Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

Medical

Because PWS is so unique and subtle symptoms can be signs of a serious condition, it is imperative for all parents and professionals working with the syndrome to review this medical section.

More information is available when needed by calling 800-926-4797 or 941-312-0400.

Anesthesia, medication reactions

People with PWS may have unusual reactions to standard dosages of medications and anesthetic agents. Use extreme caution in giving medications that may cause sedation: prolonged and exaggerated responses have been reported.

Comprehensive Management

  • From the American Academy of Pediatrics Clinical Report Health Supervision for Children With Prader-Willi Syndrome The Committee on Genetics [Click here]
  • Endocrinology video overview on Prader-Willi syndrome by Mayo Clinic [click here]
  • A Comprehensive Team Approach to the management of Prader-Willi Syndrome
  • PWS Overview and Management - Medical Home Portal Development, Utah Medical Center. Dr. Merlin Butler, chairperson of our PWSA (USA) Scientific Advisory Board, reviewed and edited this website written for families and primary care physicians. To access this site, [Click Here]
  • Formula Thickening Agents Alert [Click here] for details.
     

Telephone (800) 926-4797

edited: 02/04/2013    
 


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