6-12 eSupport Group Introduction
This PWS E-Mail Support/Information Program is sponsored by Prader-Willi
Syndrome Association (USA) to provide information and support to parents of
children who have Prader-Willi Syndrome (PWS), as well as care providers,
extended family members, and professionals. Participants in this eSupport Group
provide support to each other, share information and parenting strategies, and
discuss issues related to age of their child, 6 to 12 years. The program
provides the opportunity to connect people who wish to share their experience or
expertise handling the unique day-to day issues and feelings that so many
parents and family members may face who have children with PWS. No one need feel
alone.
Subscribers on the 6-12 eSupport Group list should be parents, extended
family members, and/or caregivers of children with PWS aged 6 through 12 years.
Additionally, some helping professionals may join the list in order to better
understand the experience of families, to learn more about PWS, and to offer
helpful comments and understanding from their perspective.
Due to the nature of Prader-Willi syndrome, symptoms tend to change over the
course of the individual’s lifetime, therefore PWSA’s eSupport Groups have been
organized according to children’s ages: Birth to 5 Years; 6-12 Years; and Teen
Years. There is also a Sibling eSupport Group. Support and input on the 6-12
eSupport Group is welcome from care providers and parents of children of all
ages, with age- or symptom-related issues being addressed.
As the young child moves closer to school age and/or begins to experience
more symptoms typically associated with older children with PWS, some parents of
younger children may choose to also join the 6-12 eSupport Group in order to
receive additional insight and support from more “experienced” parents and care
providers. We believe that parents of infants and young babies will not find
higher-aged eSupport Groups helpful. We therefore discourage parents of infants
and babies from joining higher age eSupport Groups until such time as is
appropriate.
As the child moves closer to their teen years, some parents may find it
helpful to also join the Teen eSupport Group in order to receive additional
insight and support from more “experienced” parents and care providers.
For more information or if you have questions about PWSA’s 6-12 eSupport
Group, please contact the PWSA (USA) office pwsausa@pwsausa.org or call 941-312-0400
or 800-926-4797.
To subscribe to this list - send an email to:
PWSA-USA-6-12yr-subscribe@yahoogroups.com
or with a Yahoo ID and password go to
http://groups.yahoo.com/group/PWSA-USA-6-12yr/
To register for a Yahoo ID and password go to:
http://help.yahoo.com/help/us/edit/edit-01.html
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