HOME

BE INFORMED
  
> About PWS
  
> Get Publications
 
 > About PWSA (USA)
        
Board of Directors
        
Adults with PWS Advisory
       
 Office Staff

MEDICAL
   > Health Concerns
 
 > Medical Alert
  
> Psychiatric
  
> Diet Resources
  
> Growth Hormone

RESEARCH
   >
Research Grants
   >
Funded Research

   > Participants Wanted
   > Research Topics
   > Scientific Advisory Board
   > Clinical Advisory Board

GET INVOLVED
 
  > Spread Awareness
  
> Become member
   >
Registry

SUPPORT
  
 > Newly Diagnosis
   >
Non-Medical

 
 > For Families
  
> For Providers
           
Advisory Board
   >
For Educators

   > State Chapters
   > Links and Resources

MEDIA

GIVE

CONTACT US

 

PACKAGE OF HOPE
Babies with PWS
Children with PWS

New NICU Information for Newly Diagnosed [Click here]

Dear New Parent:

If your child has recently been diagnosed with PWS, please contact us.  In addition to a free one-year PWSA (USA) membership (USA only, non-USA fees required) , including a free subscription to our newsletter the Gathered View, we are happy to provide you with a Package of Hope appropriate for your child’s age. The Package of Hope includes a variety of materials we believe will answer some of your questions and offer guidance on critical issues such as nutrition, medical concerns, and the use of Growth Hormone as a treatment for PWS.

This resource is supported, in part, by the RGK Foundation.

As you walk this new journey with your child we promise you as you promise your child –                                   

To be your comforter and guide,
And to hold you close to our heart,
To encourage you and give you hope.

Call 1-800-926-4797 for your package of hope today!