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P, E 219 |
Behavior Management – A Collection of Articles (2003)
This booklet includes general articles on behavior concerns, use of
psychotropic medications, skin picking, and social skills teaching.
Softcover booklet, 49 pages |
6.00 |
8.50 |
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P-3 227 |
Child
With Prader-Willi Syndrome: Birth to Three (Revised
2004) by Robert H.
Wharton, M.D., Karen Levine, Ph.D., Maria Fragala, PT, Deirdre C.
Mulcahy, M.S., CC-SLP. This booklet discusses the common concerns of the
first three years and offers specific recommendations for early
intervention strategies. A helpful and positive resource for families,
physicians, early intervention worker, and other care providers.
Softcover, 34 pages |
5.00 |
7.50 |
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P.C 233
|
Cookbook
by Donna Unterberger. (2003)
Cookbook for the PWS Diet
filled with low-fat, low-sugar recipes designed to be used by the whole
family. Great substitution list, fun snack recipes, mealtime tips, full
nutritional values calculated for each recipe. Can be used by anyone
wanting to lose weight while eating nutritious, interesting food. |
15.00 |
20.00 |
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P-5 130.8 |
Early
Years Booklet (1998) A collection of articles
regarding young children with Prader-Willi syndrome--many from a
parent’s perspective. Softcover booklet, 37 pages
|
5.00 |
7.50 |
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E,P,C 224 |
(Educator’s Resource Packet) – Pupils Wanting Success:
Resources for Those Who Support Students with Prader-Willi Syndrome
(2003) by Barbara Dorn and Barbara J. Goff, Ed.D. This packet is a
resource for an educator that includes the Teacher’s Handbook for the
Student with PWS, an accompanying worksheet about PWS related issues
and interventions for school staff as well as related Gathered View
articles. |
14.00 |
19.00 |
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E,P,C 232 |
(Educator’s Resource) only
the Teacher’s Handbook for the Student with PWS (2003)
from Educator’s Resource Packet- The Student with PWS. A resource book
for educators. Important for all who work with these students to gain
knowledge about this disorder as well as the many factors that influence
their learning. This resource manual will provide teachers with
valuable information to assist in working with students of all
abilities. |
10.00 |
15.00 |
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P,C,M 228 |
Everyone’s Essential Almanac
(2006) –
(replaces “Health and Medical Issues”)
A collection of articles for the individual with Prader-Willi
syndrome. Softcover booklet, 119 pages. |
8.00 |
10.00 |
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P,C,E 220 |
Exercise and Crafts & Activities
– A Collection of Articles
(1998) Contributions by Jennifer C. Deau, M.S.,
Exercise Physiologist, and other articles on muscle tone, upper body
strength, exercise, and crafts and activities for the individual w/PWS.
Softcover, 44 pages |
6.00 |
8.50 |
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P128 |
Growing
Up with Prader-Willi Syndrome: Personal Reflections of a Mother.
(Revised 2003) A
collection of 17 articles by Janalee Heinemann. Tips for managing
family life on a practical level. Softcover booklet, 37 pages. |
5.00 |
7.50 |
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P
123 |
Handbook for Parents by Shirley Neason, (Revised 1999)
A comprehensive booklet, with pictures, that covers birth to adulthood.
Parent-to-parent handbook for understanding and managing issues related
to PWS. Softcover, 75 pages |
7.00 |
10.00 |
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M,C, 100 |
Management of Prader-Willi
Syndrome, Third Edition, Springer –
(2006) Edited by Merlin G.
Butler, MD, PhD, Phillip D.K. Lee, MD, and Barbara Y. Whitman, PhD,
Hardcover, 550 pages. Latest edition of the only comprehensive textbook
on PWS in print. Excellent reference tool for professionals and service
providers. |
50.00 |
75.00 |
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P-6+ 120 |
Michael and
Marie (2003)
by Valerie Rush Sexton and Debbie Erbe Fortin, both teachers, and
illustrated by Bonnie Branson. Addresses a void in the educational
system as there are no story books about Prader-Willi syndrome. The
story is designed to be read to elementary school age children.
