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Tips and Techniques for a Safe Holiday Season

by Lisa Graziano, MA., LMFT Based on the original article by Katherine Crawford, Former PWCF Family Support Coordinator   Whatever holiday you and your family celebrate, PWSA (USA) wants to help you make it both fun and safe. The key is to plan well ahead of time and strategically, incorporating the strategies outlined in this […]

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Applied Behavior Analysis and PWS Part 2: The A-B-C’s of Behavior

By: Cindy Szapacs, M.Ed. BCBA   In the first entry for this series, a description of applied behavior analysis (ABA) was presented. It was discussed that ABA is a set of principles, not a specific intervention, that can be used to teach people of all ages and abilities to acquire socially significant behaviors using research-based […]

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Event: Foundation for Prader-Willi Research Annual Research Symposium and Conference

Held October 4 – 6, 2018 in Las Vegas Nevada, the Foundation for Prader-Willi Research Annual Research Symposium and Conference started with the Research Symposium during which numerous abstracts and preliminary results were presented from the podium. Most evidence was findings from pre-clinical phase research and phase 2 trials. All evidence was very promising and many trials are […]

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Halloween Fun for Everyone!

Children, and many adults, look forward to Halloween with great anticipation…Bags full of sugary treats, scary decorations, and the thrill of trick or treating with friends and family…What could be more fun? But, what do you do for Halloween when your loved one has Prader-Willi syndrome? Can they safely participate in the festivities? The answer […]

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PWSA (USA) Launches New Corporate Partners Program

PWSA (USA) welcomes its first official Corporate Partner; Prader-Willi Homes of Oconomowoc, at the PWSA (USA) Board of Directors meeting on September 14th.   A premier residential facility located in Dousman, Wisconsin, Prader-Willi Homes of Oconomowoc has been supporting individuals with PWS and their families for over 35 years. PWSA (USA) works with Corporate Partners to […]

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INDIVIDUALLY WE ARE RARE…TOGETHER WE ARE STRONG: PARENT MENTOR PROGRAM 
STRENGTHENS PWS COMMUNITY

On September 8, 2018, PWSA (USA) help a parent mentor workshop at the Monroe Carrell, Jr. Children’s Hospital at Vanderbilt University in Nashville, Tennessee. PWSA (USA) Parent Mentor Director, Diane Seeley, created the innovative workshop to educate parent mentors about a variety of topics, including current trends in dietary management, advantages and safety of various […]

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APPLIED BEHAVIOR ANALYSIS AND PRADER-WILLI SYNDROME, PART 1: EXPLAINING ABA

 By: Cindy Szapacs, M.Ed. BCBA  Before getting into the nuts and bolts of this article, I would like to introduce myself and explain why I am writing this series of articles. I am a mother of two boys, one of whom has Prader-Willi Syndrome. I also am a Board Certified Behavior Analyst. I currently work […]

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ROSE COLORED GLASSES

by Abigail Ogilbee Have you ever worn a great pair of sunglasses in the summer? The lake isn’t as blinding when the sun hits the waves, the trees are a little greener, and the world is a little more crisp. Take them off and the sun burns your eyes making you squint with pain. Elsa […]

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