Management of Prader-Willi Syndrome

Third Edition, 2006
Springer Science Business Media, Inc., New York, 2006
Edited by Merlin G. Butler, Phillip D. K. Lee, and Barbara Y. Whitman, with chapters contributed by 32 experts in the care of individuals with PWS.

550 pages with 125 illustrations, 11 in full color

“… edited and written by the very best in the field and updated with the latest research … the single best resource of information and support for the next several years”

—Louise Greenswag and Randell Alexander Editors of both prior editions of the textbook

Part I Diagnosis and Genetics
Edited by Merlin G. Butler, MD, PhD, William R. Brown/Missouri Chair in Medical Genetics; Chief, Section of Medical Genetics and Molecular Medicine, Children’s Mercy Hospitals and Clinics; and Professor of Pediatrics, University of Missouri-Kansas City School of Medicine, Kansas City, Missouri

• Chapter 1 Clinical Findings and Natural History of Prader-Willi Syndrome
• Chapter 2 Diagnostic Criteria for Prader-Willi Syndrome
• Chapter 3 Molecular Genetic Findings in Prader-Willi Syndrome
• Chapter 4 Laboratory Testing for Prader-Willi Syndrome

Part II Medical Physiology and Treatment
Edited by Phillip D.K. Lee, MD, Chief Scientific Officer, Immunodiagnostic Systems Ltd., Boldon, Tyne & Wear, United Kingdom; formerly Professor of Pediatrics, Division of Pediatric Endocrinology, David Geffen School of Medicine, University of California, Los Angeles

• Chapter 5 Medical Considerations in Prader-Willi Syndrome
• Chapter 6 Gastrointestinal System, Obesity, and Body Composition
• Chapter 7 Growth Hormone and Prader-Willi Syndrome

Part III Multidisciplinary Management
Edited by Barbara Y. Whitman, PhD, Professor of Pediatrics, Saint Louis University School of Medicine, Cardinal Glennon Children’s Hospital, St. Louis, Missouri

• Chapter 8 Neurodevelopmental and Neuropsychological Aspects of Prader-Willi Syndrome
• Chapter 9 Speech and Language Disorders Associated with Prader-Willi Syndrome
• Chapter 10 Motor and Developmental Interventions
• Chapter 11 Educational Considerations for Children with Prader-Willi Syndrome
• Chapter 12 Tools for Psychological and Behavioral Management
• Chapter 13 Educational and Social Issues for Adolescents with Prader-Willi Syndrome
• Chapter 14 Transition from Adolescence to Young Adulthood: The Special Case of Prader-Willi Syndrome
• Chapter 15 Vocational Training for People with Prader-Willi Syndrome
• Chapter 16 Residential Care for Adults with Prader-Willi Syndrome
• Chapter 17 Inpatient Crisis Intervention for Persons with Prader-Willi Syndrome
• Chapter 18 Social Work Interventions: Advocacy and Support for Families
• Chapter 19 A National Approach to Crisis Intervention and Advocacy
• Chapter 20 Advocacy Issues: School Discipline and Expulsion
• Chapter 21 Advocacy Issues: Sexuality

Appendices

A First Published Report of Prader-Willi Syndrome (in German and English)
B A Comprehensive Team Approach to the Management of Prader-Willi Syndrome
C Growth Charts of Individuals with Prader-Willi Syndrome (USA, Germany, and Japan)
D Eligibility for U.S. Social Security and SSI Benefits for Individuals with Prader-Willi Syndrome
E The International Prader-Willi Syndrome Organization (IPWSO)
F The Prader-Willi Syndrome Association (USA)
 

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