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The Family Support program provides services to families supporting a relative with PWS from birth through adulthood.  In this section of our website, we provide information about common issues and concerns for families caring for a person with PWS.  If you need information or assistance beyond what we’ve included in this section please contact us  at 1-800-926-4797 and ask to speak to a Family Support Counselor (available 10AM-5PM EST) or you can e-mail us at support@pwsausa.org

Please click on any of the images below to learn about Family Support Resources

Positive Behavioral Support

is an essential tool for all caregivers of a person with Prader-Wili syndrome. It is best to implement positive behavioral strategies early in a child’s life – even before behavioral challenges emerge. It is an important pro-active and preventative step to become familiar with and implement positive behavioral strategies.

School Issues

At times children with Prader-Willi syndrome (PWS) face challenges in the school environment. Whether it is monitoring food, managing transitions, or creating an effective relationship with school professional, ensuring an appropriate and effective learning environment is an essential part of parenting a child with PWS.

In-Patient Hospital and Travel Assistance Programs

On this page you will find links and information about available programs as well as information about medical transportation assistance programs should your loved one with PWS need to travel out of state for medical treatment.

Weight Management

Effective weight management is a crucial part of the care of a person with Prader-Willi syndrome (PWS) because obesity related complications are still the number one cause of death for people with PWS

Benefits/SSI

Providing you and your family the information you need to learn about the help you can receive.

Residential Placement

Our Family Support Program can assist with both finding and keeping an appropriate residential placement for a person with PWS. If you are looking for placement, we maintain a Provider Directory to help you explore options in your state.

Legal Issues

Encounters with law enforcement are particularly scary for people with PWS and their families. To help minimize these situations we recommend the following.

Family Concerns

A family living with a child with Prader-Willi syndrome (PWS) faces some unique challenges. Remember, if you reach a particularly tough point, you can always call a Family Support Counselor to vent and perhaps think through some new strategies and responses to your situation and at least know that you are not alone.

Effective Advocacy

Parents and caregivers are often called on to advocate for family members with Prader-Willi syndrome (PWS). The good news is advocacy skills can be learned. Remember, advocacy at its best, means to effectively persuade

Wyatt Special Education Advocacy Training

Welcome to the Wyatt Special Education Advocacy Training (WSEAT). The WSEAT consists of 6 training modules. You can view one or all the modules depending on your interests. Each module includes recommended reading and downloadable resources.

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