Package of Hope

PACKAGE OF HOPE

Children with PWS

Dear New Parent:

If you have a newly diagnosed child older than 5 years old, please call PWSA(USA) 1-800-926-4797 for a free packet.

If you have a newly diagnosed child between ages of 0 to 5, we at PWSA (USA) want to support you in providing for your child with Prader-Willi syndrome, the best possible start to a healthy, happy life. Thanks to designated funding by CIBC World Markets, through their USA Miracle Day campaign, our Michigan State Chapter, and Pfizer, we are able to give you free of charge the following:

	A fact sheet, slightly revised to include an up-to-date reference to Growth Hormone
	Brochure, “Helping Families and Professionals” (note I have flipped the title)
	A selection of upbeat articles
	The medical alert booklet
	Nutritional Care for Infants and Toddlers booklet
	The Child with PWS – Birth to 3 booklet
	Free membership to PWSA (USA) for a year – which will provide you with our educational newsletter, The Gathered View.*

* Non-US residents are charged $40 (US) for one year membership, all other materials listed above will be sent free of charge.

Mom with Baby

We promise you as you promise your child –

To be your comforter and guide,
To laugh with you,
To love you,
And hold you close to our heart,
To encourage you and give you hope.

As we walk this journey together, you will find the hope you need…not only in this package, but also in the “package” of your beautiful child.

Barbara McManus, Director of Family Support
Craig Polhemus, Executive Director, PWSA (USA)

Call 1-800-926-4797 for your package of hope today!