Classmates of special needs children need to be educated to understand
and even help create a friendly and safe environment for all children.
|
8.00 |
10.00 |
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P-6+ 124 |
My
Daughter Has the Prader-Willi Syndrome – What do I do?
(2003) By Carlos Molinet Sepulveda. A Chilean father searches with
love and perseverance for answers about his daughter, born in 1988 with
PWS in a country with no knowledge or resources on PWS. |
10.00 |
12.00 |
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P 108.1 |
My Grandchild has Prader-Willi Syndrome:
Now What? (2007 update) Booklet written
for grandparents by grandparents Barb McManus & Michele Leightman;
softcover/16 pgs |
5.00 |
7.50 |
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P-5 234 |
My Ragdoll by
Cheryl Couch (2000) from a Christian perspective. Cheryl shares
her emotional roller coaster when her angel Elana is diagnosed with PWS.
From birth to age 6. Softcover, 229 pages |
16.00 |
18.00 |
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P-3 105.2 |
Nutrition Care for Children with PWS,
Infants and Toddlers (Revised 2004) by Janice Hovasi
Cox, MS,RD and Denise Doorlag, OTR; consultants Dr. James and Carolyn
Loker; edited by Linda Keder. Provides answers to frequently asked
questions about nutrition and feeding of infants and toddlers with
Prader-Willi syndrome. Softcover, 62 pages |
7.00 |
10.00 |
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P-3+ 105 |
Nutrition Care for Children with PWS,
Ages 3-9 (2003)
by Karen H. Borgie, M.A., R.D., for the Prader-Willi
California Foundation. Covers calorie needs, supplements, diet planning
and food management, and explains food exchange lists. Softcover, 12
pages. |
3.00 |
5.50 |
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P-9+ 119 |
Nutrition Care for Adolescents and
Adults with PWS (2003)
by Karen H. Borgie, M.A., R.D., for the Prader-Willi California
Foundation. Covers essential diet information for families, caregivers,
and residential service providers. Softcover, 24 pgs |
5.00 |
7.50 |
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P13+ 134 |
Out of Childhood: Our Teens and Adults with Prader-Willi Syndrome
(Revised (2004) by Lota Mitchell, Mildred Lacy and
Janalee Heinemann. A collection of resources and information to help
guide parents of older children through new and continued challenges,
such as living arrangements, physical development and sexuality,
educational and vocational training. Softcover, 42 pgs |
10.00 |
15.00 |
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P,E,C,M
101 |
Overview of the Prader-Willi Syndrome (Revised 2003)
by Lota Mitchell, M.S.W. Short introduction to the syndrome for
professionals and parents.. Softcover, 13 pages. |
4.00 |
6.50 |
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C,P 225 |
Physical Therapy Intervention for
Individuals with PWS by Maria Fragala, PT; This booklet
provides general information about physical therapy intervention.
Includes copies of articles by Janice Agarwal, PT and mom of a son with
PWS. Softcover, 11 pages |
4.00 |
6.50 |
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P 218 |
Planning for Their
Future: General Estate and Guardianship Planning
(1998)
Compiled by attorneys for general information and guidance
for families of persons with PWS. Includes wills, basic estate plans,
selecting a trustee, letter of intent, guardianship, glossary of estate
planning terms, and more. Softcover booklet, 30 pages |
6.00 |
8.50 |
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M, P,C 123.1 |
Prader-Willi Syndrome A Guide for Families and Professionals
(Revised 2005) by Moris Angulo. 12-page paper containing
comprehensive information about PWS including description, evaluation,
genetics, diagnostic testing, management. |
2.00 |
3.00 |
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P13+PWSC,E 135 |
Prader-Willi Syndrome Is What I Have Not Who I Am!
