Phone: 800-926-4797 or 941-312-0400
Your membership provides this website - Join Today!




New Pirates Manager, Clint Hurdle, National Spokesperson for the Prader-Willi Syndrome Association (USA) in Sarasota

November, 17th, 2010 (Sarasota, FL)—On November 15th, 2010 the Pittsburgh Pirates, who play their spring training games in Bradenton, FL, announced Clint Hurdle as their new manager.  This is good news for the Sarasota-based Prader-Willi Syndrome Association (USA) because Hurdle is the organization’s national spokesperson. Hurdle’s eight year old daughter, Madison, was born with Prader-Willi syndrome (PWS) and Hurdle has been on a mission ever since to spread awareness about PWS and to raise money for the important support and research programs of PWSA (USA). 

PWSA (USA) Executive Director, Evan Farrar, said, “We are delighted the Pirates hired Clint not only because he is a great baseball manager but also because this means he will be here with the Pirates during spring training in Bradenton which will help us spread PWS awareness locally.”  Farrar added, “Hurdle works tirelessly to promote awareness of PWS. Every person and family living with PWS celebrates his accomplishments both on and off the field.”   

PWS is a complex genetic syndrome affecting appetite, growth, metabolism, cognitive function and behavior and affects one in 12,000 to 15,000 births, including both males and females and all ethnic groups. Because of an abnormality in the hypothalamus area of the brain, people with PWS never receive the message of satiety; they are always hungry. Currently there is no cure but with early intervention and proper management, most individuals who have PWS can maintain healthy weights and have a normal life expectancy. 

PWSA (USA) is a national organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those affected by Prader-Willi syndrome.   Incorporated as a 501(c)(3) non-profit organization 33 years ago, PWSA (USA) has been based in Sarasota, Florida since 1997. 

For more information about PWS or to make a tax-deductible donation, please contact PWSA (USA) toll-free at (800) 926-4797 or (941) 312-0400 or visit their Web site at  



edited: 02/09/2012

Return to Home page

PWSA(USA) Disclaimer 


Privacy Policy

PWSA (USA) Link Policy


 Email Webmaster