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Prader-Willi California Foundation to match gifts for Oxytocin study!

$20,000 In 20 Days for Oxytocin Research! Thanks to the generosity of the Prader-Willi California Foundation (PWCF) a $10,000 matching grant has been announced for the Oxytocin phase 2 study, led by Dr. Jennifer Miller. PWCF will donate $10,000 if PWSA (USA) can raise $10,000 over the next 20 days. So for the next twenty days we have […]

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Submit Your Picture: Casting Call For This Years Angel Drive!

PWSA (USA) is asking our PWS community to submit pictures of your loved one with PWS for our 2015 Angel Drive Campaign! The photos selected will be the face of this year’s Angel Drive campaign. If you would like to submit a photo for the opportunity for your loved one to be among the faces […]

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Noninvasive Prenatal Screening – Testing Now Available For PWS

Janalee Heinemann, PWSA (USA) Coordinator of Research and International Affairs Noninvasive prenatal screening (NIPS) – also called noninvasive prenatal testing (NIPT) or cell–free DNA testing – is now available for Prader-Willi syndrome (PWS). Testing can be done any time after 9-10 weeks gestation because DNA from the fetus circulates in maternal blood. The testing is […]

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PWSA (USA) Joseph McErlane Research Grant

  PWSA (USA) is sponsoring a grant that will bring therapy to the home! PWSA (USA) Joseph McErlane Research Grant Project Title: Evaluating the Feasibility of a Telehealth Intervention of Early Social Cognitive Processes in Children with Prader-Willi syndrome Principal Investigator: Anastasia Dimitropoulos, Associate Professor of Psychology, Ph.D. Case Western Reserve University, Cleveland, OH   […]

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Oxytocin Phase 2 Study Campaign Reaches Milestone!

In our first month of the Oxytocin campaign, we have exceeded $160,000! The PWSA (USA) Board matching gift fund of $50,000 was exhausted in less than a week! Thank you for your generosity and support for this study. To help us reach our next milestone in this potentially life-changing research study, please donate or register […]

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Exciting News: $50,000 Matching Gift Grant for the Oxytocin Phase 2 Study!

The PWSA (USA) Executive Committee of the Board has announced a $50,000 matching gift grant to initiate fundraising efforts for this potentially life-changing research study for our children and our families. Any donations made between now and August 31st will be matched dollar for dollar up to a total of $50,000! Click Here to make your donation today! You […]

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Prader-Willi syndrome: a review of clinical, genetic, and endocrine findings

We are pleased to share the following new publication which was written by three of our PWSA (USA) Advisory Board members: Prader-Willi syndrome: a review of clinical, genetic, and endocrine findings M. A. Angulo, M. G. Butler &M. E. Cataletto Journal of Endocrinological Investigation (Springer) Click HERE to read the publication

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