PWSA (USA)’s 34th National Convention

November 15 – 18, 2017

Caribe Royale | Orlando, Florida

Committee Co-Chairs: Jackie Mallow & Michelle Torbert

PWSA (USA) is deeply committed to providing education about PWS and truly understands the value of meeting in person. The first national conference took place in 1979 in Minnesota. Now over 1,200 people worldwide walk the main hall during this elaborate three-day event. If you have any questions regarding the PWSA (USA) 34th National Convention, please contact Jackie Mallow at

Click here to view a map of the convention center

Click here to download the 2017 PWSA (USA) National Convention Survey

Schedule of Events


  • Chapter Leaders Meeting –  Crystal Boser/Rob Seely
  • Chapter Leaders and New Parent Mentor Reception
  • Clinical Advisory Board Meeting – Dan Driscoll
  • Scientific Advisory Board Meeting – Merlin Butler
  • Professional Providers Advisory Board Meeting – Patrice Carroll/Mary K Ziccardi



  • Chapter Leaders and New Parent Mentors Meeting – Crystal Boser/Rob Seely & Lori Moline/Diane Seely
  • Medical & Scientific Conference – Merlin Butler supported by Dan Driscoll/Jim Loker/Kathy Clark & Ann Manzardo
  • Professional Providers Conference – Patrice Carroll/ Mary K Ziccardi
  • Medical & Scientific Reception
  • Welcome Reception/General Conference – Debbie Peaton



  • Rare Disease – Dan Driscoll
  • General Gala – Debbie Peaton/Kristi Rickenbach
  • YAP Gala – Debbie Peaton/Kim Tula



  • PWSA (USA) General Conference – Kristi Rickenbach
  • Youth & Infant Program – Michelle Holbrook
  • Youth & Adult Program – Kim Tula
  • Sibling Program – Tammie and Rockie Penta
  • PWS Global Assessment Team

Hotel Reservations

Make your reservation at the Caribe Royale in Orlando, FL under our PWSA (USA) discounted price.

Visit Disney!

Receive a pre-arrival savings of 10% on our Full-Multi-Day Tickets (2 days or longer). Includes a free bonus visit to any one of the following:

  • Disney’s Typhoon Lagoon Water Park
  • Disney’s Blizzard Beach Water Park
  • Disney’s Winter Summerland or Disney’s Fantasia Gardens Miniature Golf Courses (before 4 p.m.)
  • A round of golf at Disney’s Oak Trail Golf Course


General, Medical & Scientific, Providers &
Chapter Leaders, New Parent Mentors Registration

Please join us for a fun, educational and inspirational PWS weekend.

YIP Ages 0-2, YIP Toddler Ages 2-6 , YAP Ages 7-Adult & Siblings Registration

An awesome time for your child to experience. Memories that will last forever!

Volunteers, Guests, Speakers, & Sponsorship/Exhibitor Registration

Be part of spreading joy and education to all. Have your company help Save and Transform Lives!

Headed to Orlando for the Convention?  

PWS families from all over the country are sharing their excitement with fun home videos!  Submit yours to

See you in Orlando! 

Thank you to our sponsors!