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Registration For PWSA (USA)’s 34th National Convention Is Now Live

PWSA (USA)’s 34th National Convention Is Now Open For Registration! November 15 – 18, 2017 Caribe Royale | Orlando, Florida We invite you to come check out our 34th National Convention registration page by clicking on the button below. With the hottest topics and the biggest names in the PWS community, you won’t want to miss out on what […]

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PWSA (USA) approves grant: Profiling of the gut microbiome in children with PWS

Profiling of the gut microbiome in children with PWS Principal Investigator – Andrea M Haqq, MD, MHS, FRCP University of Alberta, Canada   ABSTRACT Individuals with a genetic condition called Prader-Willi Syndrome (PWS) are at risk for development of obesity at a young age. Children with PWS often have a very high food intake because […]

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The Night we told Ryan he has Prader-Willi Syndrome

When is it the right time? At what age? At what cognitive level?  Will he even understand?  Will it make him more anxious? (Because EVERYTHING does.) Will he just perseverate on it and talk about it over and over and over?  Or will it bring relief—as in “oh, now I understand why I talk about […]

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Important Medical Growth Charts

PWSA (USA) Growth Charts Now Available! A child’s growth is the single best indicator of their health – important data for every pediatric appointment. For children with Prader-Willi Syndrome, the pattern is not typical, and interpreting each height and weight can create questions and worries for parents and professionals. With the support of PWSA (USA) […]

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