State Chapters and Affiliated Organizations

The information on this page may not be current.  If you cannot make contact with your state chapter or one is not listed, call 1-800-926-4797 or Click Here
 

PWSA (USA) will locate someone in your state for you.  Email

Alaska

Prader-Willi Northwest Association

Susan Lundh, Co-President 3706-29th Avenue West Seattle, WA 98199 Phone: 206-285-7679 Email: susanlundh@yahoo.com

 

Arizona

Prader-Willi Syndrome Arizona Association Tammie Penta, President 13839 North Bentwater Drive Tucson,  AZ  85737 (520) 297-7025  p.penta@comcast.net

Phoenix area contact: Sheila McMahon 3920 E. Bronco Trail Phoenix AZ 85044 (480) 598-0966

 

Arkansas

Prader-Willi Arkansas Association Email

California
Prader-Willi California Foundation In State: 800-400-9994 (toll free only within CA) Email: PWCF1@AOL.COM  Lisa Graziano, Executive Director 514 N. Prospect Avenue Suite 110-LL Redondo Beach, CA 90277 310-372-5053 310-372-4329 - Fax 800-400-9994 (toll free only within CA) emai: PWCF1@AOL.COM	Ken Knox - President 292 N. Brampton Av Rialto, CA 92376 Home: (909) 421-9821 Office: (909) 398-0305 Email: TeachKnox@aol.com

Colorado

Lynette Hosler, President
Prader-Willi Colorado Association
8290 South Yukon Way
Littleton, CO 80128
Phone: 303-973-4780

email: Hosler@dynamicsolutions.com
website: http://www.pwsaco.org

Connecticut

Prader-Willi Connecticut Assoc. 35 Ansonia Drive North Haven CT 06473-3306 Phone: 1-203-239-9902 pwsactchapter@yahoo.com

Vicki Knopf ct@pwsausa.org  860-204-9386 Eileen Fletcher NANNYEILEEN2@aol.com 203-239-9902

D.C.

PWSA of Maryland, Virginia, and DC
Linda Keder, President
E-mail: pwsamd@pwsausa.org
Phone:  Sherri Planton - 703-716-4189
 

Delaware

Karen Swanson, President

Prader-Willi Delaware Association
300 Bethel Circle Millwood
Middletown, DE 19709
Phone: (H)  302-378-7385
Email: swede455@aol.com

Florida

Prader-Willi Florida Association
Michelle Torbert
17777 S. W. 285 Street
Homestead, FL 33030
Phone: 305-245-6484
PWFA2007@aol.com

Georgia

PWSA of Georgia Debbie Lange, Executive Director 562 Lakeland Plaza #327 Cumming, GA 30040 Phone: 770-886-2334 FAX:   770-886-2335 TOLL FREE (INSIDE GA) 877-866-2334 email:  pwsaga@earthlink.net

Greg Talley, President 3562 Hidden Acres Dr. Atlanta, GA 30340 Phone: 404-892-8191 E-mail: gtchiro@mindspring.com

 

Hawaii

Prader-Willi Northwest Association Susan Lundh, President    3706-29th Avenue West Seattle, WA 98199 Phone: 206-285-7679 Email: susanlundh@yahoo.com

Tami Ho, Contact Person 269 Kaha St. Kailua, HI 96734 Phone: 808-263-8177 Email:  oncpa@pixi.com

Idaho

Prader-Willi Northwest Association Susan Lundh, President    3706-29th Avenue West Seattle, WA 98199 Phone: 206-285-7679 Email: susanlundh@yahoo.com

Gene Todhunter, Contact Person 550 Lodgepole Rd. Athol, ID 83801-9603 Phone: 208-683-2993 Email: idaho4ts@aol.com

Illinois

PWSA Illinois

John Heybach PhD
2128 N Sedgwick Street, Townhouse 7
Chicago, IL 60614
773 281 9170
jheybach@comcast.net

Indiana
PWSA of Indiana

 

Iowa

David and Edie Bogaczyk
Co-Presidents, Iowa Chapter
15130 Holcomb Avenue
Clive, IA 50325
(515) 987-0288
 

 

Kansas

Teri & Barry Douglas

Prader-Willi Syndrome Advocates

14 NE Bayview Drive
Lees Summit, MO 64064-1624
Phone (H) 816-350-1375
Email
 

Kentucky
Frank Beck -President
3207 Laurel Oak Ct.
Edgewood, KY 41017
859-331-5759
frankandannette@fuse.net

Louisiana

Prader-Willi Louisiana Association
Email
 

Maine
 

Prader-Willi Association of New England
New England Region (Maine, Massachusetts, Rhode Island, New Hampshire, Vermont)

Sherie Bombardier
2 Ernest Street Webster, MA 01570
(508)943-1400
Email

Maryland/Metro D.C. Region

        PWSA of Maryland, Virginia, and DC
        Linda Keder, President
        Email
        Maryland Contact:  Susie Wood - 410-822-3752
 

Michigan

Prader-Willi Syndrome Association of Michigan
Jon & Chris Hendrick
62 North Center St.
Saranac, MI  48881
(616)642-0017
chrishendrick@cablespeed.com

Minnesota
Email
Website: http://www.pwsausa.org/MN

Mississippi
Email
 

Missouri

Judy O'Leary, President
PWSA Missouri Chapter
3233 Hedgetree Lane St.

