It has been nearly one year since we learned of the initial potential of oxytocin and PWSA (USA) began raising funds for the phase 2 clinical trial. This trial will provide us a greater understanding of the potential benefits, appropriate dosage needed, and additional vital information. The phase 1 study results were very positive and […]
Be a part of our Prader-Willi syndrome awareness month membership drive! Our goal is to recruit 500 members in May. Join the movement and our amazing community by becoming a member today. Whether you are joining as member for the first time or renewing your membership, your support is needed. Activate your membership here. Members […]
Prader-Willi Syndrome Awareness Month is here. Like every year, PWSA (USA) is undertaking efforts towards raising awareness, promoting education, funding research, and supporting families. Even though we have come a long way, there are still many people out there who don’t know what it’s like to plan every day of their lives around hunger. We […]
Want to know a great way you can make a difference in the lives of PWS families that are in need of crisis or medical support? Take action today and join our online fundraiser, eWalk. Many of you have busy schedules, but eWalk only takes a few minutes to get started. That’s all it takes […]
Must-Have’s For Every PWS Family! Below are two wonderful resources PWSA (USA) is offering to our amazing community. Learn more about them below. Essential Early Childhood Behavior Management Strategies Three weeks ago, Lisa Graziano, MA, LMFT, presented a webinar entitled, Essential Early Childhood Behavior Management Strategies. Parents found it very helpful in understanding behavior […]
We are currently recruiting children between the ages of 3 and 11 with PWS and their caregivers for two intervention studies. These play-based interventions are delivered via telehealth (webcam chatting). Our research team will be in the NYC area (Queens) on May 15-16 to enroll families. Study information can be found in the attached fliers. […]
In honor of PWS Awareness Month in May, the Prader-Willi California Foundation has initiated another challenge to raise funds to support the Oxytocin Phase 2 Study! Help us raise just $10,000 and PWCF will match it with another $10,000! That’s $20,000 more to ensure the Oxytocin Phase 2 Study progresses! We are grateful to PWCF […]
It’s PWS Awareness Month! Special message from Mayim Bialik! Mayim Bialik and PWSA (USA) are working together to help raise awareness for Prader-Willi syndrome. In honor of PWS awareness month, if you register and raise a minimum of $200 from now until May 31st, you will be entered for a chance to win an Amazon […]