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The Child with Prader-Willi Syndrome: Birth to
Three (Revised 1999)
by Robert H. Wharton, M.D., Karen Levine, Ph.D., Maria Fragala, PT, Deirdre C. Mulcahy,
M.S., CC-SLP; Center for Prader-Willi Syndrome and Related Disorders Spaulding
Rehabilitation Hospital, Boston, MA. The latest revision added a parents
perspective written by the parent of a three year old with PWS.The first three years of
life for children are filled with exciting and dramatic social, emotional, and physical
development. Although the pace of development of these skills varies from child to
child, the dramatic and enabling social, emotional and physical growth in these years
cause them to be known as the "Wonder Years." Infants and young children
with Prader-Willi syndrome (PWS) also demonstrate developmental achievements in these
early years that bring much joy to themselves and to their families. As these are
such critical years of development, we would like to elaborate on some of these
achievements.
This booklet is intended to help parents as well as Early Intervention workers,
physicians and other care providers of children from birth to three with Prader-Willi
syndrome. We will provide a comprehensive overview of these years with
recommendations for optimum care.
To order, click on the Order Form button, print out the Publications
order form, fill it out and send it to the address printed on the form or call the
National Office at 1-800-926-4797.
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