The Chapters and Affiliate organizations listed below are active organizations with Prader-Willi Syndrome Association (USA).

If you try to contact anyone on this list and do not hear from them within 7 days or you don't see an organization near you, please click here for further assistance.

Western USA

Central USA

Eastern USA

• Alaska
  
  Alaska PWS Support Group
  Now forming
  
  Yahoo Support
  PWS-AK
   
• Arizona

Prader-Willi Syndrome Arizona Association
Tiffany Shafer, Pres.
Phoenix,  AZ 
Phone: (602)481-5314
Email AZ

Yahoo Support
PWSA-AZ

• California
  
  Prader-Willi California Foundation
  www.facebook.com/pwcf1
  Lisa Graziano, Executive Director
  514 N. Prospect Avenue
  Suite 110-LL
  Redondo Beach, CA 90277
  Phone:
  In State: 800-400-9994
  (toll free only within CA)
  310-372-5053
  310-372-4329 - Fax
  Email CA
  
  Yahoo Support
  PWCFmembers
  PWSProfessionalsExchange
  Central CA Prader-Willi Support

• Alabama
  
  Yahoo Support
  PWSAlabama
   
• Arkansas
  
  Yahoo Support
  pws-ar
   
• Illinois

PWSA Illinois
John Heybach PhD
2128 N Sedgwick Street, Townhouse 7
Chicago, IL 60614
Phone: 773 294 4310
Email IL

Yahoo Support
PWSA-IL

• Indiana
  
  PWSA of Indiana
  Mike & Amy Pfeiffer
  7536 Moonbeam Dr.
  Indpls., IN 46259
  Phone: (317) 527-9173
  Email IN 
  
  Yahoo Support
  PWSA-IN
   
• Iowa
  
  Prader-Willi Association of Iowa
  David and Edie Bogaczyk
  Co-Presidents, Iowa Chapter
  15130 Holcomb Avenue
  Clive, IA 50325
  Phone: (515) 987-0288
  Email IA
  
  Yahoo Support
  PWS-IA
   
• Kansas

Prader-Willi Syndrome Advocates Teri & Barry Douglas
14 NE Bayview Drive
Lees Summit, MO 64064-1624
Phone (H) 816-350-1375
Email KS

Yahoo Support
PWS-KS

• Kentucky

Prader-Willi Syndrome of Kentucky
Rick and Kim Settles
9213 Reigate Ct
Louisville, KY  40222
Phone: 502-339-7872
Email KY

Yahoo Support
Prader-WilliFriendsKentucky

 

• Louisiana
  
  Yahoo Support
  PWSA-LA
   

• Michigan
  
  Prader-Willi Syndrome Association of Michigan
  Eric Macks and Suzette LaVigne
  2155 Ascot Rd
  Ann Arbor, MI 48103
  Phone: (734) 998-3507
  Email MI
  
  Yahoo Support
  PWSAM
   
• Minnesota
  
  PWSA of Minnesota
  7209 Oaklawn Ave
  Edina, MN 55435
  Phone: 651-699-6107
  Email MN
  
  Yahoo Support
  PWSA-MN
   
• Mississippi
  
  Yahoo Support
  PWS-MS
   
• Missouri
  
  PWSA Missouri Chapter
  Barbara Whitman President, PWS
  Missouri Assoc. St Louis Univ
  School of Medicine
  1465 S Grand Blvd Missouri St.
  Louis MO 63104-1003
  Phone: 314-268-4027
  Email MO
  
  Yahoo Support
  PWSA-MO
   
• Nebraska
  
  Yahoo Support
  PWS-NE
   
• North Dakota
  
  Yahoo Support
  PWSA-ND

• Oklahoma

PWSA of Oklahoma
Daphne Mosley, President
3816 SE 89th St Oklahoma City, OK 73135-6222
405-677-8089 home
405-203-0922 cell
Email OK

