The Chapters and Affiliate organizations listed below are active organizations with Prader-Willi Syndrome Association (USA).

If you try to contact anyone on this list and do not hear from them within 7 days or you don't see an organization near you, please click here for further assistance.

Western USA

Central USA

Eastern USA

• Arizona

Prader-Willi Syndrome Arizona Association
Tonya Wilkinson
President
3919 S. Martingale Rd.
Gilbert, Az 85297
480-988-5977
       or
Tammie Penta,
13839 North Bentwater Drive
Tucson,  AZ  85737
Phone: (520) 297-7025 
Email AZ

• California
  
  Prader-Willi California Foundation
  Lisa Graziano, Executive Director
  514 N. Prospect Avenue
  Suite 110-LL
  Redondo Beach, CA 90277
  Phone:
  In State: 800-400-9994
  (toll free only within CA)
  310-372-5053
  310-372-4329 - Fax
  Email CA
   
• Colorado
  
  Prader-Willi Association of Colorado
  Lynette Hosler, President
  8290 South Yukon Way
  Littleton, CO 80128
  Phone: 303-973-4780
  Email CO
   
• Nevada
  
  Prader-Willi Association of Nevada
  Ronnie Salem, President
  Phone: 702-526-0630
  Email NV

• Oregon

PWSA of Oregon
Cory Eliason President
303 E. Historic Columbia River Hwy
Troutdale OR 97060
Phone: 503-669-7191 
Email OR

• Utah
  
  Prader-Willi Utah Assoc., Inc.
  Lisa Thornton
  2652 Nottingham Way
  Salt Lake City, UT 84108
  Phone: (801)582-0998
  Email UT

  
   

   

• Illinois

PWSA Illinois
John Heybach PhD
2128 N Sedgwick Street, Townhouse 7
Chicago, IL 60614
Phone: 773 281 9170
Email IL

• Indiana
  
  PWSA of Indiana
  Mike & Amy Pfeiffer
  7536 Moonbeam Dr.
  Indpls., IN 46259
  Phone: (317) 527-9173
  Email IN 
   
• Iowa
  
  Prader-Willi Association of Iowa
  David and Edie Bogaczyk
  Co-Presidents, Iowa Chapter
  15130 Holcomb Avenue
  Clive, IA 50325
  Phone: (515) 987-0288
  Email IA
  
   
• Kansas

Prader-Willi Syndrome Advocates Teri & Barry Douglas
14 NE Bayview Drive
Lees Summit, MO 64064-1624
Phone (H) 816-350-1375
Email KS
 

• Kentucky

Prader-Willi Syndrome of Kentucky
Rick and Kim Settles
9213 Reigate Ct
Louisville, KY  40222
Phone: 502-339-7872
Email KY

• Michigan
  
  Prader-Willi Syndrome Association of Michigan
  Abe and Lori Anderson
  10756 Woodbush
  Lowell, MI  49331
  Phone: (616)566-3280
  Email MI
   
• Minnesota
  
  PWSA of Minnesota
  7209 Oaklawn Ave
  Edina, MN 55435
  Phone: 952-893-9318
  Email MN
   
• Missouri
  
  PWSA Missouri Chapter
  Barbara Whitman President, PWS
  Missouri Assoc. St Louis Univ
  School of Medicine
  1465 S Grand Blvd Missouri St.
  Louis MO 63104-1003
  Phone: 314-268-4027
  Email MO

• Oklahoma

PWSA of Oklahoma
Daphne Mosley, President
3816 Southeast 89th Street
Oklahoma City, OK 73135
405-677-8089 home
405-501-2129 cell
Email OK

• Wisconsin
  
  PWSA of Wisconsin, Inc.
  Mary Lynn Larson
  Program Director
  2701 N. Alexander St
  Appleton, WI 54911-2312
  Toll free: 1-866-797-2947
  Email WI

   

• Connecticut
  
  Prader-Willi Connecticut Assoc.
  Vicki Knopf
  860-204-9386
  35 Ansonia Drive
  North Haven CT 06473-3306
  Phone: 1-203-239-9902
  Email CT 
   
• Delaware
  
  Prader-Willi Delaware Association
  Karen Swanson, President
  300 Bethel Circle Millwood
  Middletown, DE 19709
  Phone: 302-378-7385
  Email DE
   
• Florida
  
  Prader-Willi Florida Association
  Michelle Torbert
  17777 S. W. 285 Street
  Homestead, FL 33030
  Phone: 305-245-6484
  Email FL
   
• Georgia
  PWSA of Georgia
   
  Debbie Lange, Executive Director
  562 Lakeland Plaza #327
  Cumming, GA 30040
  Phone: 770-886-2334
  FAX:   770-886-2335
  TOLL FREE (INSIDE GA) 877-866-2334
  Email GA
   
• Maryland/D.C./Virginia
  
  PWSA of Maryland, Virginia, and DC
  Lisa Varndell
  547 Varndell Rd
  Grantsville, MD
  Phone:  Sherri Planton - 703-716-4189
  Email MD
   
• New England
  
  Prader-Willi Association of New England
  Eileen Rullo, President
  Andover, MA
  Phone: 978-475-5570
  Email MA
   
• New Jersey
  
  Prader-Willi Syndrome Association - New Jersey Chapter
  Sybil Cohen, President
  514 Gatewood Rd.
  Cherry Hill, NJ 08003
  Phone: (856)795-4229
  Email NJ
   
• New York
  
  Prader-Willi Alliance of New York, Inc.
  Amy McDougall, President
  P.O. Box 222
  Baldwinsville, NY 13027
  Phone: (716) 276-2211 or
  (800) 442-1655
  Email NY
   
• Ohio
  
  Prader-Willi Syndrome Association of Ohio
  Jennifer Bolander, President
  State Office
  4075 West 226 Street
  Fairview Park, Ohio 44126
  Phone: (440) 716-0552
  Email OH
  
  Prader-Willi Families of Ohio
  Johanna Costello, President
  Phone: 330-896-0776
  Email OH Families
   
• Pennsylvania
  
  
PWSA of PA
Debbie Fabio - President
104 Persimmon Place
Cranberry Township, PA 16066
Phone: 724-779-4415
Email PA