Heinemann elected Co-Chair of the Coalition of Patient
Advocacy Groups (CPAG)
Sarasota, FL, July 11, 2007. Janalee Heinemann in her new role as our
Director of Research and Medical Affairs, Janalee Heinemann has just been
elected Co-Chair of the Coalition of Patient Advocacy Groups (CPAG) for the
National Institutes of Health’s Rare Diseases Clinical Research Network. The
CPAG represents more than 30 patient advocacy groups, and Janalee will be
helping to ensure that their voices are heard.
The Rare Diseases Clinical Research Network grew out of the Rare Disease Act
of 2002, which directed NIH to support "regional centers of excellence for
clinical research into, training in, and demonstration of diagnostic,
prevention, control, and treatment methods for rare diseases."