Participants wanted
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Tell me about the good stuff:
Positive Growth in Parents
Principal Investigator: Teresa Ulman, M.S.,
supervised by Dr. Elisabeth Dykens, Ph.D.
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Prader-Willi Syndrome and Early-onset Morbid Obesity Natural
History Clinical Study 2/2008
- A study to evaluate the effect of a new weight loss drug on
body weight and appetite of
subjects with Prader-Willi
Syndrome
Click here
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Research: Magnetic Resonance Imaging (MRI)
of the Brain in People with Prader-Willi Syndrome AT THE NEW
YORK STATE PSYCHIATRIC INSTITUTE. 11/2007
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Parent and Siblings:
Researchers from the Pacific Graduate School of Psychology are
conducting a study to learn about the impact on families with a
child diagnosed with Prader-Willi Syndrome (PWS).
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Learning Profiles of
Children with Prader-Willi Syndrome - Researchers at the
Clinical Center for Development and Learning (CDL) at the
University of North Carolina at Chapel Hill are conducting a
study on learning profiles of children with Prader-Willi
Syndrome (PWS). The results of this study will be used to
develop a tool for developing learning plans specific for
children with PWS. 01/2008
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Body Image in Prader-Willi
Syndrome - Dr. Jennifer Zarcone and Dr. Deborah Napolitano at the University of
Rochester Medical Center are evaluating how body image and body esteem are
different in individuals with Prader-Willi syndrome than people who are
overweight.
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RESEARCH ON
EDUCATIONAL ISSUES The UCLA Behavioral-Genetics Clinic along
with the UCLA Lili Claire Family Resource Center is conducting a
needs assessment of teachers and parents of children with
specific genetic disorders. 12/05
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Frequency and Treatment of
Excessive Daytime Sleepiness - Kosair Children’s Hospital
Sleep Medicine and Apnea Center and the University of
Louisville, we are conducting research projects on the frequency
and treatment of excessive daytime sleepiness in patients with
Prader Willi Syndrome (PWS).
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GRANT LOOKING AT
BEHAVIOR AND WHAT HELPS Dr. Elisabeth Dykens' research team
has been awarded by PWSA (USA) a grant that should be
significant in a better understanding of the medications to treat
maladaptive behaviors in PWS.
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Research On Behavior And Development In
Prader-Willi Syndrome - Dr. Elisabeth
Dykens. Seeking persons with Prader-Willi
syndrome aged 4 years through adulthood, and
their families to come participate at the
Kennedy Center at Vanderbilt University in
Nashville, TN.
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Bariatric Surgery Research Study IRB-approved research
questionnaire study on the outcomes of bariatric surgery (weight
loss surgery) in Prader-Willi Syndrome. If you or someone you
know underwent bariatric surgery, please conact Dr. Scheimann at
(410) 955-8769 for more information.
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Genetics
and Behavior in Prader-Willi Syndrome
Dr. Merlin Butler at Children’s Mercy Hospitals and Clinics
at the University of Missouri, Kansas City and Dr. Jennifer
Zarcone at the University of Rochester Medical Center,
Rochester, NY are collaborating in a study of eating and
compulsive behavior in people with PWS.
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Adults
needed for Feeding Study
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