Phone: 800-926-4797 or 941-312-0400
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Phone: 800-926-4797 or 941-312-0400


Regional Focus/Support Groups

Prader-Willi Syndrome Association (USA) is proud to announce its involvement with families and providers in new regions across the United States to help PWSA (USA) chapters and affiliates reach out to every corner of their state through regional focus and support groups.

Some states may not have a state chapter or affiliate. In this case, PWSA (USA) will help interested leaders create regional focus and support groups with the intention creating a chapter.

PWSA (USA) will provide:

  • One time mailing to residents in the area or state to announce the first meeting.
  • Conference call where all the people in that state can learn about the progress in their state.
  • Assistance with bylaws and other documentation for the creation of new chapters.

If you are interested in learning more about creating a regional focus and support group in your area call the PWSA (USA) national office at 800-926-4797 and ask for Barbara McManus or email Barb at bmcmanus@pwsausa.org.

Additional resources

State Chapters, Affiliates and email support groups are listed at www.pwsausa.org/links/chapter.htm

updated: 02/09/2012 

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