Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.




Edited: 02/28/2014


The Gathered View, which comes with membership; crucial medical information; the latest in research; and personal stories you can relate to from other families -- are all reasons you cannot afford to NOT to be a member of PWSA (USA).

You need us and we need you - because there is power in numbers.

PWSA (USA) keeps the only national database system on PWS.

Currently thanks to PWSA (USA) networking, key researchers and clinicians are collaborating about early interventions for the infant/toddler with PWS, medications to control the appetite and improve behaviors, signs of early aging, and the cause of deaths - and in the case of this article, respiratory issues.

Remember, NO PARENT IS EVER DENIED MEMBERSHIP. If you cannot afford to pay, simply call our 800 # (800-926-4797) and tell the staff. No questions are asked. Together we can make a difference. Sign up TODAY!

  • One vote, one classification (individual, family, professional/organization)  $50.00
  • International (same as above): $60.00

    Auxiliaries stay the same: $15/US; $25/International Multi-year memberships of 2 years, 5 years and Lifetime are still available.

  • As a current member, you can get the newsletter, The Gathered View, electronically Click here

If you are a newly diagnosed parent of a child with Prader-Willi syndrome, please call office for membership at 800-926-4797.














GoodSearch cause banner

For more details click here.

Combined Federal Campaign #10088