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Joint Announcement by PWSA (USA) and FPWR


Prader-Willi Syndrome Association (USA)


“The Foundation for Prader-Willi Research and the Prader-Willi Syndrome Association (USA) are exploring ways to work together to advance research into the causes of, treatments for, and eventual cure of Prader-Willi syndrome. The two organizations are currently working to:

o support H. Res. 1386, declaring a National Awareness Month for PWS and emphasizing the need for increased financial support for PWS research;
o monitor pending legislation regarding availability of growth hormone for persons with PWS.

We look forward to future discussions and opportunities for collaboration between these two outstanding organizations as we all work to eliminate the challenges of Prader-Willi syndrome.”


edited: 02/09/2012

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