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Vanderbilt University Study

Are you the parent of a child with Prader-Willi Syndrome between the ages of 5-50 years old?

Are you interested in being in a Vanderbilt University study done by Elizabeth Roof and Elisabeth Dykens about PWS when you are at the PWS Conference?

We are doing a study that will take about 45 minutes to complete. We will tell you about the study, have you sign a consent form and send you some questionnaires by mail before the conference to fill out at home and send back to us. These questionnaires will be about your child’s behavior and appetite and will take about 30 minutes to do.  Then we will schedule a time at the conference to see you for a short 15 minute interview to ask about how your child is doing.  We will give you a small gift card for participating in the study and you will get results about the study when it is done. If you are interested in this study or want more information about it, you can contact Elizabeth Roof at 615-343-3330 or can also contact Lauren Deisenroth at



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updated: 02/09/2012

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