A family living with a child with Prader-Willi syndrome (PWS) faces some
- How does the structure a PWS child needs affect siblings?
can siblings be helped to understand and support their brother or sister with PWS?
- How can appropriate behavior be encouraged in relatives who are resistant
to maintaining, for example, food security?
- How can a couple cope with the
stress of living with a child who has special needs?
- And how do caregivers take
care of themselves in the midst of the often daily challenges of life with a
person with PWS?
Without support in these areas, a family can quickly find itself in crisis.
We are posting some resources in the “Links and Resources” section we hope will
help. Remember, if you reach a particularly tough point, you can always call us
to have a place to vent and perhaps think through some new strategies and
responses to your situation and at least know that you are not alone.
Links and Resources [Click here]