PRADER-WILLI SYNDROME

Prader-Willi Syndrome is a very devastating and life-long disorder that is life-threatening and typically becomes more difficult as the child ages. PWS is a two-stage syndrome. At birth, the infant is typically low in birth weight, weak in muscle tone and has difficulty sucking. During the baby’s first year or two of life, the family struggles to get their child to eat and must deal with delayed motor milestones.

The second stage of Prader-Willi syndrome, which typically begins between ages two and four, is dramatically different. Due to a non-inherited genetic problem with chromosome 15, the hypothalamus and pituitary in the brain do not function properly. This generates several wrong messages to the brain including a constant, unrelenting feeling of “hunger.” A person with PWS exhibits an insatiable appetite, which begins to dominate their life once muscle tone improves. They also gain weight at almost double the rate of a typical person. Children as young as three have died of weight related problems.

Donations - For Research - For Support - For Education – For Awareness
PWSA (USA) needs your support!  Your tax deductible dollars will be used for RESEARCH, SUPPORT, EDUCATION, AWARENESS AND ULTIMATELY A CURE! To make a donation, please complete the donation form below. Thank you in advance for your generosity.

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Prader-Willi Syndrome Association (USA) is a non-profit, with 501 C-3 status, dedicated to improving and enhancing the lives of everyone impacted by Prader-Willi syndrome.  Donations are tax deductible.

A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION FOR PRADER-WILLI SYNDROME ASSOCIATION (USA) MAY BE OBTAINED FROM THE FLORIDA DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE, WITHIN THE STATE OF FLORIDA, 1-800-435-7352. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.

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