State Chapters and Affiliated Organizations

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The information on this page may not be current.  If you cannot make contact with your state chapter or one is not listed, call 1-800-926-4797 or Click Here
 


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PWSA (USA) will locate someone in your state for you.  Email

Alabama
Alaska
Arizona
Arkansas
California
Colorado
Connecticut
Delaware
District of Columbia
Florida
Georgia
Hawaii
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Louisiana
Maine
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
New Jersey
New Mexico
New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington
West Virginia
Wisconsin
Wyoming

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Alaska
Prader-Willi Northwest Association

 

Susan Lundh, Co-President
3706-29th Avenue West
Seattle, WA 98199
Phone: 206-285-7679
Email: susanlundh@yahoo.com

 

Arizona
Prader-Willi Syndrome Arizona Association
Tammie Penta, President
13839 North Bentwater Drive
Tucson,  AZ  85737
(520) 297-7025 
p.penta@comcast.net


Phoenix area contact:
Sheila McMahon
3920 E. Bronco Trail
Phoenix AZ 85044
(480) 598-0966

 

Arkansas

Prader-Willi Arkansas Association

Email

 

California
Prader-Willi California Foundation
In State: 800-400-9994
(toll free only within CA)
Email: PWCF1@AOL.COM 
Lisa Graziano, Executive Director
514 N. Prospect Avenue
Suite 110-LL
Redondo Beach, CA 90277
310-372-5053
310-372-4329 - Fax
800-400-9994 (toll free only within CA)
emai: PWCF1@AOL.COM 
Ken Knox - President
292 N. Brampton Av
Rialto, CA 92376
Home: (909) 421-9821
Office: (909) 398-0305
Email: TeachKnox@aol.com 

 

Colorado
Lynette Hosler, President
Prader-Willi Colorado Association
8290 South Yukon Way
Littleton, CO 80128
Phone: 303-973-4780
email: Hosler@dynamicsolutions.com
website: http://www.pwsaco.org

Connecticut
Prader-Willi Connecticut Assoc.
35 Ansonia Drive
North Haven CT 06473-3306
Phone: 1-203-239-9902
pwsactchapter@yahoo.com
Vicki Knopf
ct@pwsausa.org 
860-204-9386

Eileen Fletcher
NANNYEILEEN2@aol.com
203-239-9902

D.C.

PWSA of Maryland, Virginia, and DC
Linda Keder, President
E-mail: pwsamd@pwsausa.org
Phone:  Sherri Planton - 703-716-4189
 

Delaware

Karen Swanson, President

Prader-Willi Delaware Association
300 Bethel Circle Millwood
Middletown, DE 19709
Phone: (H)  302-378-7385
Email: swede455@aol.com

 

Florida
Prader-Willi Florida Association
Michelle Torbert
17777 S. W. 285 Street
Homestead, FL 33030
Phone: 305-245-6484
PWFA2007@aol.com

 

Georgia

PWSA of Georgia

Debbie Lange, Executive Director
562 Lakeland Plaza #327
Cumming, GA 30040
Phone: 770-886-2334
FAX:   770-886-2335
TOLL FREE (INSIDE GA) 877-866-2334
email:  pwsaga@earthlink.net

Greg Talley, President
3562 Hidden Acres Dr.
Atlanta, GA 30340
Phone: 404-892-8191
E-mail: gtchiro@mindspring.com


 
 
Hawaii

Prader-Willi Northwest Association
Susan Lundh, President   

3706-29th Avenue West
Seattle, WA 98199
Phone: 206-285-7679
Email: susanlundh@yahoo.com


Tami Ho, Contact Person
269 Kaha St.
Kailua, HI 96734
Phone: 808-263-8177
Email:  oncpa@pixi.com

 

Idaho
Prader-Willi Northwest Association
Susan Lundh, President   

3706-29th Avenue West
Seattle, WA 98199
Phone: 206-285-7679
Email: susanlundh@yahoo.com


Gene Todhunter, Contact Person
550 Lodgepole Rd.
Athol, ID 83801-9603
Phone: 208-683-2993
Email: idaho4ts@aol.com

Illinois
PWSA Illinois

John Heybach PhD
2128 N Sedgwick Street, Townhouse 7
Chicago, IL 60614
773 281 9170
jheybach@comcast.net

Indiana
PWSA of Indiana
 

Iowa

David and Edie Bogaczyk
Co-Presidents, Iowa Chapter
15130 Holcomb Avenue
Clive, IA 50325
(515) 987-0288
 

 

Kansas
Teri & Barry Douglas
Prader-Willi Syndrome Advocates
14 NE Bayview Drive
Lees Summit, MO 64064-1624
Phone (H) 816-350-1375
Email
 

Kentucky
Frank Beck -President
3207 Laurel Oak Ct.
Edgewood, KY 41017
859-331-5759
frankandannette@fuse.net

 

Louisiana
Prader-Willi Louisiana Association
Email
 

Maine
 

Prader-Willi Association of New England
New England Region (Maine, Massachusetts, Rhode Island, New Hampshire, Vermont)
Sherie Bombardier
2 Ernest Street Webster, MA 01570
(508)943-1400
Email


