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PACKAGE OF HOPE
Children with PWS
Dear New Parent:
If your child has recently been diagnosed with PWS, please contact us. In addition to a free one-year PWSA (USA) membership (USA only, non-USA fees required) , including a free subscription to our newsletter the Gathered View, we are happy to provide you with a Package of Hope appropriate for your child’s age. The Package of Hope includes a variety of materials we believe will answer some of your questions and offer guidance on critical issues such as nutrition, medical concerns, and the use of Growth Hormone as a treatment for PWS. This resource is supported, in part, by the RGK Foundation.
As you walk this new journey with your child we promise you as you promise your child –
To be your
comforter and guide,
And to hold you close to our heart,
To encourage you and give you hope.
Barbara McManus, Director of Family Support
Call 1-800-926-4797 for your package of hope today!