Prader-Willi Syndrome Association (USA) is an organization of families and professionals working together to raise awareness, offer support, provide education and advocacy, and promote and fund research to enhance the quality of life of those affected by Prader-Willi syndrome.

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In the spotlight

  • Clinical Trials on Oxytocin for PWS Are Moving Forward!  For more details [click here]
     
  • PWSA (USA) NATIONAL AWARENESS AND FUNDRAISING CAMPAIGN!

    Prader-Willi Syndrome On The MoveSM season has begun. Sign up now! Learn more by clicking here

     

31st PWSA (USA)
National Conference Photos
click here - new items added 12/19/11


 

  • New PWSA (USA) Research Grant Opportunities [click here]
     
  • David Crump to serve as PWSA (USA) Interim Executive Director [Click here]
  • Exciting New Research for Prader-Willi Syndrome -- Janalee Heinemann, PWSA (USA) Director of Research & Medical Affairs states, “There has been a lot of interest and excitement about three pharmacological products being researched that may have an impact on PWS.” She reports on oxytocin, Modafinil (brand name Provigil) and Exenatide which is marketed as Byetta [Click here]
     
  • Formula Thickening Agents Alert [Click here] for details.
     
  • PWSA (USA) adds a fifth Best Idea Grant (BIG) to focus on the hunger and food drive. This is an outcome of the International Hyperphagia Conference sponsored by PWSA (USA). Click here to review all five outstanding grants. We are working hard on alleviating the hunger!
     
  • Front Page News Archive  Items formerly on our front page that cannot be found elsewhere on our site may be kept in a news archive.


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If you are in need of help or advice, please call (800) 926-4797 or email national@pwsausa.org.  We are here to help you!

 


 
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