(2005) A book of
“feelings” written by children and young adults with PWS collected by
Janalee Heinemann. This book gives an important insight into lives and
thoughts of our people dealing with PWS on a daily basis. A portion of
the book opens the door to journal writing and an opportunity for the
reader with PWS to share their feelings. Softcover, 70 pages |
10.00 |
15.00 |
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P,M,C,E 106 |
Prader-Willi Syndrome
Medical Alerts (2005)
Important resource for parents to give to their child’s doctor, ER
staff, caregiver, etc. A useful small-sized handbook, content written
by our medical professionals. 20 pages. $3.00 for single copy,
orders of 4 or more books at $2.50 each. Shipping included |
3.00 |
3.00 |
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140 P,C,M |
Red Yellow Green: System for Weight
Management (2005) by Karen Balko, RD - This book will give
you calories, cup sizes and visual tips to providing a structured food
plan. A 7-day meal plan is included for 800, 1000, 1200 and 1350
calorie plans. |
20.00 |
25.00 |
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P, S, 138 |
See Me,
Hear Me, I’m Here, Too (2006) A book about
siblings, for siblings, and by siblings who have a brother or sister
with PWS. Softcover booklet, 76 pages |
10.00 |
15.00 |
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P 5+ S 121 |
Sometimes I’m Mad, Sometimes I’m Glad
– A Sibling Booklet ( Revised 2005) by Sarah Heinemann
as told to her mother Janalee Heinemann. It is in the voice of a
sibling of someone with PWS. Recognizes the range of feelings that arise
in having a brother or sister with the syndrome. Ages 5 – 13 |
5.00 |
8.00 |
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P, C 103 |
Supporting Adults with
Prader-Willi Syndrome in Residential Settings (2008)
by B. J. Goff - Focus of the manual is primarily on group homes and
their residential programs but the contents may also be used as part of
a specialized training program in Prader-Willi syndrome. Required
reading for all caregivers involved with clients with PWS. Soft cover
booklet, 78 pages – Order 2 or more at $12.00 each |
15.00 |
15.00 |
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C, P13+ 240 |
Supportive Living Care Plan for Adult
with PWS in Placement – BOOK & CD (2002)
This comprehensive book/CD will help you create a plan that is
specifically designed to help staff and supportive personnel provide
predictable, consistent, and accountable care and advocacy for the adult
with PWS. This is available in both a notebook format and in a
changeable CD format that can be adapted to explicitly meet the needs of
each individual. |
20.00 |
25.00 |
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P,C
PWS 236 |
Tool Box of Hope – For When
Your Body Doesn’t Feel Good
(2003) by Deva Joy Gouss. Fun and practical ways for parents and
caregivers to help their child express their
feelings, take medicine, get along with others, and make friends with
their disability. Many coping skills put together in an interactive
workbook. Ages 3 to adult. |
10.00 |
15.00 |
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P, C 223 |
Cards for Restaurants
Designed to be given out to restaurant wait staff (to ask that no
extra food be offered). Pkg. 10 for $4.00 |
4.00 |
4.00 |
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P. C 222 |
Cards for Legal Situations – For Law Enforcement Personnel
In case police ever become involved in a behavior or food incident).
Pkg. 4 for $2.00 |
2.00 |
2.00 |
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DVDs, CDs, & Videos |
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P,C,
PWS
968 |
“I Ain’t Trippin” Rap CD from the 2007 National Conference in Dallas, TX
and
“My Name’s Not Willy”
Rap CD from the 2003
National Conference in Orlando, FL.
|
5.00 |
5.00 |
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Q, P, C,E, M203 |
A
Deadly Hunger (DVD) – (2000)
Five part series of news segments spotlighting PWS. Overview
of syndrome and stresses problems associated with appetite, obesity, and
behavior. |
20.00 |
25.00 |
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P,C,E,M 241 |
Food, Behavior and Beyond –
Practical Management for the Child and Adult with PWS (DVD)
(2005)
by Linda M. Gourash MD,
developmental Pediatrician and Janice L. Forster, MD, child and
adolescent Neuropsychiatrist. Suggestions on nutrition, food and
behavior, cognitive and behavioral traits and medications; 5 segments –
2½ hours |
25.00 |
30.00 |
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Q, P,C, E,M 206 |
Leeza Show – “Food as an Ultimate
Passion and Deadly Curse" –DVD of broadcast 5/26/98.
