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Research Announcement: Report on the Zafgen Meetings

Due to the results of the phase 3 clinical trial on the Zafgen drug beloranib, a meeting was recently held in Miami to review the data and meet with thrombosis experts. This was followed up by a meeting with PWS caregivers, many of whom had children on the clinical trial. As reported in the webinar […]

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Clint Hurdle’s Hot Stove Dinner for PWSA (USA)

Clint Hurdle’s Spring Training “Hot Stove” Dinner for PWSA (USA) Bradenton, FL | Saturday, March 19, 2016 | @ Courtyard Bradenton Sarasota/Riverfront   Registration is now open for the 2nd Annual Hot Stove Dinner featuring Clint Hurdle, Manager of the Pittsburgh Pirates. Please join us for a great time and for a great cause! Cocktail hour/ Meet […]

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PWSA (USA)’s Webinar Series Continues

Prader-Willi Syndrome: Adulthood 101 With a presentation by Elizabeth Roof, M.A., on Monday, February 22, 2016, at 7:30 p.m., EST.  If you were unable to attend the 2015 conference, or missed this presentation while there, you will be glad to hear it now.  In Prader Willi Syndrome: Adulthood 101, Ms. Roof will present on supports […]

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