My Name's Not Willy!©

By Xcel (Big Tiny, Trey Smith, Lauren Fleming, Tad Tomaseski and The Grand Master of Mix Scott Garrison)

Words to the Song

The Day I was born, my parents got the news
My fifteenth chromosome had blown a fuse
I was born with Prader-Willi, so weights though to lose,
But you ain't gonna hear me singin' the blues

There is no cure, no help from the doc's
All my parents can do is buy some new locks
'Cause I always be thinkin' about that ice box
So they lock it all down, as tight as Fort Knox

I've got Prader-Willi, but my name's not Willy
My name's not Willy! My names not Willy!
I've got Prader-Willi, but my name's not Willy
My name's not Willy! My names not Willy!

You know my appetite is always testin' me
But I ain't gonna let it get the best of me
'Cause I know my life has got a destiny
So you gotta take the time to know the rest of me

Some kids make fun of me, 'cause I'm not the same
Like I had a choice Dawg, I'm not to blame
See havin' Prader-Willi is not the true shame
It's you bustin' on me, and don't even know my name

This songs about a syndrome I can't ignore
'Cause my appetite and me, is always at war
Sometimes I get so mad, that I slam the door
It makes my emotions, so hard to store

Havin' Prader-Willi is my cross to bear
But I'm not cryin' about it, 'cause this I swear
It ain't stoppin' me, 'cause to dream I'll dare
My life is like a diamond, so precious and rare

Yeah sometimes I'm mad, but sometimes I'm glad
Emotions and hunger, I wish control I had
The point of this song is not to make you sad
But for opening minds and the awareness it will add

My syndrome brothers and sisters, are hopin' for a cure
Prader-Willi should be stopped, that's for sure
Annihilate it, like the Terminator
We'll all be set free, so let me hear ya' holler!

Now here's my final statement, excuse me m'am
Prader-Willi's what I've got, not who I am
If you think you know me, take a second look
Just lookin' at the cover, you can't judge a book

There's a lot more to me, than meets the eye
I have dreams for my life, my only limit's the sky
So if you you really want to know me, come close and take a peek
One promise I can make you, I am truly unique!

Return to the top

Message from Xcel

This song goes out to all our Brothers and sisters out there with Prader-Willi Syndrome.

We wanted this song to:

• Educate people about Prader-Willi Syndrome;
• Communicate with feelings you have to deal with having Prader-Willi Syndrome;
• Stop the world from labeling you;
• most importantly, get you to stop labeling yourself!!!!

We want you and everybody else in the world, to know that Prader-Willi is what you have, not who your are.  Your life is about so much more than just surviving.  Your life has purpose!  You have a destiny!!!!

It doesn't matter if anybody else knows how valuable you are, as long as you know it yourself.
You see, you're not who you think you are.
You're not who other people think you are.
You're not even who you think other people think you are.
YOU ARE WHO GOD SAYS YOU ARE!!!!
And God says that you are PRECIOUS in His sight!

So, don't live life through the eyes of the world,
live it through the eyes of God.
Then, and only then, you will find true purpose and destiny!!!

This is Xcel (Big Tiny, Trey Smith, Lauren Fleming, Tad T and The Grand Master of Mix Scott Garrison)

One Love One God One Way!  PEACE OUT!!!

Return to the top