Yahoo Support
PWSA-OK
 

• South Dakota
  
  Yahoo Support
  PWSA-SD
   
• Texas
  
  Texas Prader-Willi Association
  Lindi Kessinger, President
  P.O. Box 1542
  Whitehouse, TX 75791
  Phone: 903-363-8680
  Email TX
  
  Yahoo Support
  PWSfriendsofTexas
   
• Wisconsin
  
  PWSA of Wisconsin, Inc.
  Mary Lynn Larson
  Program Director
  2701 N. Alexander St
  Appleton, WI 54911-2312
  Toll free: 1-866-797-2947
  Email WI
  
  Yahoo Support
  PWSA-WI

• Connecticut
  
  Prader-Willi Connecticut Assoc.
  Vicki Knopf
  860-204-9386
  129 Way Road
  Salem CT 06420
  Email CT 
  
  Yahoo Support
  PWSA-CT
   
• Delaware
  
  Yahoo Support
  PWS-DE
   
• Florida
  
  Prader-Willi Florida Association
  Michelle Torbert
  17777 S. W. 285 Street
  Homestead, FL 33030
  Phone: 305-245-6484
  Email FL
  
  Yahoo Support
  PWSA-FL
   
• Georgia
  PWSA of Georgia
   
  Debbie Lange, Executive Director
  562 Lakeland Plaza #327
  Cumming, GA 30040
  Phone: 770-886-2334
  FAX:   770-886-2335
  Email GA
  
  Yahoo Support
  PWSA-GA
   
• Maine
  
  Yahoo Support
  PWS-ME
   
• Maryland/D.C./Virginia
  
  PWSA of Maryland, Virginia, and DC
  Lisa Varndell
  547 Varndell Rd
  Grantsville, MD
  Phone: Lisa Varndell
  301-268-0881
  Email MD
  
  Yahoo Support
  PWS-VA
  PWSA-MD
   
• New England
  
  Prader-Willi Association of New England
  Eileen Rullo, President
  Andover, MA
  Phone: 978-475-5570
  Email MA
  
  Yahoo Support
  PWS-MA - state of Massachusetts
  PWS-NH - state of New Hampshire
   
• North/South Carolina
  
  Prader-Willi Association of the Carolinas
  Becky Smith, President
  Raleigh,NC
  Phone: (919)332-0621
  Email NC/SC
  
  Yahoo Support
  PWSA-Carolina
   
• New Jersey
  
  Prader-Willi Syndrome Association - New Jersey Chapter
  Sybil Cohen, President
  514 Gatewood Rd.
  Cherry Hill, NJ 08003
  Phone: (856)795-4229
  Email NJ
  
  Yahoo Support
  PWSA-NJ
   
• New York
  
  Prader-Willi Alliance of New York, Inc.
  Amy McDougall, President
  P.O. Box 222
  Baldwinsville, NY 13027
  Phone: (716) 276-2211 or
  (800) 442-1655
  Email NY
  
  Yahoo Support
  PWS-NY
   
• Ohio
  
  Prader-Willi Syndrome Association of Ohio
  Jennifer Bolander, President
  State Office
  4075 West 226 Street
  Fairview Park, Ohio 44126
  Phone: (440) 716-0552
  Email OH
  
  Prader-Willi Families of Ohio
  Johanna Costello, President
  Phone: 330-896-0776
  Email OH Families
  
  Yahoo Support
  PWSA-OH
   
• Pennsylvania
  
  Prader-Willi Syndrome Association of Pennsylvania
  Donna & John Forster Co-Presidents
  2415 Maryland Drive
  Pittsburgh, PA 15241
  412-854-8885
  Email PA
  
  Yahoo Support
  PWSA-PA
   
• Rhode Island
  
  Yahoo Support
  PWS-RI
   
• Tennessee
  
  Prader-Willi Association of TN
  President-
  Dianne Bryden
  Soddy Daisy, TN
  Phone: (423) 413-1568
  Email TN
  
  Yahoo Support
  PWS-TN
   
• Vermont
  
  Yahoo Support
  PWS-VT
   
• West Virginia
  
  Yahoo Support
  PWS-WV