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Tips for Better Sleep

Quality sleep is vital to our physical and mental health, as well as our emotional wellbeing. Yet, many of us struggle to get a good night sleep on a regular basis. Now, imagine if you were rarely able to get a good night’s rest and the impact that accumulated “sleep deficit” would eventually have on […]

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Tips and Techniques for a Safe Holiday Season

by Lisa Graziano, MA., LMFT Based on the original article by Katherine Crawford, Former PWCF Family Support Coordinator   Whatever holiday you and your family celebrate, PWSA (USA) wants to help you make it both fun and safe. The key is to plan well ahead of time and strategically, incorporating the strategies outlined in this […]

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Applied Behavior Analysis and PWS Part 2: The A-B-C’s of Behavior

By: Cindy Szapacs, M.Ed. BCBA   In the first entry for this series, a description of applied behavior analysis (ABA) was presented. It was discussed that ABA is a set of principles, not a specific intervention, that can be used to teach people of all ages and abilities to acquire socially significant behaviors using research-based […]

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INDIVIDUALLY WE ARE RARE…TOGETHER WE ARE STRONG: PARENT MENTOR PROGRAM 
STRENGTHENS PWS COMMUNITY

On September 8, 2018, PWSA (USA) help a parent mentor workshop at the Monroe Carrell, Jr. Children’s Hospital at Vanderbilt University in Nashville, Tennessee. PWSA (USA) Parent Mentor Director, Diane Seeley, created the innovative workshop to educate parent mentors about a variety of topics, including current trends in dietary management, advantages and safety of various […]

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APPLIED BEHAVIOR ANALYSIS AND PRADER-WILLI SYNDROME, PART 1: EXPLAINING ABA

 By: Cindy Szapacs, M.Ed. BCBA  Before getting into the nuts and bolts of this article, I would like to introduce myself and explain why I am writing this series of articles. I am a mother of two boys, one of whom has Prader-Willi Syndrome. I also am a Board Certified Behavior Analyst. I currently work […]

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ROSE COLORED GLASSES

by Abigail Ogilbee Have you ever worn a great pair of sunglasses in the summer? The lake isn’t as blinding when the sun hits the waves, the trees are a little greener, and the world is a little more crisp. Take them off and the sun burns your eyes making you squint with pain. Elsa […]

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Meet Your Family Support Team

Kate Beaver, MSW, CSW-Family Support Counselor Because her daughter has Prader-Willi syndrome, Kate had first-hand knowledge of the challenges families encounter with the syndrome and had valuable personal experience in how to access services and support for her family prior to joining the PWSA (USA) staff. As a Crisis Intervention and Family Support Counselor, Kate’s […]

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Managing Behavior

One of the most difficult challenges parents face is managing their child’s behavior.  Whether it occurs at home, at school, or in a residential care setting, problematic behavior is one of the most frequent reasons parents and providers call PWSA (USA) for help. The first step to effectively manage behavior is to identify the problematic […]

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