Sensitive interviewing of several families of children with PWS with
weight and behavior problems and other issues. Note: predates wide use
of growth hormone. (Price is suggested donation to offset reproduction
costs.) 41 minutes |
15.00 |
20.00 |
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Q, P13+
C, E
214 |
Maribel – (2004)
DVD of a family’s struggle
with their adult daughter with PWS. Produced by by Mercedes Rivera,
sister of Maribel, and Albert Salaz. Helpful for families with
placement needs who need to show dramatic impact. |
20.00 |
25.00 |
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M,C 211 |
Prader-Willi Syndrome – An Overview
for Health Professionals (2004)
DVD This
outstanding medical overview is a must for all health care professionals
who are not “experts” on Prader-Willi syndrome. It deals with all the
major genetics and health care issues of the child with PWS. 35 minutes |
15.00 |
20.00 |
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P,E 205 |
“Searching for Solutions” (2000) Multi-purpose
DVD created by award
winning producers and graphic artists. Touches on many areas of PWS,
such as what it is, its cause, behavior, emotional and family issues,
early intervention, residential placement. 16 minutes |
15.00 |
20.00 |
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C 207 |
Staff Training – “Understanding
Prader-Willi Syndrome” DVD - Good
practical advice for individuals who work with persons who have PWS.
Designed to train service provider staff on the needs of individuals
with PWS. 18 minutes |
10.00 |
15.00 |
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P,E,C 212 |
“Tribute to PWS Children from Around
the World”
DVD produced by Mark Ryan,
parent. Beautiful pictures of children with PWS of all ages set to
music. 10 minutes |
10.00 |
10.00 |
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E, C, P 242 |
Understanding the Student with PWS: Strategies
for Success (DVD) – (2006)
Provides teachers with an introduction and overview of issues
associated with PWS; strategies school staff can use in supporting
success of a student with PWS in their classroom
* Special Promo: DVD + Educator’s
Handbook (#232) for $28.00 – Order #243 |
20.00 |
20.00 |
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P,E, PWSC
967 |
Working Out – Big Willy Style
(2005) DVD by
Tad Tomaseski and crew. A workout designed for a person with PWS. It
has been designed to strengthen all muscle groups and increase
cardio-muscular capacity…and it is fun! A second DVD is in the works
for the more obese, less mobile person with PWS.
Click here to view demo |
15.00 |
20.00 |
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P, E, C, M For all |
Brochures
(Single copies are FREE.)
Multiple-copy prices: $0.25 each for 2–20; $0.20 each for 21–100;
$0.15 each for more than 100 |
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112.5 |
Helping with Diet Management -
Children with Prader-Willi Syndrome at School A guide for
parents and educators. |
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116 |
Management of PWS in the Work Setting: A Guide for Employers and
Supervisors Emphasizes careful supervision and consistency as
keys to success; includes tips and strategies and a brief overview of
the syndrome. |
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110.2 |
Medical Reference Guide: A Diagnosis
and Reference Guide for Parents & Caregivers
Summary in chart form for parents
and caregivers who need a quick introduction to PWS. |
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108 |
My Child Has PWS—Now What?
Support and information for families of newly diagnosed infants and
children. |
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111 |
Prader-Willi Syndrome Weight & Behavior Management
Suggested Do’s and Don’ts for controlling the two major problems
associated with PWS. |
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109 |
Someone You Know Has PWS
Basic information for relatives, friends, neighbors, and others in
contact with people with PWS. |
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114 |
Speech and Language and Prader-Willi
Syndrome Summarizes speech problems associated with PWS
and recommends ways to locate a speech-language pathologist to assist a
child of any age. |
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116.5 |
Shelly
has Prader-Willi Syndrome, where dieting is a lifetime struggle and food
is a killer For use where dramatic impact is needed,
e.g., on legislators or decision-makers. Not recommended for parents of
young children. |
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107 |
Questions
and Answers on Prader-Willi Syndrome Basic information about
PWS for anyone unfamiliar with the syndrome. |
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113 |
What Educators Should Know about PWS
Offers guidelines and strategies for
helping the student with PWS stay focused, develop skills and knowledge,
and minimize problems associated with the syndrome in the school
setting. |
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Literatura en Español
(B) Precio de FOLLETO una copia es gratis.
