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PWSA (USA)’s Webinar Series Continues: Overview of the New Publication “Transition Planning Resource Guide”

Thursday | October 13, 2016 | 7:30 p.m. – 9:00 p.m., EST.   Planning and preparing for transition in the school setting to adult services and programs can be an overwhelming process not only for the person with PWS, but also their families. Barb Dorn, RN, and Kate Beaver, MSW, will share an overview of […]

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“Kicking The Can” with PWS

Written by: Sara Grosso For the last few months I’ve focused on modeling an active lifestyle and healthy eating choices for Grayson. Running is beginning to become a habitual part of my daily routine. The length and route of each run depend entirely on what kind of “adventure” takes place between the hours of 5:00 […]

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The Confusing World of Growth Hormone Insurance Coverage and Denials

The Confusing World of Growth Hormone Insurance Coverage and Denials – Kathy Clark, PNP, PWSA (USA) Coordinator of Medical Affairs   It may feel like insurance companies are the enemy when they deny a medication that we feel is so important to our children. There are some complex explanations that I will list here that […]

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Donate Match Opportunity

We have an incredible donation match opportunity coming up and we need your help! This year’s Giving Challenge takes place noon-noon (EDT) Tuesday, September 20 through Wednesday, September 21 and the matching opportunity is as follows: 1:1 match for 2015 Giving Challengedonors for donations up to $100      ($100 gift becomes a $200 gift) 2:1 […]

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