Becoming a member of Prader-Willi Syndrome Association (USA)

• You will receive our outstanding newsletter, The Gathered View, which keeps you updated with the latest information and research related to Prader-Willi syndrome.
• You will have access to the members only area of this website.  There you will find many resources that only a member can receive, free of charge!
• You will become a member of a strong unified front – the only national PWS membership organization in the USA, which advocates for needed services for our children on a nation-wide basis.
• You will be able to obtain information, support, networking, and crisis management assistance by calling our toll-free 800 phone number (e.g. SSI appeal packets, legal packets, placements packet – just to name a few)
• You will be eligible to attend the world’s largest conference sponsored by PWSA (USA) at a reduced fee and receive lower membership rates on the world’s largest array of publications on Prader-Willi syndrome (published and distributed exclusively by PWSA-USA)
   

• The larger our membership, the more influence we can have as an organization, and the more effectively we can advocate for our children and families at the national level.

• You will increase awareness of PWS through helping to send the hundreds of packets we mail each month to educate parents, relatives, medical staff, teachers, students, etc. (Our postage for responding to individual requests exceeds $1100 per month excluding expenses of the newsletter and larger mailings.)

• You will help us provide responsive telephone assistance to those in need of information, counseling or who just need to talk to someone who understands what they are up against. ( Our 800 number costs an average of $1345 a month)

• Your dues and contributions will help support membership fees for families who cannot afford to pay, and supplement conference and crisis grants.

• You will help us support needed research, the national conference and public awareness efforts.

At the present time, PWSA (USA) has 35 state and regional chapters within the United States, and members from 32 other countries – but we miss your personal support. We work closely with your state chapter in providing resources so that you can support, advocate and educate on behalf of persons with PWS. It is truly a team effort and we would really like you to be a part of our team.

If you are a newly diagnosed parent with a child 0-5 years of age, please call office for membership at 800-926-4797.

Join online!  Click here

GET MEMBERSHIP APPLICATION FOR PWSA (USA)

To download Adobe Acrobat Reader, simply click on the "Get Acrobat Reader" icon below, complete your download, and come back for your membership application.

Send or call with your membership information to:

PRADER-WILLI SYNDROME ASSOCIATION (USA)
8588 Potter Park Drive, Suite 500
Sarasota, Florida 34238
1-800-926-4797

Edited 09/22/2008