As we approach the end of 2024, we are filled with gratitude for your unwavering support. This year has been a time of innovation and growth for the Prader-Willi Syndrome Association | USA (PWSA | USA), and it’s all thanks to your engagement and generosity.

Sharing and Celebrating Our 2024 Achievements

Looking Ahead to 2025: Celebrating 50 Years of Impact

As we approach our 50th anniversary in 2025, we reflect on our progress and renew our commitment to the PWS community. To advance this important work, we need your support.

Join Our 2024 Angel Drive

Make a gift to the 2024 Angel Drive before December 15th, and you’ll be entered to win one of four fantastic prizes: an Apple Smart Watch, a $300 Amazon Gift Card, Custom Nike PWS Sneakers, or a PWSA Swag Bag!

By giving your gift of HOPE, you’ll help us remain a lifeline, ensuring families can access vital resources, from critical support services to advancing research, advocacy, and awareness. Your tax-deductible gift guarantees that PWSA | USA can continue providing hope, 24/7/365. Thank you for being part of this journey and for your unwavering commitment to the PWS community.

It has been said that each of us needs just three things to be truly happy in this world: someone to LOVE, something to HOPE for, and something to DO. Together with our Prader-Willi syndrome community near and far, our mission requires all three.

WE LOVE

They are our children, our grandchildren, nieces, nephews, aunts, uncles, neighbors, patients, and friends living with the obstacles that come with this rare and complex diagnosis of PWS.

WE HOPE

They are our children, our grandchildren, nieces, nephews, aunts, uncles, neighbors, patients, and friends living with the obstacles that come with this rare and complex diagnosis of PWS.

WE DO

They are our children, our grandchildren, nieces, nephews, aunts, uncles, neighbors, patients, and friends living with the obstacles that come with this rare and complex diagnosis of PWS.

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Supported nearly 4,000 families with comprehensive PWS guidance and assistance

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Trained at 94 schools, enhancing PWS education and support

150 advocates participated in over 130 congressional meetings during our 2024 D.C. Fly-In

Submitted several critical advocacy documents to the FDA, urging the approval of DCCR as a treatment for PWS and supporting the advancement of future treatments.

Launched the PWS United podcast, a platform for sharing resources and stories that strengthen community bonds and connection.

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Hosted the inaugural PWS Residential Providers Conference, bringing together over 100 professionals from across the country to advance care and support for individuals with Prader-Willi syndrome.

Support PWSA | USA

Hope in Action

The Hope in Action series shares powerful stories of resilience and hope from the Prader-Willi syndrome community, highlighting the many ways PWSA | USA is making a difference. From school support to crisis assistance, advocacy, and more, each story showcases the real-life impact of our programs and the strength of our families.


School Success

At PWSA | USA, we know that navigating the education system can be challenging for families in the PWS community. In this Hope in Action story, we spotlight PWSA | USA’s School Support services and how they empower parents to advocate for their children’s unique needs. Hear firsthand from mom Sue Colon and CEO Stacy Ward how our dedicated team works alongside families to help ensure every child has the support they need to succeed in school. By supporting the 2024 Angel Drive campaign, PWSA | USA can continue to provide these life-changing services.

WINTER COLORING SHEETS

Download our Winter Coloring Sheets for a fun family activity this holiday season.

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SHARE YOUR HOPE!

Join the heartwarming movement by sharing your HOPE! Help us understand the impact PWSA | USA has had on you and your family’s PWS journey. Your unique story is invaluable, and we invite you to fill out the form below. In the form, you’ll find a couple questions, along with an opportunity to share a cherished photo that encapsulates your journey. As we embark on our Angel Drive campaign, these testimonials will serve as powerful beacons of inspiration, fostering hope and solidarity within our cherished community. We sincerely appreciate your participation!