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The Study of Pain in Adults with PWS

I would like to invite you to fill out a questionnaire for the study of pain in adults with Prader-Willi syndrome.

This study of the VU University (Amsterdam) is conducted in the Netherlands, but the questionnaire is also distributed in Flanders and America.

The purpose of the questionnaire is to gather experiences and knowledge about pain by connecting to people directly involved in adults with Prader-Willi syndrome (such as family and caregivers). The sharing of this information provides valuable insight and practical guidelines for dealing with pain.

In this email you will find the anonymous link to the questionnaire.
The questionnaire does not require personal information (such as name and date of birth) and such information is also not collected by other means (such as IP address of the computer).

After pausing between completing the questions, please click on the link again. However, unfortunately you then have to start again.

It is therefore recommended to fill out the questionnaire in one time session. It takes only 15 minutes.

Click Here to go to the questionaire.

(If the link in this e-mail does not work, then please copy and paste the following link in the address field of your browser:

We ask you to complete the questionnaire within 14 days. Do not hesitate to ask any questions and thank you for your cooperation!

Sincerely,
Nanda de Knegt
Dr. N.C. de Knegt Postdoctoral researcher (Pain perception and cognition in people with intellectual disabilities)
VU University, Department of Clinical Neuropsychology (room 1F54)
Email: nc.de.knegt@vu.nl
Phone Number: 0031(0)205980708
Address: Van der Boechorststraat 1, 1081 BT Amsterdam, the Netherlands
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