Mas de una
copia el precio de: 2 a 20; el precio es : $0.25 de 21 a 100; el precio
es $0.15) |
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P,C,E,M 241 |
Food, Behavior and Beyond –
Practical Management for the Child and Adult with PWS (DVD)
(2005)
by Linda M. Gourash MD,
developmental Pediatrician and Janice L. Forster, MD, child and
adolescent Neuropsychiatrist. Suggestions on nutrition, food and
behavior, cognitive and behavioral traits and medications; 5 segments –
2½ hours Available with
Spanish Sub-Titles |
25.00 |
30.00 |
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100.1 |
BOOK
- GUIA PARA FAMILIAS Y PROFESSIONALES EL SYNDROME DE PRADER-WILLI
Comprehensive management book.
Written in Spanish, each chapter is written by a specialist on the
particular topic. Excellent reference tool. Reprinted thanks to
ASOCIACION ESPANOLA PRADER-WILLI. Softcover; 400 pages. REDUCED |
10.00 |
15.00 |
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100.2 |
CD
- GUIA PARA FAMILIAS Y PROFESSIONALES EL SYNDROME DE PRADER-WILLI
|
15.00 |
20.00 |
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123.2 |
BOOKLET
- SINDROME DE PRADER-WILLI: GUIA PARA, FAMILIARES Y PROFESIONALES
(Revised in 2003) An overview booklet for parents and professionals.
Softcover, 16 pages. Written by Moris Angulo, M.D. |
2.00 |
3.00 |
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110.3 |
(B) FOLLETO – UNA GUIA DE REFERENCIA
MEDICA Summary in
chart form for parents and caregivers who need a quick introduction to
PWS. (Medical Reference Guide:
A Diagnosis and Reference Guide for Parents & Caregivers)
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111.1 |
(B) FOLLETO – EL SINDOME
PRADER-WILLI CONTROL DE PESO Y COMPORTAMIENTO.
Sugestiones de lo que se debe hacer y no
hacer para controlar los mayores problemas asociados con PWS
(Prader-Willi Syndrome Weight
& Behavior Management) |
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107.1 |
(B) FOLLETO- PREGUNTAS Y
RESPUESTAS SOBRE EL SINDROME PRADER-WILLI
(Questions and Answers on Prader-Willi Syndrome ) |
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Mail order form
with payment to:
PWSA (USA), 8588 Potter Park Drive,
Suite 500, Sarasota, FL 34238
Or fax charge orders to: (941) 312-0142
For additional
information: (800) 926-4797 or (941) 312-0400
All Orders Are
Shipped Via USPS
- Please Call For Shipping Costs for Expedited
Shipping
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on weight of order)
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to $24.99
$10.00 for orders
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Orders over $100 -
To be determined when placing order
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Canadian Shipping & Handling Charges
$10.00 for orders
up to $19.99
$20.00 for orders
$20.00-$49.99
$25.00 for orders
$50.00 and over
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International
Shipping & Handling Charges
Shipping charges to be determined at time of placing order based on weight and type of delivery.
Please call Cindy at (800) 926-4797.
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* Note: Several other materials are available
including books written from parents/personal perspectives. For a
complete order form contact PWSA (USA) 1-800-926-4797 or revisit
this page often.
Mail order form with payment to:
PWSA (USA), 8588 Potter Park Drive,
Suite 500, Sarasota, FL 34238
Or fax charge orders to: 1-941-312-0142
For information, call: 800-926-4797 or 941-312-0400
All Orders Are Shipped Via USPS
Please Call For Overnight
Requests.
edited:
06/22/2009 |
