Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

Media Room

In the news...

  • Hurdle and family embracing their 'treasure'
    PWS national spokesperson, Clint Hurdle, hitting coach for the MLB Texas Rangers, shares about being dad to a child with PWS on Rangers’ website.
  • US House resolution passes recognizing PWS Awareness Month and a US Senator is willing to sponsor similar action, but looking for co-sponsor before introducing it. Click here to read more.
  • House passes HR4247 Keeping All Students Safe in School Act.  click here for more information.
  • LPGA (Ladies Professional Golf Association) Tour Player Leta Lindley’s work for PWS is now extending to the White House in support of First Lady Michelle Obama’s national campaign to end childhood obesity. Click here.
  • Buddy Baseball makes season debut
  • A Prader-Willi Tribute to Orphan Drug Act
    by Janalee Heinemann - Page 4 of NORD newsletter
  • Heinemann elected Co-Chair of the Coalition of Patient Advocacy Groups (CPAG) - Click here
  • Rhythmic gymnast Sara Abbott possesses an amazing life story – and a lot of support. Click here to see this video.

  • Almost 8 years old, Madison has become the poster child for Prader-Willi Syndrome.  Click here to see this great video.


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