SSI Resources

Applying for Social Security Income when your child turns 18 can be a difficult and tedious process especially because Prader-Willi Syndrome is not on the Social Security Administration’s (SSA) recognized list of impairments. In our effort to gain SSA recognition, we have learned how to better prepare SSI applications especially for people with PWS. The resources we developed are linked here for you to review and download. We encourage you to use these materials in preparing an initial application or appeal. If you need additional assistance with an application for appeal, please contact us.

• Introduction from PWSA (USA) Executive Director
• Federal Definition of Developmental Disability.
• How to Apply and Tips for Working with the Social Security Administration when Applying for Supplemental Security Income (SSI)
• Prader-Willi Syndrome SSI Disability Evaluation Form for Parents
• Prader-Willi Syndrome SSI Disability Evaluation form for Physicians
• Prader-Willi Syndrome SSI Disability Evaluation form for Others
• Disability Evaluation Under Social Security
• Parent Journal

 edited: 08/26/2008