Research On Behavior And Development In Prader-Willi Syndrome

Dr. Elisabeth Dykens’ research team has relocated to Vanderbilt University’s Kennedy Center and is currently studying behavior and development in younger and older people with Prader-Willi syndrome. This study aims to identify the factors related to behavior problems in Prader-Willi syndrome, including specific neurotransmitters, age and genetic subtype. Findings will guide effective pharmacological and behavioral treatments in the future. We are also studying relative strengths in people with PWS, including skill with jigsaw puzzles and certain personality strengths and how these contribute to successful life outcomes.

We are looking for persons with Prader-Willi syndrome aged 4 years through adulthood, and their families to come participate at the Kennedy Center at Vanderbilt University in Nashville, TN. Study activities include a day of behavioral and neurochemistry assessments. All participants will receive a written report of study findings by the research team. For further information call Elizabeth Roof, Research Coordinator at 615-343-3330.

(Limited funds for travel for subject participation are available.)

Edited: 06/10/2009