“Prader-Willi Syndrome Is What I have , not Who I am!”

by Janalee Heinemann

Our heartwarming new 70 page book is the first ever collection of writings by people with the syndrome-for others with the syndrome-and for all who want to understand what it is like to live with the syndrome. It is a window into the feelings of all of our young people with PWS-and a light reflecting all of their beauty and courage. This book will be appreciated by all older children and adults with the syndrome, and is a “must” for all caregivers, providers and teachers of our older children.  A PWSA (USA) publication, 2004 70 pages Member cost $10, non-member cost $15 plus shipping. Call our PWSA (USA) office at 1-800-926-4797 to order or Click here to order