PWSA Blog

PWSA (USA)’s Webinar Series Continues

Prader-Willi Syndrome: Adulthood 101

With a presentation by Elizabeth Roof, M.A., on Monday, February 22, 2016, at 7:30 p.m., EST.  If you were unable to attend the 2015 conference, or missed this presentation while there, you will be glad to hear it now.  In Prader Willi Syndrome: Adulthood 101, Ms. Roof will present on supports that seem to make things better as people with PWS get older, subtype differences, what to be on the watch for, and what you shouldn’t waste time doing! She will give some case studies about different psychiatric issues in aging adults and what helps. She will talk about how best to identify factors that make interventions more positive, give examples about different living/vocational situations and how/when they work best. Lastly, she will let parents know about taking care of your own emotional and physical health, balance, and how to go the distance.

The webinar will be recorded and available for viewing for one week after the live event.  You must register in advance to receive the link to the recording.  Registration is a two-step process.  First you log in to the Event Brite site to pay the nominal fee of $20 for nonmembers and $10 for members.  When you receive your confirmation of payment email, there will be a link for you to register at the GoToWebinar site. YOU MUST COMPLETE BOTH STEPS! If you are using a Smartphone or Tablet to register, you will need to download the GoToWebinar app first.

Most of our families are familiar with Ms. Roof.  She is a senior research specialist at the Vanderbilt Kennedy Center and has been a licensed Health Service Provider in TN since 1994.  She currently directs several research programs with children and adults with PWS with Dr. Elisabeth Dykens.  You won’t want to miss this webinar!!

Click Here to register!!

 

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