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PRADER-WILLI SYNDROME is a birth defect first identified in 1956 by Swiss doctors A. Prader, H. Willi and A Labhart. There are no known reasons for the genetic accident that causes this lifelong condition which affects appetite, growth, metabolism and behavior. Those affected by the syndrome - about one in 12,000 - are very much alike in their physical symptoms, behaviors and other characteristics. Both sexes and all races are affected. The Prader Willi Syndrome Association provides a resource for education and information about Prader-Willi and support for families, professionals and other interested citizens. SPRING MEETINGNew Jersey Chapter of the Prader-Willi Syndrome Association Sunday, June 1, 2008 1:00 to 4:30PM St. Joseph’s Regional Medical Center 703 Main Street Paterson, NJ 07503 973-754-2727 GUEST SPEAKER: Jennifer Zarcone, Ph.D. Associate Professor of Pediatrics, University of Rochester Medical SchoolUnderstanding How the PWS Brain WorksPeople who know Prader-Willi Syndrome the best describe it as more of a brain disorder than an eating disorder. Dr. Zarcone and her colleagues in the University of Rochester, the University of Kansas and Vanderbilt University have spent the last several years using a technique called functional MRI to study the brains of “normal” people and those with Prader-Willi Syndrome. Dr. Zarcone will share what they have learned and how it affects our understanding of PWS. If you are planning to attend, please contact Marge Royle (973-628-6945 or email at tayloroyle@optonline.net) or Sybil Cohen (856-795-4229 or email at pwsa.nj@gmail.com). -------------------------------------------- Child Care ------------------------------------------------
-----------------------------------------Meeting Location---------------------------------------- The event will be held in the Johnson Auditorium at St. Joseph’s Regional Medical Center. The entrance to the auditorium is within the Emergency Room parking lot located here at the Center. St. Joseph’s Regional Medical Center is located at 703 Main Street, Paterson, NJ. With the hospital on the right hand side, make a right onto Hospital Plaza/ Mary Street. Go into the Emergency Room entrance on Hospital Plaza/ Mary Street. --------------------------------------------- Parking -----------------------------------------------
--- DIRECTIONS TO ST. JOSEPH’S REGIONAL MEDICAL CENTER --- FROM NEW YORK CITY: GW Bridge to Rt. 80 West. Take Exit 58A (Madison Avenue, Clifton) onto Madison Ave. At the 2nd light make a right onto Main Street. At Mary Street/Hospital Plaza, make a right turn to the emergency room parking lot (see map) FROM THE SOUTH: NJ Turnpike to Garden State Parkway North to Exit 155P (on left) onto Rte. 19. Take the first exit, and turn right onto Broad Street. Go through one light, and bear left just after passing under the railroad trestle. Turn right at the light onto Levine Street. At the stop sign, make a left onto Main Street. St. Joseph's will be on your right. FROM THE EAST (Jersey City area) Take US 1&9 North to Route 3 West. Merge onto Garden State Parkway North. Keep Left to take NJ-19 N via exit 155P toward Paterson. Then follow from above. FROM THE NORTH: Garden State Parkway South to Route 80 West. Then proceed as above from New York City. FROM THE WEST: Rt. 80 East to Exit 58A, (Madison Avenue, Clifton) to Madison Avenue. Proceed as above, from New York City.
Our MissionThe Prader-Willi Syndrome Association, NJ Chapter is formed to provide
support to parents and individuals with Prader-Willi Syndrome.
Below are some pictures from our last meeting:
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