Maryland/Metro D.C. Region

        PWSA of Maryland, Virginia, and DC
        Linda Keder, President
        Email
        Maryland Contact:  Susie Wood - 410-822-3752
 

Michigan
Prader-Willi Syndrome Association of Michigan
Jon & Chris Hendrick
62 North Center St.
Saranac, MI  48881
(616)642-0017
chrishendrick@cablespeed.com

Minnesota
Email
Website: http://www.pwsausa.org/MN

Mississippi
Email
 

Missouri
Judy O'Leary, President
PWSA Missouri Chapter
3233 Hedgetree Lane St.
Louis, MO 63129
Phone: (home) 314-845-6910
Phone: (work) 314-935-5116
Fax: 314-935-7461
email: joleary@artsci.wustl.edu

Montana
Prader-Willi Northwest Association
Susan Lundh, President   

3706-29th Avenue West
Seattle, WA 98199
Phone: 206-285-7679
Email: susanlundh@yahoo.com


Billie McSwan, President
5501 Birch Road
Pasco, WA 66301
Phone: 509-547-4801
 

Nebraska
Jennifer Varner, Contact
302 S. 49th Ave.
Omaha, NE 68132
Phone: 402-551-9168
Email: jlvarner@cox.net

Prader-Willi Association of Nevada
Ronnie Salem, President
702-526-0630

Carroll Beeson, Support Coordinator
702-525-2010

pwsnv@aol.com 
http://www.pwsnv.org/
 

Prader-Willi Association of New England
New England Region (Maine, Massachusetts, Rhode Island, New Hampshire, Vermont)
Sherie Bombardier
2 Ernest Street Webster, MA 01570
(508)943-1400
Email

New Jersey
Prader-Willi Syndrome Association - New Jersey Chapter
Sybil Cohen, President
514 Gatewood Rd.
Cherry Hill, NJ 08003
Phone: (856)795-4229
pwsa.nj@gmail.com

New Mexico
PWS Project for New Mexico
Email: claroque@arc-a.org
Telephone: 505-332-6868
 


Email

            New York

Prader-Willi Alliance of New York, Inc.

P.O. Box 1114
Niagara Falls, NY  14304
Phone: (716) 276-2211 or

(800) 442-1655

President: Barbara McManus Email: alliance@prader-willi.org
        Website: www.prader-willi.org 

 

North Carolina
 

Prader-Willi Syndrome Assoc. of North Carolina

 

Mary Jones
145 Tuskarora Point Ln
Mooresville, NC 28117
704-660-3201

 

North Dakota
Email

Northwest Region (Washington, Oregon, Idaho, Montana, Alaska, Hawaii)
Prader-Willi Northwest Association
Susan Lundh, Co President   

3706-29th Avenue West
Seattle, WA 98199
Phone: 206-285-7679
Email: susanlundh@yahoo.com

 

          Ohio

Prader-Willi Syndrome Association of Ohio
PWSA of Ohio
Jennifer Bolander, President
State Office
4075 West 226 Street
Fairview Park, Ohio 44126
Phone: (440) 716-0552
Email: pwsaohio@aol.com
Website: www.pwsaohio.org
 
Prader-Willi Families of Ohio
Johanna Costello, President
330-896-0776
PWFOHIO@aol.com 

 

Oklahoma

Daphne Mosley, President
3816 Southeast 89th Street
Oklahoma City, OK 73135
405-677-8089 home
405-501-2129 cell
rdmosley@swbell.net

Oregon
PWSA of Oregon
Lennae Elkington, President
456 Horn Hane
Eugene, OR 97404
Phone: 541-688-2403
Email: Wade175@juno.com

Pennsylvania

PWSA of PA
Debbie Fabio - President
104 Persimmon Place
Cranberry Township, PA 16066
Phone: 724-779-4415
debpwsapa@yahoo.com  

South Carolina
Rhett Eleazer, Contact
912 Lake Spur Lane.
Chapin, SC 29036
Phone: 803-345-1379
Email: Releazer8@cs.com

South Dakota
Contact the National Office

Tennessee
Terry Bolander
105 Foxwood Lane
Franklin, TN 37065
Phone: 615-790-6659
Email: Tcbo333@aolcom
 
 

Texas
Texas Prader-Willi Syndrome Association
Derek Snitker
PO BOX 3431
Coppell TX 75019
Email: info@texaspwsa.com

 

Utah
Prader-Willi Utah Assoc., Inc.
Lisa Thornton
2652 Nottingham Way
Salt Lake City, UT 84108
(801)582-0998
web: www.upwsa.org 

Virginia
    
PWSA of Maryland, Virginia, and DC
Linda Keder, President
E-mail: pwsamd@pwsausa.org
Phone:  Sherri Planton - 703-716-4189
 

Wisconsin

PWSA of Wisconsin, Inc.
Mary Lynn Larson
Program Director
2701 N. Alexander St
Appleton, WI 54911-2312
Toll free: 1-866-797-2947
email: wisconsin@pwsausa.org

Wyoming

Email
 

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