PACKAGE OF HOPE

Children with PWS

Dear New Parent:

If you have a newly diagnosed child older than 5 years old, please call PWSA(USA) 1-800-926-4797 for a custom packet.

If you have a newly diagnosed child between ages of 0 to 5, we at PWSA (USA) want to support you in providing for your child with Prader-Willi syndrome, the best possible start to a healthy, happy life. Thanks to designated funding by CIBC World Markets, through their USA Miracle Day campaign, our Michigan State Chapter, and  Pfizer, we are able to give you free of charge the following:

A fact sheet, slightly revised to include an up-to-date reference to Growth Hormone Brochure, “Helping Families and Professionals” A selection of upbeat articles The medical alert booklet Nutritional Care for Infants and Toddlers booklet The Child with PWS – Birth to 3 booklet *Free membership to PWSA (USA) for a year – which will provide you with our educational newsletter, The Gathered View. * Non-US residents are charged $40 (US) for one year membership, all other materials listed above will be sent free of charge.

We promise you as you promise your child –

As we walk this journey together, you will find the hope you need…not only in this package, but also in the “package” of your beautiful child.
 

Barbara McManus, Director of Family Support
Evan Farrar, Acting Executive Director, PWSA (USA)

Call 1-800-926-4797 for your package of hope today!