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Prader-Willi Syndrome Awareness Month

By Stacy Ward  May is National PWS Awareness Month! PWS Awareness Month came to be thanks to the efforts of Amy Porter and Prader-Willi California Foundation members, Tom and Renay Compere, who brought the syndrome and the needs of the PWS community to the attention of Republican Congressman Ed Royce and Democratic Congresswoman Jane Harman. The […]

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PWS Awareness Month: Week 1

Not on social media?  No problem!  PWSA (USA)’s daily PWS Awareness Month posts are available right here for you to access anytime.   Day 1 May is Prader-Willi Syndrome Awareness Month! Republican Congressman Ed Royce and Democratic Congresswoman Jane Harman co-sponsored the original House Resolution thanks to efforts by Amy Porter (Aunt to Colorado’s young […]

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NUTRITION and HEALTHY LIVING

By: Stacy Ward, Director of Family/Medical Support & Special Projects   Parents and families of loved ones diagnosed with Prader-Willi syndrome have an array of concerns as their children move through life. By far one of their greatest struggles and worries is adequate nutrition and healthy living. PWSA (USA)’s Family and Medical Support counselors receive […]

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Easter Fun

By: Kim Tula, Family Support Counselor For many, Easter is a fun and joy-filled holiday, but for individuals with PWS and their families and caregivers, it can also be full of worry. The anticipation of large family dinners, Easter Egg hunts, and candy-filled baskets left by the Easter Bunny can result in increased anxiety and […]

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Receiving the Diagnosis

by Amanda Yanik The first and only person that mentioned Prader-Willi syndrome to us while our daughter Saoirse was in the NICU was the incomparable geneticist, Chin-To Fong, M.D.. I have a vague recollection of him coming in on a Friday night after the first week of our NICU stay. He mentioned a previous patient of […]

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Tips for Better Sleep

Quality sleep is vital to our physical and mental health, as well as our emotional wellbeing. Yet, many of us struggle to get a good night sleep on a regular basis. Now, imagine if you were rarely able to get a good night’s rest and the impact that accumulated “sleep deficit” would eventually have on […]

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Tips and Techniques for a Safe Holiday Season

by Lisa Graziano, MA., LMFT Based on the original article by Katherine Crawford, Former PWCF Family Support Coordinator   Whatever holiday you and your family celebrate, PWSA (USA) wants to help you make it both fun and safe. The key is to plan well ahead of time and strategically, incorporating the strategies outlined in this […]

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Halloween Fun for Everyone!

Children, and many adults, look forward to Halloween with great anticipation…Bags full of sugary treats, scary decorations, and the thrill of trick or treating with friends and family…What could be more fun? But, what do you do for Halloween when your loved one has Prader-Willi syndrome? Can they safely participate in the festivities? The answer […]

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