FOCUS AREA 5: RESEARCH

GUIDING PRINCIPLES.

PWSA envisions a USA and a world in which each of the following is true:

PWSA has the financial resources, the influence with funding sources (NIH, etc), the organizational capabilities, the network, the membership, and the determination to independently lead the world in understanding and thereby curing / alleviating PWS:

• We know the reasons for and the symptoms of PWS
• We have identified therapies to reduce or eliminate all the symptoms of PWS (especially hyperphagia)
• We have improved the health, the quality of life, and the life expectancy of those with PWS

Date: 08/19/2008