PWSA (USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those affected by Prader-Willi syndrome.

Media Room

• 20/20 (ABC) on Friday, August 7, 2009: feature a rerun of a 2004 show about PWS with updates.
• Good Morning America (ABC), date to be announced ,feature about PWS with Kate Kane, 28 with PWS.
• Two children with Prader-Willi syndrome need loving homes [Click here]
• Conferences and Events
• Clint Hurdle Awareness Video
• YouTube about PWS
• Media messaging
• Touching Stories
• Success Stories!
• Press Releases
  • Prader-Willi Syndrome Association (USA) Praises Congress for Postponing
    Vote on Bills Restricting Access to Human Growth Hormone Click here

In the news...

• Buddy Baseball makes season debut
• A Prader-Willi Tribute to Orphan Drug Act
  by Janalee Heinemann - Page 4 of NORD newsletter
• Heinemann elected Co-Chair of the Coalition of Patient Advocacy Groups (CPAG) - Click here
• News on the internet