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Gathered View Articles
January-February 2002 Report from the National Institutes of Health: An Opportunity to Influence Research on PWS Executive Director Janalee Heinemann represented PWSA(USA) at this 3-day workshop. Other attendees were primarily researchers or representatives of major research institutes, as well as Eunice Kennedy-Shriver, founder of the Kennedy Foundation. PWS is becoming more well known in the research world. "I believe our invitation to participate in this conference...is a big step in our involvement with research," said Janalee.Questions & Answers About Research  Elizabeth Dykens, Ph.D. explains how research projects begin, why
studies seem to take so long and how PWS parents can be of help.
Picky, Picky, Picky - A Parent's Perspective on Skin Picking Theresa Kellerman explains skin picking and offers tips on dealing with the problem that you can discuss with your health care professional.Understanding Osteoporosis Our Scientific Advisory Board Chair, Dr. Merlin Butler, gives another of his timely reports, this one on recent information about osteoporosis.Life With A Fun Little Boy From the Home Front  An article about young Sam Bladel, a friendly little boy who has PWS,
written by his dad, Lou Bladel.
Give, But Give Wisely Executive Director Janalee Heinemann offers advice for those who make charitable contributions.PWS Families Around the World IPWSO Delegate Pam Eisen has an update on the newest international PWS organizations, including a letter from IPWSO President Giorgio Fornasier.The Gathered View is free to all members
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