Louis, MO 63129

Phone: (home) 314-845-6910

Phone: (work) 314-935-5116

Fax: 314-935-7461

email: joleary@artsci.wustl.edu

Montana

Prader-Willi Northwest Association Susan Lundh, President    3706-29th Avenue West Seattle, WA 98199 Phone: 206-285-7679 Email: susanlundh@yahoo.com

Billie McSwan, President 5501 Birch Road Pasco, WA 66301 Phone: 509-547-4801

 

Nebraska
Jennifer Varner, Contact
302 S. 49th Ave.
Omaha, NE 68132
Phone: 402-551-9168
Email: jlvarner@cox.net

Prader-Willi Association of Nevada
Ronnie Salem, President
702-526-0630

Carroll Beeson, Support Coordinator
702-525-2010

pwsnv@aol.com 
http://www.pwsnv.org/
 

Prader-Willi Association of New England
New England Region (Maine, Massachusetts, Rhode Island, New Hampshire, Vermont)

Sherie Bombardier
2 Ernest Street Webster, MA 01570
(508)943-1400
Email

New Jersey
Prader-Willi Syndrome Association - New Jersey Chapter

Sybil Cohen, President
514 Gatewood Rd.
Cherry Hill, NJ 08003
Phone: (856)795-4229
pwsa.nj@gmail.com

New Mexico

PWS Project for New Mexico
Email: claroque@arc-a.org
Telephone: 505-332-6868
 

Email

            New York

Prader-Willi Alliance of New York, Inc. P.O. Box 1114 Niagara Falls, NY  14304 Phone: (716) 276-2211 or (800) 442-1655

President: Barbara McManus Email: alliance@prader-willi.org         Website: www.prader-willi.org

 

North Carolina

 

Prader-Willi Syndrome Assoc. of North Carolina   Mary Jones 145 Tuskarora Point Ln Mooresville, NC 28117 704-660-3201

 

North Dakota
Email

Northwest Region (Washington, Oregon, Idaho, Montana, Alaska, Hawaii)

Prader-Willi Northwest Association Susan Lundh, Co President    3706-29th Avenue West Seattle, WA 98199 Phone: 206-285-7679 Email: susanlundh@yahoo.com

          Ohio

Oklahoma

Daphne Mosley, President
3816 Southeast 89th Street
Oklahoma City, OK 73135
405-677-8089 home
405-501-2129 cell
rdmosley@swbell.net

Oregon

PWSA of Oregon
Lennae Elkington, President

456 Horn Hane

Eugene, OR 97404
Phone: 541-688-2403
Email: Wade175@juno.com

Pennsylvania

PWSA of PA
Debbie Fabio - President
104 Persimmon Place
Cranberry Township, PA 16066
Phone: 724-779-4415
debpwsapa@yahoo.com  

South Carolina
Rhett Eleazer, Contact
912 Lake Spur Lane.
Chapin, SC 29036
Phone: 803-345-1379
Email: Releazer8@cs.com

South Dakota
Contact the National Office

Tennessee
Terry Bolander
105 Foxwood Lane
Franklin, TN 37065
Phone: 615-790-6659
Email: Tcbo333@aolcom

 

 

Texas

Texas Prader-Willi Syndrome Association Derek Snitker PO BOX 3431 Coppell TX 75019 Email: info@texaspwsa.com

Utah

Prader-Willi Utah Assoc., Inc.
Lisa Thornton
2652 Nottingham Way
Salt Lake City, UT 84108
(801)582-0998
web: www.upwsa.org 

Virginia

    
PWSA of Maryland, Virginia, and DC
Linda Keder, President

E-mail: pwsamd@pwsausa.org

Phone:  Sherri Planton - 703-716-4189
 

Wisconsin

PWSA of Wisconsin, Inc.
Mary Lynn Larson
Program Director
2701 N. Alexander St
Appleton, WI 54911-2312
Toll free: 1-866-797-2947
email: wisconsin@pwsausa.org

Wyoming

Email
 

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