Family Crisis

A family living with a child with Prader-Willi syndrome (PWS) faces some unique challenges:

• How does the structure a PWS child needs affect siblings?
• How can siblings be helped to understand and support their brother or sister with PWS?
• How can appropriate behavior be encouraged in relatives who are resistant to maintaining, for example, food security?
• How can a couple cope with the stress of living with a child who has special needs?
• And how do caregivers take care of themselves in the midst of the often daily challenges of life with a person with PWS?

Without support in these areas, a family can quickly find itself in crisis. We are posting some resources in the “Links and Resources” section we hope will help. Remember, if you reach a particularly tough point, you can always call us to have a place to vent and perhaps think through some new strategies and responses to your situation and at least know that you are not alone.

Links and Resources [Click here]

 edited: 02/09/2012