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PWSA (USA) Funding Research

Current Funding of Valuable Ongoing Research Projects:

INITIAL DATE AWARDED

RECIPIENT/LOCATION

PWS RESEARCH TOPIC
     
2008 Janalee Heinemann,PWSA (USA) Director of Research & Medical Affairs  Report on ongoing research at PWSA (USA)
2008 Anastasia Dimitropoulos, Ph.D. Autistic Symptomatology in PWS: Examining Behavioral and Neurobiological Similarities between PWS and Autism Spectrum Disorders – Principal investigator is Anastasia Dimitropoulos, Ph.D.
December 2007 Heather Newkirk, Ph.D. Development of a Microsphere Suspension Assay for the High Throughput Screening of Prader-Willi Subjects - click here for expected outcomes
December 2007 Soo-Jeong Kim, M.D. Genetic Underpinnings of Restricted Repetitive Behavior click here for expected outcomes

January 2007
 & March 2008

 

Douglas Bittle, Ph.D.
Merlin Butler, M. D.
Children’s Mercy Hospital
 Missouri

 Expressions of Four Genes Between Chromosome 15 Breakpoints BP1 and BP2 in Subjects with PW.

January 2007

 

Roja Montaghedi, M.D.
Moris Angulo, M.D.
 Weill College of Cornell University, New York

 The Effect of Rimonabant on Weight Gain and Body Composition in Children with PWS

January 2007

 

Varda Gross-Tsur, M.D.
 Israel Hirsch,
Shaare Zedek Medical Center, Jerusalem

 Gonadal Function in Infants, Adolescents and Young Adults with Prader-Willii Syndrome
December 2005 Drs. Wm. Klish and
Ann Scheimann
Baylor College of Medicine, TX 		Impact of Dietary Content upon Gastrointestinal Motility in Individuals with PWS
December 2005 Dr. Teresa Reyes
Scripps Research Institute, FL 		The Expression and Regulation of Necdin in the Mouse Central Nervous System: Relation to Hyperphagia
March 2005 Dr. Daniel J. Driscoll, Ph.D.,
Dr. Anthony Goldstone, Ph.D.,
Dr. Jennifer Miller
University of Florida		 Functional Magnetic Resonance Imaging of Reduced Satiety in Prader-Willi Syndrome and Obesity
December 2004 Dr. David A. Stevenson
University of Utah		 Causes of Death in Prader-Willi Syndrome
September 2004 Elisabeth M. Dykens Ph.D.
Vanderbilt University, TN		 The Use of Psychotropic Medications in Prader-Willi Syndrome
December 2003 Dr. Jean-Pierre Chanoine Effect of Somatostatin on Ghrelin Concentrations, Food Seeking Behavior, and Weight in Patients with PWS
  •  PWSA (USA) has funded research since 1983.  Click here to view the history of grants awarded.

 Influencing government funding:

  • Support researchers by actively advocating in DC for NIH funding and other government funding to go to PWS research.

Bringing scientists together to promote research:

  • Sponsored a two-day meeting in the fall for experts in research on hyperphagia (uncontrollable appetite) to share current knowledge and identify and plan for future research.
  • Sponsor a Scientific Conference yearly that is the only PWS specific conference in the nation. This brings together top researchers and physicians in the field of PWS to share knowledge and brainstorm needed research.
  • Work with our two medical/research boards daily to collaborate on medical and research issues.

Supporting researchers:

  • Sharing research and medical information on PWS at medical conferences, on the web, and in the newsletter.
  • Announcing research projects and encouraging participation.
  •  Writing letters of support for appropriate PWS research.

 

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