We are pleased to announce our new book, GROWTH HORMONE AND PRADER-WILLI SYNDROME: A Reference for Families and Care Providers. It is a comprehensive reference for all medical providers considering or already using growth hormone with children who have Prader-Willi syndrome. It is also an excellent resource for parents.

To date, we have received nothing but positive feedback on this book. One endocrinologist wrote, “I just wanted to tell you that the Growth Hormone and Prader-Willi Syndrome publication is by far the best monograph on growth hormone for any condition that I have ever seen...and believe me, I've seen quite a few over the years. I hope that your unrestricted educational grant will allow widespread distribution to all caregivers, pediatric endocrinologists, pediatric endocrine nurses, nurse practitioners, and geneticists. Thank you for putting this together!!”

As you are probably aware, under the Orphan Drug Act, the U.S. Food & Drug Administration (FDA) determined last year that PWS is an indication for treatment with Genotropin, which is a form of growth hormone manufactured by Pharmacia Endocrine Care. While Genotropin is currently the only treatment approved specifically for growth failure in children with PWS, we feel this book gives an unbiased perspective of “if, when, and how” to treat.

Results from the studies submitted to the FDA reveal that growth hormone treatment improves growth and body composition in children with PWS, including stimulating skeletal growth, decreasing the amount of body fat and increasing lean body mass (muscle). Given the many issues faced by families affected by PWS, we believe the increased availability of growth hormone will be of benefit to many members of our community by helping to reduce some of the medical problems often inherent in this syndrome.

Cost of this 53 page 8x10 book is $5 members and $10 non members