area/
LOCATION:Children’s Discovery Museum of San Jose\, 180 Woz Way\, San Jose\, CA\, 95110\, United States
CATEGORIES:California
ATTACH;FMTTYPE=image/png:https://www.pwsausa.org/wp-content/uploads/2026/07/2027-Convention-Graphic-21.webp
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