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Press Release

Heinemann elected Co-Chair of the Coalition of Patient Advocacy Groups (CPAG)

Sarasota, FL, July 11, 2007. Janalee Heinemann in her new role as our Director of Research and Medical Affairs, Janalee Heinemann has just been elected Co-Chair of the Coalition of Patient Advocacy Groups (CPAG) for the National Institutes of Health’s Rare Diseases Clinical Research Network. The CPAG represents more than 30 patient advocacy groups, and Janalee will be helping to ensure that their voices are heard.

The Rare Diseases Clinical Research Network grew out of the Rare Disease Act of 2002, which directed NIH to support "regional centers of excellence for clinical research into, training in, and demonstration of diagnostic, prevention, control, and treatment methods for rare diseases."

 

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