Prader-Willi Syndrome On The Move is the new PWSA (USA) national awareness initiative, that will take place annually during May, which is PWS awareness month.  Our vision is that this campaign become a signature event for PWS, our chapters, and PWSA (USA).

How It Works

• State Chapters and/or other Individuals and Groups
   
  • Plan and host a local awareness and fundraising event.  Currently there are several Walks, a couple of Move-a-Thons, a Family Fun Day and some other events that are part of Prader-Willi Syndrome On The Move.
    
    Note: Although targeted for May, because we got a late start events can be scheduled beyond May this  year.

• What PWSA (USA) will Provide
  • “Fundraising for PWSA (USA),” a booklet chuck full of ideas and resources
  • Easy-to-follow guides for a walk-a-thon and lose-a-thon
  • Phone and email support from professional, experienced development staff
  • Your own online event registration and fundraising platform
     
    During this inaugural year of Prader-Willi Syndrome on the Move, we are also offering
     
  • Buy-one-get-one-free t-shirts and aluminum sports bottles, temporary tattoos, and 2011 Souvenir Dog Tags -- all featuring the PWS “Move Character” and the special Prader-Willi Syndrome on the Move graphic (seen above).
   

  So, don’t put this off!  For the sake of our children, families, and our PWS community, contact us today to get started!
  
  For more information and to sign up call 800-926-4797, or contact Jodi O’Sullivan at josullivan@pwsausa.org.   

   

  Edited: 02/09/2012