Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.
Because PWS is so unique and subtle symptoms can be signs of a
serious condition, it is imperative for all parents and
professionals working with the syndrome to review this medical
More information is available when needed by calling 800-926-4797
Anesthesia, medication reactions
People with PWS may have unusual reactions to standard dosages of
medications and anesthetic agents. Use extreme caution in giving medications
that may cause sedation: prolonged and exaggerated responses have been
- From the American Academy of Pediatrics Clinical Report
Health Supervision for Children With Prader-Willi Syndrome The
Committee on Genetics
- Endocrinology video overview on Prader-Willi syndrome by
Mayo Clinic [click here]
Comprehensive Team Approach to the management of
- PWS Overview and Management - Medical Home
Portal Development, Utah Medical Center. Dr.
Merlin Butler, chairperson of our PWSA (USA) Scientific Advisory
Board, reviewed and edited this website written for families and
primary care physicians. To access this site, [Click Here]
- Formula Thickening Agents Alert
[Click here] for details.
Telephone (800) 926-4797