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Prader-Willi Syndrome Association (USA)
8588 Potter Park Drive, Suite 500
Sarasota, FL  34238
Hours 8AM - 6PM EST
Emergency

Telephone:
800-926-4797
or
 941-312-0400
Fax: 941-312-0142
email:
pwsausa@pwsausa.org

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PWSA(USA) is an organization of families and professionals working together to promote and fund research, provide education, and offer support to enhance the quality of life of those impacted by Prader-Willi syndrome.




After Hours Medical Crises Support Now Available

Medical Alert
MEDICAL ALERT
Important medical information for hospitals, doctors and care givers (PDF)

Join Now
 New Diagnosis Click here first!


2008 PWSA (USA) National Conference
July 2 – 4, 2008
The Wyndham Milwaukee Airport and Convention Center
Milwaukee, Wisconsin

It’s not too late! Please join us in Milwaukee for the 30th Annual PWSA (USA) Conference - Click here for details



In the News...

bullet Prader-Willi Syndrome Association (USA) Praises Congress for Postponing
Vote on Bills Restricting Access to Human Growth Hormone Click here 
bullet Thanks from the Hurdle Family Click here
bullet Rare Donation Continues To Give Five Years Later Click here
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PWSA of Oregon - Christmas Party 2007 on YOU TUBE! Click here

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Time to plan for Summer Camp!  Click here

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National PWS awareness in the NASCAR Craftsman Truck Series on Friday, November 16, 2007... Click here

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Prader-Willi Syndrome Association to participate in CIBC World ...Click here

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Clint Hurdle from the Colorado Rockies - National Spokesperson - Click here

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To view the scientific abstracts, biographies and other documentation related to the 6th IPWSO (our international organization) Conference that was hosted in Romania, go to Click Here

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Other in the News..

Conference 2007...

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Photos from Dallas Click here

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Scientific Abstracts are available in members only


Current Events...
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Angel Drive 2007/2008 begins... Click here

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3rd Annual Lose-A-Thon begins January 1 with new features... Click here

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Other Events...

 

PWSA (USA)...

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SSI Resource

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2006 Annual Report (2.66MB)

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Get the newsletter, The Gathered View, electronically Click here

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Heinemann elected Co-Chair of the Coalition of Patient Advocacy Groups (CPAG) - Click here

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Strategic Plan 2007-2012

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Organization Volunteers Needed

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People with PWS database - BE COUNTED!
FREE MEDICAL ALERT BOOKLET

Special Offers

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Refrigerator Locks

 
New Medical & Research...

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Prader-Willi Syndrome Growth Hormone Deficiency and Treatment Click here -Updated!

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Selective Deletion of Bdnf in the Ventromedial and Dorsomedial Hypothalamus of Adult Mice Results in Hyperphagic Behavior and Obesity  Click here

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Research Funding Opportunities from PWSA (USA) - 2008 Dates posted

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Prader-Willi Syndrome and Early-onset Morbid Obesity Natural History Clinical Study

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A study to evaluate the effect of a new weight loss drug on body weight and appetite of subjects with Prader-Willi Syndrome  Click here

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Updates on recent research on Prader-Willi syndrome by Janalee Heinemann

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PWSA (USA) Scientific and Clinical Advisory Board Publications -Click here

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Health Care Professionals Database Update PWSA (USA) needs your help! - Click here

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Grant Looking at Behavior and What Helps

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Tell me about the good stuff: Positive Growth in Parents - Click here

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Participants needed - Click here

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Other Research...

 

New Publications..

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School Education DVD

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Sibling Booklet

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Grandparent Booklet

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3rd Edition of the Management of Prader-Willi Syndrome Book

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Other publications...


4 Star Rating


Federal Employees
Combined Federal Campagn
Number is 10088

Disclaimer: The PWSA(USA) web site is intended to provide information only - not to diagnose or advocate particular treatment options. The Diagnosis of Prader-Willi Syndrome should be made through a qualified medical professional. Individuals should only make decisions about treatment options in close collaboration with their own health care team of professionals. Thus, it is strongly urged that patients do not change treatment without first consulting their physician. The inclusion of any resource or link in the PWSA(USA) Web Site does not imply endorsement. If you have any questions, please call the Prader-Willi Syndrome Association (USA) at 1-800-926-4797.

This Web site © 1996-2006 by Prader-Willi Syndrome Association (USA). All rights reserved.
This page was last edited on May 14, 2008